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Looking for 2nd opinion at Duke re new bladder cancer
Zytiga + Prednisone + Lupron have been successfully holding back bone mets since November 2021. Had cystoscope January 2023 to prepare for TURP. Bladder looked completely healthy, no cancer according to urologist. Then when TURP was done February 14, urologist discovered a tumor at bladder neck that
Zytiga + Prednisone + Lupron have been successfully holding back bone mets since November 2021. Had cystoscope January 2023 to prepare for TURP. Bladder looked completely healthy, no cancer according to urologist. Then when TURP was done February 14, urologist discovered a tumor at bladder neck that
Hidden
in
Advanced Prostate Cancer
1 year ago
Next treatment options available for advancing disease
I have completed all scans available to me and they show new metastatic disease throughout my skeleton. PSA @ 4.65 ug/L. The disease continues to advance while being treated with Zoladex and abiraterone. I have switched prednisone for dexamethasone and haven't had an updated blood test yet to see if
I have completed all scans available to me and they show new metastatic disease throughout my skeleton. PSA @ 4.65 ug/L. The disease continues to advance while being treated with Zoladex and abiraterone. I have switched prednisone for dexamethasone and haven't had an updated blood test yet to see if
Islandboy2021
in
Advanced Prostate Cancer
1 year ago
Care to care for a caregiver?
I feel pretty lost today, and could use a little TLC. Even if none of you can relate to this particular situation, me just making the time to ask for support feels good to me: like I'm doing what I deserve. My Joe has not bounced back after ending chemo in December. (His second assault with chemo:
I feel pretty lost today, and could use a little TLC. Even if none of you can relate to this particular situation, me just making the time to ask for support feels good to me: like I'm doing what I deserve. My Joe has not bounced back after ending chemo in December. (His second assault with chemo:
Cateydid
in
Prostate Cancer Caregivers
1 year ago
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I could use a little support, please......
I'll head over to the Caregiver site directly, but I count on you warriors for SO much information. I always start here. I updated Joe's history here but would really appreciate any thoughts you survivors can share about where we are now, realizing no one really knows........ My Joe has not bounced
I'll head over to the Caregiver site directly, but I count on you warriors for SO much information. I always start here. I updated Joe's history here but would really appreciate any thoughts you survivors can share about where we are now, realizing no one really knows........ My Joe has not bounced
Cateydid
in
Advanced Prostate Cancer
1 year ago
Frustration
Hey there, I am a little frustrated about my current treatment - especially because it seems that none of you are or have been on this IV chemo alone (Carboplatin) like I am.....there is a lot of feedback on side effects etc on the ovarian cancer site and lots of feedback with it being used with other
Hey there, I am a little frustrated about my current treatment - especially because it seems that none of you are or have been on this IV chemo alone (Carboplatin) like I am.....there is a lot of feedback on side effects etc on the ovarian cancer site and lots of feedback with it being used with other
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
1 year ago
Olaparib side effects
Hi, I have been on olaparib now for just over 2 months, the side effects were worse than chemo so they have reduced my dose slightly. My body is in constant pain I feel almost wooden, limbs, joints and back pain! Does anyone have any advice to make this easier to live with! Thanks x
Hi, I have been on olaparib now for just over 2 months, the side effects were worse than chemo so they have reduced my dose slightly. My body is in constant pain I feel almost wooden, limbs, joints and back pain! Does anyone have any advice to make this easier to live with! Thanks x
Sallyj42
in
My Ovacome
1 year ago
therapist in NJ or social worker and a psych who works with oncology .he is beyond clinically depressed ? Meds ?
