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Sonitus soundbite
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
domforr
in
Acoustic Neuroma Support
13 days ago
Anyone has treatment addressing Genomic ATM Mutations?
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
Shorehousejam
in
Advanced Prostate Cancer
13 days ago
tinnitus so loud I can’t hear in my right ear
I’m currently experiencing a difficult time owing to a family bereavement . My tinnitus has been getting worse over last few days and today my hearing is almost completely gone in my right ear . I have had an mri with clear results . Is there anything I can do to try to help calm it down ? I’m assuming
I’m currently experiencing a difficult time owing to a family bereavement . My tinnitus has been getting worse over last few days and today my hearing is almost completely gone in my right ear . I have had an mri with clear results . Is there anything I can do to try to help calm it down ? I’m assuming
Jannypetlump
in
Tinnitus UK
13 days ago
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Anti-coag query please
Hi. I wondered if anyone could give me someone with more knowledge than me about anti-coagulation could give me some perspective please. Newly diagnosed with paroxysmal AF. Have been max 5 eps a year all resolving with max several hours. My Chads vascs (spelling?!) score is 2 so cardiologist has prescribed
Hi. I wondered if anyone could give me someone with more knowledge than me about anti-coagulation could give me some perspective please. Newly diagnosed with paroxysmal AF. Have been max 5 eps a year all resolving with max several hours. My Chads vascs (spelling?!) score is 2 so cardiologist has prescribed
Joeyy06
in
Atrial Fibrillation Support
14 days ago
Nafarelin/Synarel down reg - when did you get period?
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Prettypenny1
in
Fertility Network UK
14 days ago
Eye surgery
my doctor told me he wants to do surgery on my eye to straighten out a crease on the retina membrane. At the same time he said he will do a procedure that might eliminate the need for the injections I’ve been having for AMD. is anyone familiar with this?
my doctor told me he wants to do surgery on my eye to straighten out a crease on the retina membrane. At the same time he said he will do a procedure that might eliminate the need for the injections I’ve been having for AMD. is anyone familiar with this?
Blindbasset
in
Macular Society
15 days ago
Gingko Biloba - Supplement Advice
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
BookLover2020
in
Thyroid UK
16 days ago
Posterior vitreous detachment
I had an unexpected issue in the last few days which started with large black flashes then the following day black ‘squiggles’ - went to Eye AandE and they said nothing to do with my normal tension glaucoma and I will have to live with this annoying condition which is very distracting. Has anyone else
I had an unexpected issue in the last few days which started with large black flashes then the following day black ‘squiggles’ - went to Eye AandE and they said nothing to do with my normal tension glaucoma and I will have to live with this annoying condition which is very distracting. Has anyone else
Gillian36
in
Glaucoma UK
16 days ago
Coffee - links to autoimmune?
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
PAapr22
in
Pernicious Anaemia Society
16 days ago
First appointment with nhs Rheumy
Hi, I had my first nhs appointment with the Rheumy who is based at the same health centre as the one I have seen privately. He did say to me that he was aware that I had seen one, I had already had my bloods done prior to the appointment. He said my RF was 170 which is high, he gave me two booklets
Hi, I had my first nhs appointment with the Rheumy who is based at the same health centre as the one I have seen privately. He did say to me that he was aware that I had seen one, I had already had my bloods done prior to the appointment. He said my RF was 170 which is high, he gave me two booklets
Wonderfullifeandmore
in
PMRGCAuk
17 days ago
arthritis drug and tinnitus
hello….i have rheumatoid arthritis, and i have been recommended to take a disease modifying drug to slow the disease progression. My issue is that i have constant tinnitus in both ears, and my rheumatolgy nurse has toldme that tinnitus is a side effect of ‘all commonly diagnosed’ disease modifying drugs
hello….i have rheumatoid arthritis, and i have been recommended to take a disease modifying drug to slow the disease progression. My issue is that i have constant tinnitus in both ears, and my rheumatolgy nurse has toldme that tinnitus is a side effect of ‘all commonly diagnosed’ disease modifying drugs
Amanda150
in
Tinnitus UK
17 days ago
Chemo Side Effects
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
Joeym1040
in
Advanced Prostate Cancer
17 days ago
Retinal Vein Occlusion Treatments?
