At Last I have answers and know where I am.

[Ern007]

I will make this post brief , as I have had more than my share.

This was my last BCG - I will be seen in about 10 weeks to see it it is still working, if not I will be considered for BCG again probablt.

The letter I got for a Thorax CT Scan - I have found out from who'm and why.

I asked my BC nurse today she she know anything about this scan. she did not but she went and checked.

Last year I had a CT Scan and specialist tolld me the anomaly on my lung had gone, and was just more scarring.

My BC Nurse told my today, they was following up what was on my lung and the CT Scan is to see if it has changed, eg got larger.

So at least I know where I am and what's happening, thanks for reading and commenting on my long posts .

[sassy59]

As you say Ern, you know where you stand now so I wish you all the best as always. Xxx🤞🏼🥰

[Ern007 in reply to sassy59]

Thank You Carole - I think we should know where we stand. So now if we get some decent weather up here, can get into the garden. Wishing you well also xxx

[Issy22]

Hopefully today was the last BCG you will have and it will continue to work.

Iam glad you found out the reason for your scan otherwise all thoughts would be going around your head. I think you have been through enough lately, its time to relax a bit xx

[Ern007 in reply to Issy22]

Thank you Issy, I really am glad, for three years most of the time was confusing to put it nicely. The nurse, my GP have really been good, iceing on the cake I can see the light xx

[helenlw7]

It’s good that you’ve had your last, and that you know why you’ve had another ct scan. Let’s hope the weather warms up so you can get out into the garden.

[Ern007 in reply to helenlw7]

Bang on there Helen, I hate uncertanty and there is no need for it, at last I know where I am. Garden, would be good with sun, ideal day, gardening even bits weeding to make it look good, and painting later on. Been bad in North West, Rain though most of Spring and now into summer. I live in hope for a warm spell..

[helenlw7 in reply to Ern007]

I like to know where I am, I don’t like all this ‘oh she might be upset if we tell how it really is!’

We’ve had a very wet spring, continuing into summer. Yesterday the air was warm even though the sky was grey. Today it’s blowing a gale and it’s freezing cold!

[Ern007 in reply to helenlw7]

Exactly For the first time sinse october 2020. I know where I am.

it has beem cold tonday, and two days ago we put the heating on, I had car heater on. Grey sky's are misreable. I am now hoping for July.

[Patk1]

I'm glad u found out.hoping yr treatment works Ern.we will all have Ln our thoughts at nx check up xxxxx

[Ern007 in reply to Patk1]

Thank you Pat - it's a crazy world sometimes. xxxx

[SharonMcKnight]

Ok Ern, then disregard my email asking about this.

[Alberta56]

Thank goodness it's checking, not a sign that they suspect something worse. Why couldn't they tell you this when they made the appointment?

[Ern007 in reply to Alberta56]

Exactly Chris, being treat like babies, not adults

[Numptybrain]

Wow, it’s so frustrating Ern, I know there are things they aren’t telling me yet I’ve told them I want to know. They just say the inflammation has caused a lot of damage and will have caused a lot more elsewhere in your body but time will tell? It’s frustrating and annoying! I’ve got scarring, lung nodules. They told me not to build my hopes up with ct scan as prednisone can be a placebo effect, it’s back to the drawing board if inflammation and fluid is still there. Why do they keep us in the dark, I know they think we are fragile and can’t handle it, but it’s the mental state of mind we struggle with guessing! Put the facts infront of of, we deal with it and move on.

Good luck and sorry for my rant Ern

Wendy xx

[Ern007 in reply to Numptybrain]

Thank you Wendy last year I had a lung scan and it showed nodules, that stopped my BCG for a while - The lung doctor wrote and told me the lung was now clear, but he had taken the shadows to the radiographer who said it was more scarring - WHAT TWADDLE, The are now testing me to see has that nodule moved. A good consultand it following it up.

So you have a lot of inflamation that has caused damage - I hope you CT Scan proves them wrong. grr sounds like my hospital chest doctors. So they say "prednisone can be a placebo" how is that? prednisone is an anti inflamation .

I really wish you well, I hope at least they tell you what or not you have. I agree give us the facts and let us deal with it,

No rant Wendy, abut rant anytime and please let us know how you get on Lost of best wishes

xx

[Numptybrain in reply to Ern007]

Thanks Ern it’s just so frustrating.

Good luck

Wendy xx

[Ern007 in reply to Numptybrain]

Don't I know Wendy. You take care , A miracle sun is out, sending sunbeams to you, 😀 xx

[sunshineday]

Morning Ern, glad you've had what hopefully is your last BCG and the way ahead is a bit clearer. Weather in Dorset has been really awful, it's more like November than June. Wet and miserable. If anyone else talks about planet warming I shall scream cos it doesn't seem to be happening down here! Take care Ern and 🤞for some warmth and sunshine xxJoy

[Ern007 in reply to sunshineday]

Thank you Joy - The weather oh I agree , it's the global warming that's causing us to freeze in summer. You also take care and will send to some sunshine when it arrives xx

[Bingo88]

Good morning Ern007. Well it's putting your mind at rest a little knowing what's what. Its a pity that they don't tell you sooner and safe all the worrying. Take care. Brian

[Ern007 in reply to Bingo88]

Thank you Brian, there mind changing at first was anightmare - now at last I can see where I am going. Lung test being sorted, and a 12 week break before my flexcy cystosopy. What I would have done with out Ann? been a real brick,

[Izb1]

Great news Ern, like you say everything is now clear for you . Now if we could buck up this weather I am sure we would all feel a little better x

[Ern007 in reply to Izb1]

Thank you now Izb1 - Spaot on I have now a clear plan, which I am fine with. Oh I hope weather bucks up, and cardening in one form ofr another was a 25 year part of my working life, I could not have asked for more. x

[watergazer]

Wishing you the best x

[Ern007 in reply to watergazer]

Thank you watergazer I not am getting a scan to follow up on a poor doctor last year, that is good. I not am clear of any BC test for 10 weeks, a clear plan. that all I ever wanted x

[Nula2]

Hi Ern, we never mind if your messages are long. You have a lot going on to write about. We are not obliged to read them. We do so because we are interested and concerned for you and we all wish you the best. Write as many messages as it takes to keep us informed. ❤️😊xxxx

[Ern007 in reply to Nula2]

Thank you Nula, I know more now than I have ever known sinse 2020, I am happy enough with that. I know I have some test, will cross that bridge when it comes.. I have a feeling the san will have a good outcome.xxx

[Oshgosh]

I’m hoping things turn out ok for you,xx

[Ern007 in reply to Oshgosh]

Thank you - The thing is I have never know, and told so much rubbish. I nown know why I am having a scan of that sort, I also not on a clear run with BCg and know what I will be having to do next. I am happy with that. xx

[MoyB]

I always feel better when I know what's going on and why, so I bet you do too!

Personally, I can cope with most things except for uncertainty or general confusion, and I guess most of us are the same.

Thank goodness you've found some people who talk sense at last!

All the best,

xx Moy

[Ern007 in reply to MoyB]

Thank you Moy - and -Exactly. I can cope if I know why. I have found uncertanty and confussion leads to worry. At least now I know the road. xx