New Jersey virtual therapists for bedridden who works with end of life but not in hospice so please done advise me to ask hospice . Does anyone have names or organizations specific links . My tremor is getting much worse under stress and I'm personally under dx four neuromuscular autoimnine multi system
New Jersey virtual therapists for bedridden who works with end of life but not in hospice so please done advise me to ask hospice . Does anyone have names or organizations specific links . My tremor is getting much worse under stress and I'm personally under dx four neuromuscular autoimnine multi system
Daddyishealing
in
Advanced Prostate Cancer
1 year ago
another lump!
my partners only 8 weeks post op after lobectomy and 4 ribs removed.. 3A NSCC due to start chemo soon and has taken unwell. He’s now in hospital had a ct scan to show another lump to middle lobe.. same thing it looks like an abscess but that’s how the first presented. I’m so scared right now just when
my partners only 8 weeks post op after lobectomy and 4 ribs removed.. 3A NSCC due to start chemo soon and has taken unwell. He’s now in hospital had a ct scan to show another lump to middle lobe.. same thing it looks like an abscess but that’s how the first presented. I’m so scared right now just when
Clareoh
in
The Roy Castle Lung Cancer Foundation
1 year ago
My chemo experience
I started with fludarabine and rituximab which wasn't great. I had feelings of hot and cold, spots before my eyes, vertigo and blacking out. My haematologist was there in minutes, lowered my dose and I was able to complete the course over 6 hours without further adverse effects. Subsequent treatments
I started with fludarabine and rituximab which wasn't great. I had feelings of hot and cold, spots before my eyes, vertigo and blacking out. My haematologist was there in minutes, lowered my dose and I was able to complete the course over 6 hours without further adverse effects. Subsequent treatments
kiwiCanuck
in
CLL Support
1 year ago
5 weeks post op
5 weeks now since having all my lady bits removed , everything healing nicely, just waiting now for appointment now to see when chemo will start . Just wanting to ask do you still feel tired after this op ( well knackered really) excuse my French lol !!!!! I’ve no motivation and just carnt be bothered
5 weeks now since having all my lady bits removed , everything healing nicely, just waiting now for appointment now to see when chemo will start . Just wanting to ask do you still feel tired after this op ( well knackered really) excuse my French lol !!!!! I’ve no motivation and just carnt be bothered
Cazy1010
in
My Ovacome
1 year ago
How to Starve Cancer
Good morning lovely ladies! I’m stage 3c oc, surgery last March and finished chemo in October. As I had such a terrible time with white cell count, I’ve opted not to have Niraparib. I’ve read this book and was impressed by the author’s journey. I think my diet is pretty good but am trying to cut out
Good morning lovely ladies! I’m stage 3c oc, surgery last March and finished chemo in October. As I had such a terrible time with white cell count, I’ve opted not to have Niraparib. I’ve read this book and was impressed by the author’s journey. I think my diet is pretty good but am trying to cut out
Lilyada
in
My Ovacome
1 year ago
PSA rising during triplet therapy. What to ask the oncologist?
Hello to this wonderfully helpful community, my dad's initial PSA was extremely high (3103), so I don't know what to expect. The treatment has been going for four months and a half since ADT (2 months and a half since Zytiga and Docetaxel was added). He started ADT on December, Zytiga and Docetaxel
Hello to this wonderfully helpful community, my dad's initial PSA was extremely high (3103), so I don't know what to expect. The treatment has been going for four months and a half since ADT (2 months and a half since Zytiga and Docetaxel was added). He started ADT on December, Zytiga and Docetaxel
Sissel25
in
Advanced Prostate Cancer
1 year ago
Adding TurkeyTail (or other Mushrooms) to my current treatment
I'm a 70 year old, healthy person who has faced no major health issues (or addressed them quickly.) I'm retired and live alone. After pushing for PSA test, I had 6 in 6/22 and 20 in 8/22. Biopsy in 9/22 showed Gleason 4+5=9 and classified as stage 4. Bone scan and Cat showed small metastices in spine
I'm a 70 year old, healthy person who has faced no major health issues (or addressed them quickly.) I'm retired and live alone. After pushing for PSA test, I had 6 in 6/22 and 20 in 8/22. Biopsy in 9/22 showed Gleason 4+5=9 and classified as stage 4. Bone scan and Cat showed small metastices in spine
DoubleBlind
in
Advanced Prostate Cancer
1 year ago
Glutamine and RLS Does anyone have any info please?