Hi. I am looking for people who have or have had RVO (retinal vein occlusion) and have had Ozurdex injections to treat this issue. I'm working with a pharma client on an educational video for their website and I need to connect with people with RVO who would like to share their experience. I can provide
Hi. I am looking for people who have or have had RVO (retinal vein occlusion) and have had Ozurdex injections to treat this issue. I'm working with a pharma client on an educational video for their website and I need to connect with people with RVO who would like to share their experience. I can provide
BluePE
in
Glaucoma UK
17 days ago
Wenckebach phenomenon
I have had two heart surgeries in the past and was getting skipped heart beats for a while. After my 24 hour ECG they found something called wenckebach phenomenon. Anyone have any idea what this is and is it normal for someone with a heart condition
I have had two heart surgeries in the past and was getting skipped heart beats for a while. After my 24 hour ECG they found something called wenckebach phenomenon. Anyone have any idea what this is and is it normal for someone with a heart condition
Spammy123
in
Heart Rhythm Disorders Support
18 days ago
1st post
Hi , 1st post! symptoms since August 23. Face numbness , hearing loss , eye blur , balance and swallowing issues. It’s take 8 months to speak to a neurologist over the phone. Had a scan last week 29th April. Called 2 days later with diagnosis and told my scan was being sent to ENT. Haven’t heard anything
Hi , 1st post! symptoms since August 23. Face numbness , hearing loss , eye blur , balance and swallowing issues. It’s take 8 months to speak to a neurologist over the phone. Had a scan last week 29th April. Called 2 days later with diagnosis and told my scan was being sent to ENT. Haven’t heard anything
Zobo47
in
Acoustic Neuroma Support
18 days ago
Occupational health
F 58 years old UK As per previous posts I have RLS at least 14 years every day. Am currently on Ropinirol and Gabapentin. I'm experiencing refractory RLS. I have been sleep deprived for years, 4 hours sleep or less means I don't dream, now I'm getting 5 hours I do dream and wake up exhausted! I have
F 58 years old UK As per previous posts I have RLS at least 14 years every day. Am currently on Ropinirol and Gabapentin. I'm experiencing refractory RLS. I have been sleep deprived for years, 4 hours sleep or less means I don't dream, now I'm getting 5 hours I do dream and wake up exhausted! I have
Louless9
in
Restless Legs Syndrome
18 days ago
Prednisone vs Acterma with steroid induced diabetes. Really terrified
Update: April 2024 was scheduled for eye surgery for Strabismus which was canceled days before when in the same week I was determined by my Endocrinologist to have steroid induced diabetes which makes the general anesthesia too risky at this point. Rescheduled for August tentatively while we work on
Update: April 2024 was scheduled for eye surgery for Strabismus which was canceled days before when in the same week I was determined by my Endocrinologist to have steroid induced diabetes which makes the general anesthesia too risky at this point. Rescheduled for August tentatively while we work on
JanetGarrettN
in
PMRGCAuk
19 days ago
The honey bee
I have been looking at the delightful picture of the Italian honey bee with pollen on its legs. What I am puzzled about is on the right. I cannot make out what it is hovering over. Can someone enlighten me? Years ago my father used to keep bees and I used to watch him and also help put the honey in
I have been looking at the delightful picture of the Italian honey bee with pollen on its legs. What I am puzzled about is on the right. I cannot make out what it is hovering over. Can someone enlighten me? Years ago my father used to keep bees and I used to watch him and also help put the honey in
prunus
in
PMRGCAuk
19 days ago
Is lactose intolerance and soya sensitivity affecting absorption of T4?
SlowDragon If I have a lactose intolerance and sensitivity to soya, could this be affecting my T4 absorption or conversion to T3? If so, would liquid thyroxine help or do I need T3 added? I recall reading a post regarding this from you but I am unsure where it is now. I avoid lactose and soya but
SlowDragon If I have a lactose intolerance and sensitivity to soya, could this be affecting my T4 absorption or conversion to T3? If so, would liquid thyroxine help or do I need T3 added? I recall reading a post regarding this from you but I am unsure where it is now. I avoid lactose and soya but
Sailing14
in
Thyroid UK
19 days ago
Seeking pain relief tips bowel movements
Im currently on my last week of RT treatment (38 sessions). Last week has been tough everytime I need to make a bowel movent. Painful to the point Im thinking of going on a liquid diet. Anyone else exp this and have any tips. Im using Aquaphor which was recommended by nurse but hasnt really helped
Im currently on my last week of RT treatment (38 sessions). Last week has been tough everytime I need to make a bowel movent. Painful to the point Im thinking of going on a liquid diet. Anyone else exp this and have any tips. Im using Aquaphor which was recommended by nurse but hasnt really helped
Drago101
in
Advanced Prostate Cancer
21 days ago
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