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does anyone out there have histamine intolerance?
hi I’ve just changed from hydroxicarbamide to interferon. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
hi I’ve just changed from hydroxicarbamide to interferon. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
Loubprv
Volunteer
in
MPN Voice
3 months ago
Help with results!
Hi everyone! Hoping that I can get some advice here. I was diagnosed 3 years ago with endo via laparoscopy. Most of the endo was found on my pouch of douglas and ureteral sacral ligaments. Unfortunately the operation wasn’t done by an endo specialist! I recently got referred to an endo centre as
Hi everyone! Hoping that I can get some advice here. I was diagnosed 3 years ago with endo via laparoscopy. Most of the endo was found on my pouch of douglas and ureteral sacral ligaments. Unfortunately the operation wasn’t done by an endo specialist! I recently got referred to an endo centre as
LJC1416
in
Endometriosis UK
3 months ago
Nutrition supplements
I was given some nutritional supplements by the dietitian-complan shakes and aymes shakes- to try on top of my usual meals and see if I tolerate them, with the aim of gaining some weight. I'm not lactose intolerant so I should be ok. But I'm just terrified they are going to give me horrible symptoms.
I was given some nutritional supplements by the dietitian-complan shakes and aymes shakes- to try on top of my usual meals and see if I tolerate them, with the aim of gaining some weight. I'm not lactose intolerant so I should be ok. But I'm just terrified they are going to give me horrible symptoms.
Bluemon75
in
IBS Network
9 months ago
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Lansoprazole /Prolia
In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She
In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She
Purplegloss
in
PMRGCAuk
3 months ago
scheduled for Botox and tag removal. Possible hemrrhoidectomy
hey everyone! I’ve been dealing with anal fissures on and off ever since giving birth back in 2016. I used to be able to go months and months before having a retear. Then I started noticing I’d tear around my period. Then in 2023 I stopped working out and I noticed I got fissures every month!!! It’s
hey everyone! I’ve been dealing with anal fissures on and off ever since giving birth back in 2016. I used to be able to go months and months before having a retear. Then I started noticing I’d tear around my period. Then in 2023 I stopped working out and I noticed I got fissures every month!!! It’s
Sufferedtoolong
in
Pelvic Pain Support Network
3 months ago
Swollen Stomach IBS_C
Hi everyone. Ive had gut problems for years. Diarrhoea mostly. My stomach has been swollen for a few months now with difficulty having a normal BM. Its usually sludge like...sorry about the description. A colonoscopy 2 years ago showed dilated colon and the gastro Dr said I have IBS _C . He said
Hi everyone. Ive had gut problems for years. Diarrhoea mostly. My stomach has been swollen for a few months now with difficulty having a normal BM. Its usually sludge like...sorry about the description. A colonoscopy 2 years ago showed dilated colon and the gastro Dr said I have IBS _C . He said
granny34
in
IBS Network
7 months ago
United States APS Doctor Specialist List
I had one thrombosis event (CRVO) in May 2022 and then was diagnosed with APS shortly thereafter. I have only been on aspirin, which was input from an ophthalmologist, a hematologist, and a vascular specialist. Now the hematologist wants me to go on Warfarin. I have concluded that this hematologist
I had one thrombosis event (CRVO) in May 2022 and then was diagnosed with APS shortly thereafter. I have only been on aspirin, which was input from an ophthalmologist, a hematologist, and a vascular specialist. Now the hematologist wants me to go on Warfarin. I have concluded that this hematologist
baldboy67
in
Hughes Syndrome APS Forum
9 months ago
Bowel inflammation trigger
Has anyone had their endo trigger with unbelievable pain when you have Diarrhoea? The pain was so bad I have been vomiting all night and I've now come out in hives.
Has anyone had their endo trigger with unbelievable pain when you have Diarrhoea? The pain was so bad I have been vomiting all night and I've now come out in hives.
Theodora2016
in
Endometriosis UK
3 months ago
Any experience of having pulsed radio frequency nerve destruction on the pudendal nerve?
HiI am scheduled to have Pulsed Radio Frequency denervation on my Pudendal Nerve in a months time. Really nervous about whether I should get it done as I've not heard much good feedback regarding the results. Anyone out there who's had it? I'm hearing mixed reviews from 2 different neurologists. One
HiI am scheduled to have Pulsed Radio Frequency denervation on my Pudendal Nerve in a months time. Really nervous about whether I should get it done as I've not heard much good feedback regarding the results. Anyone out there who's had it? I'm hearing mixed reviews from 2 different neurologists. One
Jobie18
in
Pelvic Pain Support Network
9 months ago
groin pain with IBs
hello does anyone else experience left sided groin pain with their IBS? constipation mainly also get sciatica symptoms with the groin pain when get an attack. Pain also left side of belly button starts here then get the groin pain a few days later like a horrid stitch Makes me feel really anxious
hello does anyone else experience left sided groin pain with their IBS? constipation mainly also get sciatica symptoms with the groin pain when get an attack. Pain also left side of belly button starts here then get the groin pain a few days later like a horrid stitch Makes me feel really anxious
TINKER23
in
IBS Network
3 months ago
Question about Celiac or NCGS...
