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ED No More (the prequel)
I've had so many comments since my post "ED no more" that I felt I should offer more. I'm a neophyte on this site. As a matter of fact I avoid this site. I have always adopted an "ignorance is bliss" attitude towards life and my PC. My wife, on the other hand, is a nervous but adventurous individual
I've had so many comments since my post "ED no more" that I felt I should offer more. I'm a neophyte on this site. As a matter of fact I avoid this site. I have always adopted an "ignorance is bliss" attitude towards life and my PC. My wife, on the other hand, is a nervous but adventurous individual
Bangkok
in
Advanced Prostate Cancer
1 year ago
Aorto-caval lymph nodes
Has anyone had radiation treatment to the aorto-caval lymph nodes? I have mildly avid nodes there that are not responding to Lupron. My RO wants to treat the entire area, not just spot treat with Cyberknife. He seems confident he can safely treat the area.
Has anyone had radiation treatment to the aorto-caval lymph nodes? I have mildly avid nodes there that are not responding to Lupron. My RO wants to treat the entire area, not just spot treat with Cyberknife. He seems confident he can safely treat the area.
Jvaughan0
in
Advanced Prostate Cancer
1 year ago
At Last I have answers and know where I am.
I will make this post brief , as I have had more than my share. This was my last BCG - I will be seen in about 10 weeks to see it it is still working, if not I will be considered for BCG again probablt. The letter I got for a Thorax CT Scan - I have found out from who'm and why. I asked my BC nurse
I will make this post brief , as I have had more than my share. This was my last BCG - I will be seen in about 10 weeks to see it it is still working, if not I will be considered for BCG again probablt. The letter I got for a Thorax CT Scan - I have found out from who'm and why. I asked my BC nurse
Ern007
in
Lung Conditions Community Forum
2 months ago
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A Thorax CT and don't know why?
Some of you may remember some time last year or late Autum 2022. I was scedualled for BCG treatment after a struggle., but I was granted my wish and appointment made. This moring I got a letter with an appointment for a Thorax CT Scan - I was puzzled and wondered if my GP was sorting somthing. OUR
Some of you may remember some time last year or late Autum 2022. I was scedualled for BCG treatment after a struggle., but I was granted my wish and appointment made. This moring I got a letter with an appointment for a Thorax CT Scan - I was puzzled and wondered if my GP was sorting somthing. OUR
Ern007
in
Lung Conditions Community Forum
2 months ago
My Bladder Cancer Update.
As I stand now I have my LAST BCG treatment this Thursday, that will be followed in six to eight weeks with a flexy cystoscopy. I am at moment Low Grade - If my cystoscopy shows a tumour, then I will have to go in overnight to have it removed, That would not mean back to High Grade necessarily .
As I stand now I have my LAST BCG treatment this Thursday, that will be followed in six to eight weeks with a flexy cystoscopy. I am at moment Low Grade - If my cystoscopy shows a tumour, then I will have to go in overnight to have it removed, That would not mean back to High Grade necessarily .
Ern007
in
Lung Conditions Community Forum
2 months ago
8/4/23 Update questions for MO
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
1 year ago
Radium-223 + Xtandi?
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
MechD
in
Advanced Prostate Cancer
1 year ago
Fantasy Beach Garden and an Abstract Painting.
First I went to hospital today - Had BCG have two more and they it's checking with a flexy cyscoscopy about three times a year. At the moment it's clear, but can return so rest of my time, constand checking. Fantasy Beach Garden and a Floral Abstract.
First I went to hospital today - Had BCG have two more and they it's checking with a flexy cyscoscopy about three times a year. At the moment it's clear, but can return so rest of my time, constand checking. Fantasy Beach Garden and a Floral Abstract.
Ern007
in
Lung Conditions Community Forum
3 months ago
radiation decisions and second and third opinions
My dad was recently diagnosed with prostate cancer. It has metastasized to two pelvic lymph nodes and a lymph node in his back they initially called “suspicious” because it’s so small if it wasn’t for the PSMA scan it wouldn’t have been picked up at all. He got his first Lupron shot 3 weeks ago and
My dad was recently diagnosed with prostate cancer. It has metastasized to two pelvic lymph nodes and a lymph node in his back they initially called “suspicious” because it’s so small if it wasn’t for the PSMA scan it wouldn’t have been picked up at all. He got his first Lupron shot 3 weeks ago and
AppleTree43
in
Advanced Prostate Cancer
1 year ago
Two Comic Kitties in Fantasy Kitties Garden and Seven Impressionist Hydrangeas.
