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PSADT question...plus Xofigo and comorbidities
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
WeatherLook
in
Advanced Prostate Cancer
11 months ago
methotrexate
Sunday will be my 40th week of Actemra and about 14 months of Prednisone....I was diagnosed both with PMR and GCA back around July 2022 and started on 60 mg prednisone....have been up and down but can't seem to stay below 20 mg prednisone without recurring headache and eye pain. My rheummy suggested
Sunday will be my 40th week of Actemra and about 14 months of Prednisone....I was diagnosed both with PMR and GCA back around July 2022 and started on 60 mg prednisone....have been up and down but can't seem to stay below 20 mg prednisone without recurring headache and eye pain. My rheummy suggested
Joseph14612
in
PMRGCAuk
11 months ago
PMR flare or something else?
I posted a couple weeks ago about pain and stiffness in my hips, shoulders, and hands/wrists, starting when I reduced to 3 mg from 3.5 mgprednisone using DSNS (diagnosed in 2018 PMR/GCA) and also had a great deal of stess and activity. The rheumatologist thought it was carpal tunnel and trochanter hip
I posted a couple weeks ago about pain and stiffness in my hips, shoulders, and hands/wrists, starting when I reduced to 3 mg from 3.5 mgprednisone using DSNS (diagnosed in 2018 PMR/GCA) and also had a great deal of stess and activity. The rheumatologist thought it was carpal tunnel and trochanter hip
Viola1
in
PMRGCAuk
11 months ago
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High blood pressure medication and fibro
Hi all hope everyone is OK today. The gp has decided I need blood pressure tablets , I have been on them 2 weeks and feel awful. I had a cold but that's gone, this is like a really really bad flare up. I didn't feel ill with hbp and I never go near the gp. The consultant had requested 6monthly blood
Hi all hope everyone is OK today. The gp has decided I need blood pressure tablets , I have been on them 2 weeks and feel awful. I had a cold but that's gone, this is like a really really bad flare up. I didn't feel ill with hbp and I never go near the gp. The consultant had requested 6monthly blood
Titan101
in
Fibromyalgia Action UK
11 months ago
Unexplained vertigo
Hi everyone This morning I had vertigo all of a sudden out of nowhere . About an hour before that I experienced very minimal blurred vision when I was looking at my phone which lasted for about a minute . I’m newly diagnosed with Lupus and I’ve been taking hydroxychloroquine for 6 weeks now .Any ideas
Hi everyone This morning I had vertigo all of a sudden out of nowhere . About an hour before that I experienced very minimal blurred vision when I was looking at my phone which lasted for about a minute . I’m newly diagnosed with Lupus and I’ve been taking hydroxychloroquine for 6 weeks now .Any ideas
sunmoon_
in
LUPUS UK
11 months ago
Bile acid malabsorption
I got diagnosed with bile acid malabsorption in January this year i am on colesevelam for it the thing is i have lost nearly 3 stone in weight since over the last year is this normal with bam ,i have a gastroenterologist appointment in November so mayb get some answers as my stomach is still not right
I got diagnosed with bile acid malabsorption in January this year i am on colesevelam for it the thing is i have lost nearly 3 stone in weight since over the last year is this normal with bam ,i have a gastroenterologist appointment in November so mayb get some answers as my stomach is still not right
Netbet22
in
IBS Network
10 months ago
bleed in eye
I have retinopathy in eye and dry eye and have been given drops to help at night I have type 2 diabetes the cold made it bleed in jan and had pain for six months but leprechaun warm and went away by self
I have retinopathy in eye and dry eye and have been given drops to help at night I have type 2 diabetes the cold made it bleed in jan and had pain for six months but leprechaun warm and went away by self
Eastwood1
in
Pain Concern
11 months ago
Cotreatment with dichloroacetate and omeprazole exhibits a synergistic antiproliferative effect on malignant tumors
As a follow up to my last post I found this on DCA / Omeprazole. like myself,please treat this as information , not promoting any treatments. For me I find reading and learning about my cancer and possible treatments to be uplifting and gives me hope. To be honest something I never get from my doctor
As a follow up to my last post I found this on DCA / Omeprazole. like myself,please treat this as information , not promoting any treatments. For me I find reading and learning about my cancer and possible treatments to be uplifting and gives me hope. To be honest something I never get from my doctor
85745
in
Advanced Prostate Cancer
8 months ago
How do I tune this out?
