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Some good news yesterday
I’m 66, dealing with PCa for 6 years, have had surgery and radiation 2x. Things were quiet for a year and a half. After a rapid rise in psa this spring, the docs at Duke put me on Lupron and Xtandi. The three month check up shows t level is down to 18, psa is 0.23, a decline of 96.5%. Thank God and
I’m 66, dealing with PCa for 6 years, have had surgery and radiation 2x. Things were quiet for a year and a half. After a rapid rise in psa this spring, the docs at Duke put me on Lupron and Xtandi. The three month check up shows t level is down to 18, psa is 0.23, a decline of 96.5%. Thank God and
CousinGrandpa
in
Advanced Prostate Cancer
29 days ago
Good morning. Could anyone help? Thank you
Posting on behalf of 65_women has anyone had an operation for their elbow with rheumatoid arthritis. Did it help or not?
Posting on behalf of 65_women has anyone had an operation for their elbow with rheumatoid arthritis. Did it help or not?
Helen-NRAS
Moderator
in
NRAS
7 months ago
on exercise again
not randomized, but still a very interesting study that wants to check the relation between PSA decline and quantity of exercise per week in men with localized prostate cancer https://jamanetwork.com/journals/jamaoncology/article-abstract/2821207
not randomized, but still a very interesting study that wants to check the relation between PSA decline and quantity of exercise per week in men with localized prostate cancer https://jamanetwork.com/journals/jamaoncology/article-abstract/2821207
Maxone73
in
Advanced Prostate Cancer
29 days ago
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Cancer Turned Aggressive?
My dad has been battling prostate cancer for 15+ years . He goes to University of Chicago. He is 74. Early 2000’s- prostate removed - not clean margins. Did no further treatment 2004 - Cancer came back. Only seen on PSA test. Watched for years until PSA finally doubled. 2007-2008- went on Lupron
My dad has been battling prostate cancer for 15+ years . He goes to University of Chicago. He is 74. Early 2000’s- prostate removed - not clean margins. Did no further treatment 2004 - Cancer came back. Only seen on PSA test. Watched for years until PSA finally doubled. 2007-2008- went on Lupron
Jshaw916
in
Advanced Prostate Cancer
30 days ago
diarrhea flares ?
My dad had radiation that ended in January. Currently on Lupron. Had his last shot July 7th and his PSA was .02. He had a lot of issues post radiation, with diarrhea and gas, but that subsided and he has been good for a while. All the sudden these symptoms are happening again. When he had his last Lupron
My dad had radiation that ended in January. Currently on Lupron. Had his last shot July 7th and his PSA was .02. He had a lot of issues post radiation, with diarrhea and gas, but that subsided and he has been good for a while. All the sudden these symptoms are happening again. When he had his last Lupron
alysona828
in
Advanced Prostate Cancer
30 days ago
I’d like to trBAT a but Dr. Danmeade requires a visit to Maryland. I live in SoCal and this does not work for me at this point
Currently stage four metastatic castrate resistant with multiple failures from robotic surgery to proton, SBRT, eclipse trial, Orgovyx, Provenge, and finally one recent SBRT to hit five spots from my upper spine, ribs and hip. My PSA is still low. but starting to go up from 1.2 to currently 2.5. Dr
Currently stage four metastatic castrate resistant with multiple failures from robotic surgery to proton, SBRT, eclipse trial, Orgovyx, Provenge, and finally one recent SBRT to hit five spots from my upper spine, ribs and hip. My PSA is still low. but starting to go up from 1.2 to currently 2.5. Dr
SViking
in
Advanced Prostate Cancer
30 days ago
trelstar
hi warriors. I have been on trelstar for 8 years and was wondering if anyone else has been on it. I have been undetectable at <.006 and now my psa is rising to .014. Maybe trelstar is losing its touch. Anyway I am doing a psma tomorrow. Had a pet ct last week that didn’t light up so I know the psma probably
hi warriors. I have been on trelstar for 8 years and was wondering if anyone else has been on it. I have been undetectable at <.006 and now my psa is rising to .014. Maybe trelstar is losing its touch. Anyway I am doing a psma tomorrow. Had a pet ct last week that didn’t light up so I know the psma probably
Mikes21
in
Advanced Prostate Cancer
30 days ago
Looking for support in supporting my husband
This community has been so informative and I truly appreciate the information I have received from so many incredible people. Thank you! This is the first time I am posting to this group. In October 2023 my husband noticed more frequent use of the bathroom. He had his PSA tested in January which was
This community has been so informative and I truly appreciate the information I have received from so many incredible people. Thank you! This is the first time I am posting to this group. In October 2023 my husband noticed more frequent use of the bathroom. He had his PSA tested in January which was
Smmac15
in
Advanced Prostate Cancer
30 days ago
Is this decision right for me
I had a PSMA pet scan on 7/16/2024. The result shows a single tumor in my left lung measuring 8mm. My MO wants me to have the tumor radiated and monitor the PSA and its doubling time. A little background, I'm just short of 83 years old. I had prostatectomy in 2009, PSA undetectable until 2017. I had
I had a PSMA pet scan on 7/16/2024. The result shows a single tumor in my left lung measuring 8mm. My MO wants me to have the tumor radiated and monitor the PSA and its doubling time. A little background, I'm just short of 83 years old. I had prostatectomy in 2009, PSA undetectable until 2017. I had
old64horn
in
Advanced Prostate Cancer
1 month ago
Chemotherapy- to do or not at 82 years ?