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
Suffering_sunny
in
Gluten Free Guerrillas
3 months ago
Alendronic Acid
Been on A A for just over a year for improving bone met, now recently found that effects of acid and build up are giving me gas and stomach reactions that bowel are very loose others found this problem been Dr and oncology over matter
Been on A A for just over a year for improving bone met, now recently found that effects of acid and build up are giving me gas and stomach reactions that bowel are very loose others found this problem been Dr and oncology over matter
Chrisbaird
in
Advanced Prostate Cancer
3 months ago
hypothyroidism and stomach ulcers
I've just been diagnosed with stomach ulcers. They've sent a prescription through for a heavy dose of Proton pump inhibitors. But I have questions. For example, how do they know its excess stomach acid causing the ulcers? I thought or perhaps read somewhere that when you're hypothyroid (even if euthyroid
I've just been diagnosed with stomach ulcers. They've sent a prescription through for a heavy dose of Proton pump inhibitors. But I have questions. For example, how do they know its excess stomach acid causing the ulcers? I thought or perhaps read somewhere that when you're hypothyroid (even if euthyroid
ShatteredofLee
in
Thyroid UK
3 months ago
Stomach issues
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
M0wnt
in
LUPUS UK
3 months ago
Warfarin to Edoxaban
I have for the last few months been prescribed 60mg Edoxaban after 10 years of taking Warfarin after a DVT and PE. This due to my GP surgery merger with a bigger practice. Warfarin was my only option in 2013 before these new drugs became available. I'm told it's safer and no INR blood tests. I'd like
I have for the last few months been prescribed 60mg Edoxaban after 10 years of taking Warfarin after a DVT and PE. This due to my GP surgery merger with a bigger practice. Warfarin was my only option in 2013 before these new drugs became available. I'm told it's safer and no INR blood tests. I'd like
jackdaw50
in
Anticoagulation Support
9 months ago
Methotrexate and hair thinning
Hi everyone. I’ve been on methotrexate for almost exactly 2 years and I can’t work out if my hair is currently thinning, it was fine before but these past few weeks it seems like more is coming out when I brush it. I don’t know if I’m imagining it or if it’s just going through it’s normal resting phase
Hi everyone. I’ve been on methotrexate for almost exactly 2 years and I can’t work out if my hair is currently thinning, it was fine before but these past few weeks it seems like more is coming out when I brush it. I don’t know if I’m imagining it or if it’s just going through it’s normal resting phase
Central_Perk
in
NRAS
9 months ago
IBS meds not working....
Hello, I have been struggling with an IBS flare for 3 months, I'm taking Alverine and Peppermint capsules. My GP has checked for celiac disease which thankfully was normal, had my poo checked twice, bloods are fine except for inflammation markers slightly raised, checked my thyroid but it's fine as
Hello, I have been struggling with an IBS flare for 3 months, I'm taking Alverine and Peppermint capsules. My GP has checked for celiac disease which thankfully was normal, had my poo checked twice, bloods are fine except for inflammation markers slightly raised, checked my thyroid but it's fine as
Kooks
in
IBS Network
7 months ago
Bad dumping incident?
Hi there. Just thought I’d reach out to see if anyone can relate to my situation. I’m over 5 months from three way Oesophageal Surgery. I was doing really well with eating and fitness levels. Then last Friday (after a Chinese takeaway which didn’t consist of more than some noodles and a bit of chicken
Hi there. Just thought I’d reach out to see if anyone can relate to my situation. I’m over 5 months from three way Oesophageal Surgery. I was doing really well with eating and fitness levels. Then last Friday (after a Chinese takeaway which didn’t consist of more than some noodles and a bit of chicken
Julieanne60
in
Oesophageal & Gastric Cancer
3 months ago
still having symptoms
Hi I posted a while ago about my son who is 23 had a fit positive test off 200 and loose bowel movements up to 6 times a day.He had a colonoscopy, it was clear, biopsies was clear too so they discharged him. He is still having symptoms and lots of blood , he also keeps getting really big ulcers in
Hi I posted a while ago about my son who is 23 had a fit positive test off 200 and loose bowel movements up to 6 times a day.He had a colonoscopy, it was clear, biopsies was clear too so they discharged him. He is still having symptoms and lots of blood , he also keeps getting really big ulcers in
Longboots7979
in
Colon Cancer Connected
3 months ago
Glue ear leaking
Hi,I have glue ear in my left ear, for quite a while it has been oozing a thick fluid, I have had 2 courses of antibiotics over the past 6 or 7 months, it clears up but comes back. It has started again now, I have no pain and feel fine, my hearing is much better to, is this actually an infection or
Hi,I have glue ear in my left ear, for quite a while it has been oozing a thick fluid, I have had 2 courses of antibiotics over the past 6 or 7 months, it clears up but comes back. It has started again now, I have no pain and feel fine, my hearing is much better to, is this actually an infection or
Chrissie82
in
PCD Family Support Group (UK)
9 months ago
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