Hi. It’s nearly a year since this thing started. I have bilateral tinnitus and hear 3 or 4 different sounds. Although I’m well past the seriously deranged early days, I can’t seem to get to the bit where you tune it out. I’ve done a mindfulness course and use meditation to relax when needed, been fitted
Hi. It’s nearly a year since this thing started. I have bilateral tinnitus and hear 3 or 4 different sounds. Although I’m well past the seriously deranged early days, I can’t seem to get to the bit where you tune it out. I’ve done a mindfulness course and use meditation to relax when needed, been fitted
ViolinP
in
Tinnitus UK
11 months ago
Feeling thoroughly miserable - full time musician, first time tinnitus
Hi folks, hoping to get some more positive ways to deal with this. I've built everything around playing music in my life. It's my entire income, and I feel I need all the money I can get from it. I don't really know any other way I can make the same money. I now have my teenage daughter living with
Hi folks, hoping to get some more positive ways to deal with this. I've built everything around playing music in my life. It's my entire income, and I feel I need all the money I can get from it. I don't really know any other way I can make the same money. I now have my teenage daughter living with
Fulltimemuso
in
Tinnitus UK
11 months ago
Hydroxychloroquine not made a difference
Hi there, I have undifferentiated connective tissue disease and sjogrens syndrome. I just wondered if anyone else found hydroxychloroquine didnt help them? There was no difference for me but I continued under the guidance of my rheumatologist and have now come off of it as am trying a different medication
Hi there, I have undifferentiated connective tissue disease and sjogrens syndrome. I just wondered if anyone else found hydroxychloroquine didnt help them? There was no difference for me but I continued under the guidance of my rheumatologist and have now come off of it as am trying a different medication
DogsMakeLifeGood
in
LUPUS UK
11 months ago
stomach Cancer
hi everyone, I suffer with stomach issues. The usual gastritis/oesophagitis. Long story short. Looking for guidance really. My Mum had stomach cancer and then got another primary in her Oesophagus at the same time. Sadly gone. But I am getting full easy when I eat, pain in stomach, bringing food back
hi everyone, I suffer with stomach issues. The usual gastritis/oesophagitis. Long story short. Looking for guidance really. My Mum had stomach cancer and then got another primary in her Oesophagus at the same time. Sadly gone. But I am getting full easy when I eat, pain in stomach, bringing food back
Crinkles2020
in
Oesophageal & Gastric Cancer
8 months ago
biliary atresia post kasai at 102 days after born
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
Babyjunten
in
Children's Liver Disease Foundation
11 months ago
Fybro the answer to everything?
Has any one found that when you go to your specialist and you tell them about a joint pain they automatically reply with, "well you have fybo so..." This has happened to me so many times. One example being that I was getting issues with my left shoulder. The pain was like nothing I've had before. It
Has any one found that when you go to your specialist and you tell them about a joint pain they automatically reply with, "well you have fybo so..." This has happened to me so many times. One example being that I was getting issues with my left shoulder. The pain was like nothing I've had before. It
YoungAndPainful
in
Fibromyalgia Action UK
2 years ago
colonoscopy query
I’m scheduled to endure a colonoscopy on 16th January. We are booked on a flight to Thailand on 1st February (14 hours) . Guidelines say two weeks should pass before flight so in theory ok. However this is a trip of a lifetime for us, much delayed and all booked before this cancer worry. I’ve no idea
I’m scheduled to endure a colonoscopy on 16th January. We are booked on a flight to Thailand on 1st February (14 hours) . Guidelines say two weeks should pass before flight so in theory ok. However this is a trip of a lifetime for us, much delayed and all booked before this cancer worry. I’ve no idea
Stills
in
LUPUS UK
8 months ago
Zona vaccine for CLL patients on Alcalabrutinib (CALQUENCE)
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
unairdefamille
in
CLL Support
11 months ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
11 months ago
Warfarin not raising inr....why?
I've been taking warfarin for 4 weeks trying to get to inr level between 2-3. Even though I'm taking higher dose 8mg my INR is staying at 1.3. I thought by 4 weeks it would have gone up on that dose. It's a pain because I got to have bloods taken every 3 days to see if it goes up. I'm not taking any
I've been taking warfarin for 4 weeks trying to get to inr level between 2-3. Even though I'm taking higher dose 8mg my INR is staying at 1.3. I thought by 4 weeks it would have gone up on that dose. It's a pain because I got to have bloods taken every 3 days to see if it goes up. I'm not taking any
Charts
in
Hughes Syndrome APS Forum
11 months ago
Lung nodule thanks every one who replied
I recently had a cardiac ct scan for chest tightness i have 3 stents stents the results showed that as well as copd which i also have there is now have a 20 mm lung nodule in my left lung Has anyone else have a nodule and how is it treated I have to have a repeat scan in 3 months and have been referred
I recently had a cardiac ct scan for chest tightness i have 3 stents stents the results showed that as well as copd which i also have there is now have a 20 mm lung nodule in my left lung Has anyone else have a nodule and how is it treated I have to have a repeat scan in 3 months and have been referred
Chrissca71
in
Lung Conditions Community Forum
10 months ago
Old Musician With Tinnitus.
Hi all, here is my story. Having been a rock musician since I was a teenager, I'm now in my 60's. And my Tinnitus has got progressively worse over the last few years. During this 'heatwave' in the UK my Tinnitus suddenly got a louder. I have visited two audiologists in the past one with very surprising
Hi all, here is my story. Having been a rock musician since I was a teenager, I'm now in my 60's. And my Tinnitus has got progressively worse over the last few years. During this 'heatwave' in the UK my Tinnitus suddenly got a louder. I have visited two audiologists in the past one with very surprising
VonAdder
in
Tinnitus UK
11 months ago
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