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Opioid substitution treatment
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Reintroducing DA at a low dose?
What is the current thinking around taking a low dose of a dopamine agonist in conjunction with another RLS medication? I took pramipexole ten years ago and experienced augmentation after approximately 12 months. Fortunately I didn't experience DAWS when coming off it. I have been on pregabalin for
What is the current thinking around taking a low dose of a dopamine agonist in conjunction with another RLS medication? I took pramipexole ten years ago and experienced augmentation after approximately 12 months. Fortunately I didn't experience DAWS when coming off it. I have been on pregabalin for
Hidden
in
Restless Legs Syndrome
1 year ago
Amitriptyline and cortisol
Hi everyone, Here is one of many studies concluding that amitriptyline suppresses the HPA axis and significantly reduces cortisol levels. I have found many peer-reviewed articles claiming the same thing about opioids and benzodiazpines also, but it seems to be more pronounced for amitriptyline. I
Hi everyone, Here is one of many studies concluding that amitriptyline suppresses the HPA axis and significantly reduces cortisol levels. I have found many peer-reviewed articles claiming the same thing about opioids and benzodiazpines also, but it seems to be more pronounced for amitriptyline. I
sferios
in
PMRGCAuk
1 year ago
Opioids can cause adrenal insufficiency
Hi everyone, It appears that opioids can cause adrenal insufficiency. This is something I have not seen mentioned here. Does anyone know about this? Here are a few articles. I think this has relevance to anyone trying to taper through the lower doses of pred if they are taking opioids for pain or any
Hi everyone, It appears that opioids can cause adrenal insufficiency. This is something I have not seen mentioned here. Does anyone know about this? Here are a few articles. I think this has relevance to anyone trying to taper through the lower doses of pred if they are taking opioids for pain or any
sferios
in
PMRGCAuk
1 year ago
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Looking for advice, yet again, please.
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
Mulberry100
in
Restless Legs Syndrome
1 year ago
why docs don’t want to prescribe opioids for RLS….😔
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowski’s excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowski’s excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
Kakally
in
Restless Legs Syndrome
1 year ago
😵💫Crazy COVID story 😷🤧
So My friend who was infected a couple weeks ago for the first time with COVID saw his Dr and was prescribed paxlovid, one of 2 main antiviral treatment that is given to COVID infected people. He recovered, tested negative and returned to work last weekend. He text me last night...started feeling like
So My friend who was infected a couple weeks ago for the first time with COVID saw his Dr and was prescribed paxlovid, one of 2 main antiviral treatment that is given to COVID infected people. He recovered, tested negative and returned to work last weekend. He text me last night...started feeling like
LifeIsThePitts
in
Anxiety and Depression Support
1 year ago
💔 I have lost to many people recently to RLS Let their deaths not be in-vain.I’ve have a plan to bring more exposure. Will u help me X
No I’m not asking for your money Just your truths. https://instagram.com/rls_stories?igshid=NzZlODBkYWE4Ng== 202O I did a YouTube video of me going to the drug clinic to get Buprenorphine . I also set up an RLS page on Instagram that I have not used . So although you don’t always see me on here most
No I’m not asking for your money Just your truths. https://instagram.com/rls_stories?igshid=NzZlODBkYWE4Ng== 202O I did a YouTube video of me going to the drug clinic to get Buprenorphine . I also set up an RLS page on Instagram that I have not used . So although you don’t always see me on here most
Shumbah
in
Restless Legs Syndrome
1 year ago
Buprenorphine is not that harmless
dear (some) forum members, please stop recommending buprenorphine as if it were nothing. a serious side effect can be (if not even: will be) neuroinflammation (microglia-mediated inflammatory response) because it blocks the kappa opioid receptor, unlike other opioids. this is serious. massive hyperalgesia
dear (some) forum members, please stop recommending buprenorphine as if it were nothing. a serious side effect can be (if not even: will be) neuroinflammation (microglia-mediated inflammatory response) because it blocks the kappa opioid receptor, unlike other opioids. this is serious. massive hyperalgesia
snoemata
in
Restless Legs Syndrome
1 year ago
opioid not working at all
Hi, I’m after some advice after years of Ropinirole use I have recently changed to Shortec 5mg Oxycodone. I have slowly increased the amount to the maximum recommended of 20mg per night which I take an hour before bed. Two months in I have never been so exhausted, I’m regularly falling asleep from
Hi, I’m after some advice after years of Ropinirole use I have recently changed to Shortec 5mg Oxycodone. I have slowly increased the amount to the maximum recommended of 20mg per night which I take an hour before bed. Two months in I have never been so exhausted, I’m regularly falling asleep from
Allatonce
in
Restless Legs Syndrome
1 year ago
RLS journey- question of pain…
Hi Survivors Very quick question from me: Currently upped my Pregabalin to 100mg and so far so good. As I’ve said in previous posts, it isn’t a silver bullet but it’s helping. Insomnia is harder to kick to the curb but I’ve noticed that I’m not waking with jumpy legs but with random pain. This could
Hi Survivors Very quick question from me: Currently upped my Pregabalin to 100mg and so far so good. As I’ve said in previous posts, it isn’t a silver bullet but it’s helping. Insomnia is harder to kick to the curb but I’ve noticed that I’m not waking with jumpy legs but with random pain. This could
careerSquirrel
in
Restless Legs Syndrome
1 year ago
the curse of lifelong RLS…
I have had RLS for 33 years, I am 63 now with two grown up daughters. My symptoms first presented when I was pregnant, they were annoying but relatively intermittent and manageable - this is how it continued for many years with symptoms presenting during the night. I coped without medication, massaging
I have had RLS for 33 years, I am 63 now with two grown up daughters. My symptoms first presented when I was pregnant, they were annoying but relatively intermittent and manageable - this is how it continued for many years with symptoms presenting during the night. I coped without medication, massaging
soundofmetal
in
Restless Legs Syndrome
1 year ago
Opoid issues post op
Hi All Back home post op, whilst in it became clear opioids did not not like me at all!!! Visual disturbances etc. But it was manageable with everything going on. Day 3 at home ( paracetamol and 15mg codeine with a liquid Oxy at night ) it’s clear it’s getting worse, 3 migraines yesterday and awoke
Hi All Back home post op, whilst in it became clear opioids did not not like me at all!!! Visual disturbances etc. But it was manageable with everything going on. Day 3 at home ( paracetamol and 15mg codeine with a liquid Oxy at night ) it’s clear it’s getting worse, 3 migraines yesterday and awoke
TriumphLover
in
British Heart Foundation
1 year ago
Low dose opioids
Hi, Does anyone know a doctor in the UK South East who I can see privately who will prescribe low dose opioids? I'm on 1800mg gabapentin and still having very bad symptoms. Thank you!