( I made this post earlier but am doing it again in the hope that more men in their 80’s could share their experiences if they took chemotherapy. ) I am 82 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and been told soon
( I made this post earlier but am doing it again in the hope that more men in their 80’s could share their experiences if they took chemotherapy. ) I am 82 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and been told soon
Simpson80
in
Advanced Prostate Cancer
1 month ago
PSMA PET 7/17/2024 vs. Axumin PET 1/3/2024
I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, followed immediately by the report from my most recent Axumin PET run 1/3/2024. Please give me your valuable feedback. Thank you! Report from PSMA PET run 7/17/2024: PROCEDURE(S): PET/CT TUMOR (PSMA) INDICATIONS: Malignant
I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, followed immediately by the report from my most recent Axumin PET run 1/3/2024. Please give me your valuable feedback. Thank you! Report from PSMA PET run 7/17/2024: PROCEDURE(S): PET/CT TUMOR (PSMA) INDICATIONS: Malignant
dhccpa
in
Advanced Prostate Cancer
1 month ago
Just and update
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Hawk56
in
Advanced Prostate Cancer
1 month ago
3-months medical check
Very happy with results, PSA undetectable and other blood values good, too. No medication since orchiectomy in 02/2024. Still exercising daily and continuing with plant based diet plus some fish. For more details pls see bio. Will invite my wife for dinner tonight.
Very happy with results, PSA undetectable and other blood values good, too. No medication since orchiectomy in 02/2024. Still exercising daily and continuing with plant based diet plus some fish. For more details pls see bio. Will invite my wife for dinner tonight.
Nusch
in
Advanced Prostate Cancer
1 month ago
CRPC and low dose Estradiol patch
Can anyone tell me if being Crpc and doing low dose estradiol have a negative effect on psa
Can anyone tell me if being Crpc and doing low dose estradiol have a negative effect on psa
Knittingque
in
Advanced Prostate Cancer
1 month ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
1 month ago
Help deciding on treatment
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
MrGreenJeans
in
Prostate Cancer Network
1 month ago
My MSK Precise / SBRT Journey -- 2.5 Years Post-Treatment
I completed SBRT treatment for Gleason 7 (3+4) PCa at MSKCC in NYC in November 2021. My PSA was 8.7 right before the treatment. My doctor: Dr. Michael Zelefsky. Since that time: -- My PSA as of May 2024 is 1.32. -- I've had no real urinary issues since treatment except for some bouts of urgency especially
I completed SBRT treatment for Gleason 7 (3+4) PCa at MSKCC in NYC in November 2021. My PSA was 8.7 right before the treatment. My doctor: Dr. Michael Zelefsky. Since that time: -- My PSA as of May 2024 is 1.32. -- I've had no real urinary issues since treatment except for some bouts of urgency especially
Hope4Happiness
in
Prostate Cancer Network
1 month ago
Hormone therapy for the older generation
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
tunybgur
in
Advanced Prostate Cancer
1 month ago
Question
Was diagnosed with stage 4 metastatic prostate cancer with several mets to the bones and a Gleason score of 10. This was in January 2023. I have been on darolutamide and relugolix since then and also 6 rounds of docetaxol. Everything was good until recently with an increase in PSA from non detectable
Was diagnosed with stage 4 metastatic prostate cancer with several mets to the bones and a Gleason score of 10. This was in January 2023. I have been on darolutamide and relugolix since then and also 6 rounds of docetaxol. Everything was good until recently with an increase in PSA from non detectable
lovepockets
in
Advanced Prostate Cancer
1 month ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
1 month ago
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