Fybro the answer to everything?

[YoungAndPainful]

Has any one found that when you go to your specialist and you tell them about a joint pain they automatically reply with, "well you have fybo so..."

This has happened to me so many times. One example being that I was getting issues with my left shoulder. The pain was like nothing I've had before. It would lock in place. It would give out etc so I spoke to my specialist. He was talking about fybro and muscle problems. I just knew it wasn't anything to do with either of them...as much as I am not a doctor, I feel like we know our bodies best. Something was telling me to push for an xray.

Just a little about me. I had to have both hips replaced at the age of 26. Majority of the woman in our family have had both hips replaced super early in life. My auntie being the youngest at 24. So genetically there is something going on but due to no research or intrest from doctors, we have 0 clue why this is happening .

So, I got the xray and it turns out that my shoulder is Dysplastic. This apparently was flagged already when I had a chest xray after my second hip replacement, 4 years ago. No one ever told me this. I spent 4 years with this pain and all that time the hospital knew but nothing was said.

This diagnosis has made me even more angry that no one wants to acknowledge the genetic problem that is going on in my family. Having a Dysplastic shoulder is supposed to be rare...yet my mum has also got a Dysplastic shoulder, and it's the left one like me. She also had 2 hip replacements at a very young age. I had Dysplastic hips too.

My point in all this is, I feel like now that I have a diagnosis of Fybromyalgia, the doctors arnt really interested in my joint pain, they just say its fybro causing the pain.

I have never doubted that I have fybro. Everything fits to the T. However, I really don't think it's the answer to everything like the doctors seem to think. Pushing for my shoulder to be xrayed proved that to my specialist.

I don't know. I guess I just want to know if anyone has had that same experience of doctors blaming fybro for everything so no investigation is done.

[Yassytina FMA UK Volunteer]

Hello, I differently agree sometimes we just know our own bodies and pushing till we get the right answers just proves it. I think at some point or another we’ve all been robbed off and seems hard nowadays too even get the same doctor twice that actually gets too know a patient , surgeries seem too be struggling at the best of times too see patients nowadays, take care.

[Sparklingsunshine]

Yep Fibro is the cause of everything, from Covid to climate change. Its remarkable how much gets blamed on it once a doctor knows you have it.

If I'm meeting a new doctor with an unrelated issue then I now avoid mentioning it. I just get fed up with it being a lazy, convenient label to pin everything that ails you on, without them carrying out any tests first.

[Imsoinpain]

Sadly I always have the same problem you have fibro end of conversation I honestly wnat to give up going anymore .

[Las20]

Hi, I’m relatively early in my diagnosis and this is my fear, that everything will be pinned on fibro. In my opinion I’ve not been fully assessed to rule out other conditions and already been diagnosed. So now I just put up with pain in various areas that could be something other than fibro, 🤷🏻‍♀️

[Cat00]

What does dysplastic mean? Every time I Google it it says they are cancer cells?It's amazing that you had hip replacements so young and yet the doctors haven't tried to figure out why? That's just crazy, certainly I've found GP's don't help at all with fibro, I think bc they think they know you aren't dying they just don't worry about us. My husband was treated like a Saint when he got cancer it became a running joke in our family.

[mkbroomy]

110%! For 22 years. It's infuriating.

[Al10]

It's almost as though Doctors are FibroPhobic. They hate Fibro's. And then they love to blame everything on us having fibro, esp if they are busy, and not wanting to shell out on testing and specialist opinion.

I wouldn't be surprised if your joint issues weren't a trigger for your fibro pain. But also, if you have other joints with problems, whether the pain wasn't your warning? Are your muscles having to over compensate to support certain joints, and thus they are struggling and giving you jip?

In my experience you seldom meet a Doctor that either has the time, knowledge or experience to fix us. Often the best they can do is getting some kind of symptom control. I do think learning as much as you can so you can help yourself more, is important.

It was only reading that informed me my GP had prescribed a potentially lethal Combo of drugs to me. Likely I would have just have expired in my sleep so not a nasty way to go, but still, it wasn't ideal. I did only ask him to kill the pain and not um.. Me?

[Chance15]

hi there yes before u av even got room,they just don’t want to know in other words LETS ALL BLAME The FIBRO😂

But it’s not even funny no more they should listen to us.😔

[Sleepyhead_]

Hi there yes we do know our own bodies fascinates me that doctors often contradict us or flat out dont listen. You should have been told take care 🦋