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Low dose opioids
Hi, Does anyone know a doctor in the UK South East who I can see privately who will prescribe low dose opioids? I'm on 1800mg gabapentin and still having very bad symptoms. Thank you!
Hi, Does anyone know a doctor in the UK South East who I can see privately who will prescribe low dose opioids? I'm on 1800mg gabapentin and still having very bad symptoms. Thank you!
Believer1234
in
Restless Legs Syndrome
10 months ago
Gabapentin not working - next steps?
Ongoing RLS symptoms mostly during the day. Had a few months of respite this year where it just seemed to go away mysteriously, but is now back with a vengeance. Gabapentin 400mg three times per day doesn't seem to touch it. I take it throughout the day instead of in the evening because the RLS mostly
Ongoing RLS symptoms mostly during the day. Had a few months of respite this year where it just seemed to go away mysteriously, but is now back with a vengeance. Gabapentin 400mg three times per day doesn't seem to touch it. I take it throughout the day instead of in the evening because the RLS mostly
howbeit-abroad
in
Restless Legs Syndrome
11 months ago
chronic severe RLS
I'm posting this so that maybe it can save someone's life like it did mine. I've suffered with severe Rls since at least middle school and I'm now 50 yrs old. Mine was so bad that I would punch my legs and arms to make them hurt so bad, so I would feel pain instead of the rls. It started going up into
I'm posting this so that maybe it can save someone's life like it did mine. I've suffered with severe Rls since at least middle school and I'm now 50 yrs old. Mine was so bad that I would punch my legs and arms to make them hurt so bad, so I would feel pain instead of the rls. It started going up into
kygigi3
in
Restless Legs Syndrome
11 months ago
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TARGIN NOT WORKING!!
I have been off sifrol for 6 weeks now and have been able to cope taking targin(10/5) at 9pm each night.I also take 75mg lyrica at 10 pm.I usually can go straight to sleep at 11.30pm, wake about 1.30am go to toilet and straight back to sleep until about 4.30..am when I wake with rls and CANNOT go back
I have been off sifrol for 6 weeks now and have been able to cope taking targin(10/5) at 9pm each night.I also take 75mg lyrica at 10 pm.I usually can go straight to sleep at 11.30pm, wake about 1.30am go to toilet and straight back to sleep until about 4.30..am when I wake with rls and CANNOT go back
Retiredlady
in
Restless Legs Syndrome
11 months ago
Suggestions for pain and exhaustion 2 weeks after radiation to C3?
Hi, I had 5 radiotherapy sessions with cyberknife on the C3 about 2 weeks ago. I noticed after the 1st session that the pain on the right side of my neck got more and more intense, from my neck down through my right shoulder. On day 4 I didn’t think I could make the last session, but I was pressured
Hi, I had 5 radiotherapy sessions with cyberknife on the C3 about 2 weeks ago. I noticed after the 1st session that the pain on the right side of my neck got more and more intense, from my neck down through my right shoulder. On day 4 I didn’t think I could make the last session, but I was pressured
Verbena1
in
SHARE Metastatic Breast Cancer
11 months ago
Opioids and Paracetamol.
I have recommended using small doses of Paracetamol/Acetominophen to potentiate an opioid if it is being compromised by a trigger. This works well. However-- I have a cautionary tale to relate. I had a few molar tooth extractions recently and took extra paracetamol to relieve the pain. It certainly
I have recommended using small doses of Paracetamol/Acetominophen to potentiate an opioid if it is being compromised by a trigger. This works well. However-- I have a cautionary tale to relate. I had a few molar tooth extractions recently and took extra paracetamol to relieve the pain. It certainly
Madlegs1
in
Restless Legs Syndrome
11 months ago
How long to try out a new drug
I have a lot of trouble tolerating drugs and I blame myself for not trying things longer to see if the side effects lessen. I read these things about how successful someone was after four months with terrible side effects. So the new drug I want to stop is clonodine. This is the second time I have
I have a lot of trouble tolerating drugs and I blame myself for not trying things longer to see if the side effects lessen. I read these things about how successful someone was after four months with terrible side effects. So the new drug I want to stop is clonodine. This is the second time I have
wantokporo
in
Restless Legs Syndrome
11 months ago
still fighting for buprenorphine to be reinstated. I'm starting to lose battle with myself.