Hi, Does anyone know a doctor in the UK South East who I can see privately who will prescribe low dose opioids? I'm on 1800mg gabapentin and still having very bad symptoms. Thank you!
Believer1234
in
Restless Legs Syndrome
1 year ago
Gabapentin not working - next steps?
Ongoing RLS symptoms mostly during the day. Had a few months of respite this year where it just seemed to go away mysteriously, but is now back with a vengeance. Gabapentin 400mg three times per day doesn't seem to touch it. I take it throughout the day instead of in the evening because the RLS mostly
Ongoing RLS symptoms mostly during the day. Had a few months of respite this year where it just seemed to go away mysteriously, but is now back with a vengeance. Gabapentin 400mg three times per day doesn't seem to touch it. I take it throughout the day instead of in the evening because the RLS mostly
howbeit-abroad
in
Restless Legs Syndrome
1 year ago
chronic severe RLS
I'm posting this so that maybe it can save someone's life like it did mine. I've suffered with severe Rls since at least middle school and I'm now 50 yrs old. Mine was so bad that I would punch my legs and arms to make them hurt so bad, so I would feel pain instead of the rls. It started going up into
I'm posting this so that maybe it can save someone's life like it did mine. I've suffered with severe Rls since at least middle school and I'm now 50 yrs old. Mine was so bad that I would punch my legs and arms to make them hurt so bad, so I would feel pain instead of the rls. It started going up into
kygigi3
in
Restless Legs Syndrome
1 year ago
TARGIN NOT WORKING!!
I have been off sifrol for 6 weeks now and have been able to cope taking targin(10/5) at 9pm each night.I also take 75mg lyrica at 10 pm.I usually can go straight to sleep at 11.30pm, wake about 1.30am go to toilet and straight back to sleep until about 4.30..am when I wake with rls and CANNOT go back
I have been off sifrol for 6 weeks now and have been able to cope taking targin(10/5) at 9pm each night.I also take 75mg lyrica at 10 pm.I usually can go straight to sleep at 11.30pm, wake about 1.30am go to toilet and straight back to sleep until about 4.30..am when I wake with rls and CANNOT go back
Retiredlady
in
Restless Legs Syndrome
1 year ago
Suggestions for pain and exhaustion 2 weeks after radiation to C3?
Hi, I had 5 radiotherapy sessions with cyberknife on the C3 about 2 weeks ago. I noticed after the 1st session that the pain on the right side of my neck got more and more intense, from my neck down through my right shoulder. On day 4 I didn’t think I could make the last session, but I was pressured
Hi, I had 5 radiotherapy sessions with cyberknife on the C3 about 2 weeks ago. I noticed after the 1st session that the pain on the right side of my neck got more and more intense, from my neck down through my right shoulder. On day 4 I didn’t think I could make the last session, but I was pressured
Verbena1
in
SHARE Metastatic Breast Cancer
1 year ago
Opioids and Paracetamol.
I have recommended using small doses of Paracetamol/Acetominophen to potentiate an opioid if it is being compromised by a trigger. This works well. However-- I have a cautionary tale to relate. I had a few molar tooth extractions recently and took extra paracetamol to relieve the pain. It certainly
I have recommended using small doses of Paracetamol/Acetominophen to potentiate an opioid if it is being compromised by a trigger. This works well. However-- I have a cautionary tale to relate. I had a few molar tooth extractions recently and took extra paracetamol to relieve the pain. It certainly
Madlegs1
in
Restless Legs Syndrome
1 year ago
How long to try out a new drug
I have a lot of trouble tolerating drugs and I blame myself for not trying things longer to see if the side effects lessen. I read these things about how successful someone was after four months with terrible side effects. So the new drug I want to stop is clonodine. This is the second time I have
I have a lot of trouble tolerating drugs and I blame myself for not trying things longer to see if the side effects lessen. I read these things about how successful someone was after four months with terrible side effects. So the new drug I want to stop is clonodine. This is the second time I have
wantokporo
in
Restless Legs Syndrome
1 year ago
still fighting for buprenorphine to be reinstated. I'm starting to lose battle with myself.
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Hidden
in
Restless Legs Syndrome
1 year ago
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