Hi! Please help if you can. I just finished breast cancer chemo and have now developed peripheral neuropathy despite wearing ice on my hands and feet for two hours during treatment. My RLS was finally pretty under control because I went on Trazadone 50 mg. Still taking. .25 Mirapex and Lunesta. Now
Hi! Please help if you can. I just finished breast cancer chemo and have now developed peripheral neuropathy despite wearing ice on my hands and feet for two hours during treatment. My RLS was finally pretty under control because I went on Trazadone 50 mg. Still taking. .25 Mirapex and Lunesta. Now
charlottesgrandmom
in
Restless Legs Syndrome
1 year ago
In case it helps anyone else - Ondansetron
hi there,I was on here for many years trying to find solutions to recurrent glutening symptoms (urgent diarrhoea a majority of days) despite being incredibly carefully gluten free (I was diagnosed with coeliac about 6 or so years ago). My life was increasingly restricted (holidays were a nightmare,
hi there,I was on here for many years trying to find solutions to recurrent glutening symptoms (urgent diarrhoea a majority of days) despite being incredibly carefully gluten free (I was diagnosed with coeliac about 6 or so years ago). My life was increasingly restricted (holidays were a nightmare,
Megaloo
in
IBS Network
1 year ago
In case it helps anyone else - Ondansetron
hi there, I was on here for many years trying to find solutions to recurrent glutening symptoms (urgent diarrhoea a majority of days) despite being incredibly carefully gluten free (I was diagnosed with coeliac about 6 or so years ago). My life was increasingly restricted (holidays were a nightmare,
hi there, I was on here for many years trying to find solutions to recurrent glutening symptoms (urgent diarrhoea a majority of days) despite being incredibly carefully gluten free (I was diagnosed with coeliac about 6 or so years ago). My life was increasingly restricted (holidays were a nightmare,
Megaloo
in
Gluten Free Guerrillas
1 year ago
Why do we stop treatment
I have to post my experience of having once stopped treatment. I see various posts here with guys asking about stopping their treatments. I started treatment when I was 52 years old. ADT, Chemo and radiation. After treatment PSA went to undetectable. After 2 years with undetectable PSA I thought I was
I have to post my experience of having once stopped treatment. I see various posts here with guys asking about stopping their treatments. I started treatment when I was 52 years old. ADT, Chemo and radiation. After treatment PSA went to undetectable. After 2 years with undetectable PSA I thought I was
Islandboy2021
in
Advanced Prostate Cancer
1 year ago
Outcomes after UMRD with 1st line Ib +Ven Fixed Duration Treatment Versus Continued Ibr Follow-up in the CAPTIVATE Study
First-line Ibr + Ven is an all-
oral
, once-daily,
chemotherapy
-free regimen that continues to provide deep, durable clinical responses in pts with CLL.
First-line Ibr + Ven is an all-
oral
, once-daily,
chemotherapy
-free regimen that continues to provide deep, durable clinical responses in pts with CLL.
Jm954
Administrator
in
CLL Support
1 year ago
Struggling with Chemo cisplatin & epitoposide
I have reoccurrence stage4 high serous grade ovarian. It came back quite quickly. I am halfway through my 8 week chemo cycle which has been so harsh this time round. I am having cisplatin and epitoposide tablet. I was told my Ca125 was heading in the right direction a few weeks ago. After a week off
I have reoccurrence stage4 high serous grade ovarian. It came back quite quickly. I am halfway through my 8 week chemo cycle which has been so harsh this time round. I am having cisplatin and epitoposide tablet. I was told my Ca125 was heading in the right direction a few weeks ago. After a week off
Maya2016
in
My Ovacome
1 year ago
When to add Lynparza?
I completed six rounds of chemo (docetaxel + carboplatin) end of February. Bottom line from PSMA Pet scan in late March: some tumors reduced in size/intensity, others stayed the same, no new PCa evident. PSA remains undetectable. I’m on Lupron and Nubeqa. Genetic testing shows my cancer has the ATM mutation
I completed six rounds of chemo (docetaxel + carboplatin) end of February. Bottom line from PSMA Pet scan in late March: some tumors reduced in size/intensity, others stayed the same, no new PCa evident. PSA remains undetectable. I’m on Lupron and Nubeqa. Genetic testing shows my cancer has the ATM mutation
Skifanatic
in
Advanced Prostate Cancer
1 year ago
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