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Hidden
in
Restless Legs Syndrome
1 year ago
Buprenorphine vs. hydromorphone or other opioids
So I noticed during and after a recent TKR that the buprenorphine that I take for my RLS interacts with the hydromorphone that my surgeon prescribed for me for pain. First, when I was taking my buprenorphine along with the hydromorphone, the hydromorphone wasn't easing my pain because the buprenorphine
So I noticed during and after a recent TKR that the buprenorphine that I take for my RLS interacts with the hydromorphone that my surgeon prescribed for me for pain. First, when I was taking my buprenorphine along with the hydromorphone, the hydromorphone wasn't easing my pain because the buprenorphine
LanaCSR
in
Restless Legs Syndrome
1 year ago
Ropinirole reduction
Hi fellow sufferers, I have had rls for almost 25 years, began during my second pregnancy. I have been switching from Ropinirole and Pramipexole for the majority of this time. I am now suffer with augmentation, there is never the right time to wean yourself off, but know I just have to do it before
Hi fellow sufferers, I have had rls for almost 25 years, began during my second pregnancy. I have been switching from Ropinirole and Pramipexole for the majority of this time. I am now suffer with augmentation, there is never the right time to wean yourself off, but know I just have to do it before
21years
in
Restless Legs Syndrome
1 year ago
Israeli discovery could help brain block urge for highly addictive fentanyl
Prof. Ami Citri of Hebrew University of Jerusalem’s Edmond and Lily Safra Center for Brain Sciences (Yoram Aschheim) In breakthrough that could lead to treatment, Hebrew U researchers learn that turning neurons in claustrum structure on and off causes mice to either binge on the drug or ignore it
Prof. Ami Citri of Hebrew University of Jerusalem’s Edmond and Lily Safra Center for Brain Sciences (Yoram Aschheim) In breakthrough that could lead to treatment, Hebrew U researchers learn that turning neurons in claustrum structure on and off causes mice to either binge on the drug or ignore it
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Iron Infusion Attempt
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
Munroist
in
Restless Legs Syndrome
1 year ago
Opioid prejudice at the pharmacy
I wonder if other HU members have experienced hostile treatment from the pharmacy, while collecting their opioid medication?At my local chemist, there are a few members of staff who are rude and hostile towards patients who are prescribed opiates. I pick up my prescription every month. When I go in
I wonder if other HU members have experienced hostile treatment from the pharmacy, while collecting their opioid medication?At my local chemist, there are a few members of staff who are rude and hostile towards patients who are prescribed opiates. I pick up my prescription every month. When I go in
pennygates
in
Restless Legs Syndrome
1 year ago
Buprenorphine and stomach pain
Over the past 2 mths I have developed severe stomach and bowel pain. I suspect I may be suffering from opioid induced bowel dysfunction?? Other more serious causes have been ruled out. Also have poor appetite. It has taken me 25years to find something that relieves my RLS, am terrified now regarding
Over the past 2 mths I have developed severe stomach and bowel pain. I suspect I may be suffering from opioid induced bowel dysfunction?? Other more serious causes have been ruled out. Also have poor appetite. It has taken me 25years to find something that relieves my RLS, am terrified now regarding
Nanpat
in
Restless Legs Syndrome
1 year ago
dental treatment, MTX , surgery and Co-vid booster all landing at the same time.
having a bit of a meltdown with this one, on 29th of this month I am having some planned renal surgery that I am paying to have done privately , the problem is this coming Friday 16th I am having dental work done ( it can’t wait so much pain) the night before is my last MTX before my op , and
having a bit of a meltdown with this one, on 29th of this month I am having some planned renal surgery that I am paying to have done privately , the problem is this coming Friday 16th I am having dental work done ( it can’t wait so much pain) the night before is my last MTX before my op , and
Gaz227
in
PMRGCAuk
1 year ago
SOVENOR PATCHES (Buprenorphine)
Please could anybody using Buprenorphine confirm an article I read recently that it can block the effectiveness of other opioids needed as top up - maybe Tramadol - when the RLS just overrides the patch.
Please could anybody using Buprenorphine confirm an article I read recently that it can block the effectiveness of other opioids needed as top up - maybe Tramadol - when the RLS just overrides the patch.
rchobby
in
Restless Legs Syndrome
1 year ago
Oxycodone
Dear friends, I have to share with you that for the first time in simply YEARS I have been able to relax on the flights to the States to see our son & wife and even better I have enjoyed one month away with them with NO RLS. I simply can't believe it.A HUGE thank you to Sue, Joolsg and others who persuaded
Dear friends, I have to share with you that for the first time in simply YEARS I have been able to relax on the flights to the States to see our son & wife and even better I have enjoyed one month away with them with NO RLS. I simply can't believe it.A HUGE thank you to Sue, Joolsg and others who persuaded
Simkin
in
Restless Legs Syndrome
1 year ago
Looking for Recommendations to treat pain
I am having a lot of pain . Other than taking Opioids , Tylenol, and Nsaids , does anyone have any recommendations? Thank you
I am having a lot of pain . Other than taking Opioids , Tylenol, and Nsaids , does anyone have any recommendations? Thank you
spolyu
in
Advanced Prostate Cancer
1 year ago
Seeing my GP
Hi, I've had RLS for 47 years and, as with many of us, it worsened as I got older. I have been through the DAs, Gabapentin and have just come off Pregabalin due to side effects. My ferritin level is over 100 so I'm pretty happy with that and have just started taking A-Z multi vitamins. I avoid the
Hi, I've had RLS for 47 years and, as with many of us, it worsened as I got older. I have been through the DAs, Gabapentin and have just come off Pregabalin due to side effects. My ferritin level is over 100 so I'm pretty happy with that and have just started taking A-Z multi vitamins. I avoid the
restlessinlondon
in
Restless Legs Syndrome
1 year ago
Antibiotics and dentist
Morning. This old chestnut again I'm afraid. I spoke to my sister yesterday evening. She has had aortic valve replacement. She said her dental hygienist refused to carry out a clean without prophylactic antibiotic cover. NICE guidelines have changed. Her dentist was not so sure. Long
Morning. This old chestnut again I'm afraid. I spoke to my sister yesterday evening. She has had aortic valve replacement. She said her dental hygienist refused to carry out a clean without prophylactic antibiotic cover. NICE guidelines have changed. Her dentist was not so sure. Long
francesw47
in
British Heart Foundation
1 year ago
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