Severe RLS - a big Thankyou

[Jelbea]

I want to record a great big thankyou to those of you who responded to my previous post. I had between 40 and 50 alerts and very many replies in support of what I was trying to say😁 - and only one adverse comment😒.

I would really have liked to answer each one of you personally but unfortunately I do not have the stamina to do this as my daily chemo drug and little sleep from RLS take all my strength.

However, I hope you all find that the great support from this wonderful site is there when nothing else is working for us. I wish each of you success in your struggle and may you have people around you who understand the enormity of your suffering.

[Jumpey]

Huge good luck with your treatment. X

[ChrisColumbus]

You have a lot to deal with on top of RLS, and I wish you all the best with all of your treatments.

[Violet55]

Dear Jelbea, I felt every single word of your recent post and empathise with you totally. My symptoms also started when I was a child and was constantly told to sit still or the chit chat was "she's got St. Vitas' Dance! " Not until I was much older and had done my own research did I get the medication I needed....that's another story. My reply is really to say to you that I am sorry that you are suffering so terribly now. Not only with RLS and the medication but with chemotherapy and all that that involves. I wish you a speedy recovery and the hope that someone will come up with a breakthrough for RLS.

And to those who think that a hot bath, distraction techniques etc work to elevate the horrendous symptoms of RLS, may they never, ever know the true impact it has on a person's life.

V xx