I did not think I would get to do a painting. been on eye drops for two weeks, to get rid of eye infection so I can have eye injection. I managed to do a painting that did not require mutch fine detail - Two almost comic type kittens in a fantasy Kittie Garden. Was a small canvas so did an easy
I did not think I would get to do a painting. been on eye drops for two weeks, to get rid of eye infection so I can have eye injection. I managed to do a painting that did not require mutch fine detail - Two almost comic type kittens in a fantasy Kittie Garden. Was a small canvas so did an easy
Ern007
in
Lung Conditions Community Forum
3 months ago
My 6 Month Lupron cost
No comment!!! 08/07/2023 Leuprolide Acetate injection Total charge $33,685.45 Discount $31,927.45 Plan rate $1,758.00 Other insurance $0.00 KP paid $0.00 Not covered $0.00 Deductible $0.00 Copay / Coinsurance $351.60 Your share $351.60
No comment!!! 08/07/2023 Leuprolide Acetate injection Total charge $33,685.45 Discount $31,927.45 Plan rate $1,758.00 Other insurance $0.00 KP paid $0.00 Not covered $0.00 Deductible $0.00 Copay / Coinsurance $351.60 Your share $351.60
Hidden
in
Advanced Prostate Cancer
1 year ago
Never get tired of annoucing I am STILL undetectable
108 bottles of Zytiga on the shelf. Got my latest PSA and blood test results. Once again, officially 8 years 9 months since November 2014 results, PSA still undetectable at <.008. Another Zero candy bar for me. (I bought a few, and been handing them out like cigars after a new birth.) I have had somewhat
108 bottles of Zytiga on the shelf. Got my latest PSA and blood test results. Once again, officially 8 years 9 months since November 2014 results, PSA still undetectable at <.008. Another Zero candy bar for me. (I bought a few, and been handing them out like cigars after a new birth.) I have had somewhat
Wings-of-Eagles
in
Advanced Prostate Cancer
1 year ago
PSA rising
Just got this report from PSMA scan. Increased size of a few mildly tracer avid aorto-caval lymphnodes. The largest of these nodes measures 0.5 cm in short axis (image 204), previously measured 0.2 cm. Meet with MO tomorrow. I am 10 years in. Prostatectomy, bed radiation, and two years ago, whole
Just got this report from PSMA scan. Increased size of a few mildly tracer avid aorto-caval lymphnodes. The largest of these nodes measures 0.5 cm in short axis (image 204), previously measured 0.2 cm. Meet with MO tomorrow. I am 10 years in. Prostatectomy, bed radiation, and two years ago, whole
Jvaughan0
in
Advanced Prostate Cancer
1 year ago
My Latest Bladder Cancer Update.
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
Ern007
in
Lung Conditions Community Forum
3 months ago
Firmagon vs Lupron vs Orgovyxx
Is there any difference in cost/effectiveness? My urologist wanted me to start hormone therapy with Firmagon, but my radiation oncologist wanted me to go on Orgovyxx instead...any thoughts? Thank you!
Is there any difference in cost/effectiveness? My urologist wanted me to start hormone therapy with Firmagon, but my radiation oncologist wanted me to go on Orgovyxx instead...any thoughts? Thank you!
SilverSeppi
in
Advanced Prostate Cancer
1 year ago
blood in urine
feel great but I detected blood in my urine what does mean … only other time was after biopsy… on lupron and xtandi just over two years and radiation to debulk prostate
feel great but I detected blood in my urine what does mean … only other time was after biopsy… on lupron and xtandi just over two years and radiation to debulk prostate
rogerandme
in
Advanced Prostate Cancer
1 year ago
Questions about ADT drugs and insurance
Will Medicare cover Lupron injections under part B as it is not self administered (as opposed to pills)? If so how much will they cover (with a supplement plan). Regarding Orgovyx, since it is a pill and not an injection will it be covered under Medicare part D drug coverage? and if so do all of the
Will Medicare cover Lupron injections under part B as it is not self administered (as opposed to pills)? If so how much will they cover (with a supplement plan). Regarding Orgovyx, since it is a pill and not an injection will it be covered under Medicare part D drug coverage? and if so do all of the
SilverSeppi
in
Advanced Prostate Cancer
1 year ago
who out there has been on Lupron and abiraterone?
who out there has been on Lupron and abiraterone? Who is the longest survivor out there in terms of not transitioning to castrate resistant. I just started treatment 6/15/23 and am trying to hit it with additional therapies as my PSA declines. Vit c. Melatonin. Ivermectin. I am going to start baking
who out there has been on Lupron and abiraterone? Who is the longest survivor out there in terms of not transitioning to castrate resistant. I just started treatment 6/15/23 and am trying to hit it with additional therapies as my PSA declines. Vit c. Melatonin. Ivermectin. I am going to start baking
Nowhereman9
in
Advanced Prostate Cancer
1 year ago
anyone suffering from frequent Nausea
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
Dannyboy48
in
Advanced Prostate Cancer
1 year ago
8/4/2023 Update
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
1 year ago
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