Search
Search
About
Log in
Join
Experiences with
Non-small-cell lung carcinoma
Posts
Communities
2,780 public posts
Filter results
I feel sad and alone
Hello, It has been about a year since I posted here for the first time and this is the second time. I have COPD from the complication called GVHD from my stem cell transplant for my lukimia. It has been getting worse and I was in hospital a few times last year and twice already this year. Last year I
Hello, It has been about a year since I posted here for the first time and this is the second time. I have COPD from the complication called GVHD from my stem cell transplant for my lukimia. It has been getting worse and I was in hospital a few times last year and twice already this year. Last year I
mnonchan
in
Lung Conditions Community Forum
6 years ago
Dovetailing
Wow getting red hair to warn bad news to stay away is certainly working. Saw osteo surgeon again today regarding the initial hip pain and looked at all scan and MRI results. Seeing as I had a bone marrow transplant and radiation 27 years ago, which made me post menopausal, I have really good bones for
Wow getting red hair to warn bad news to stay away is certainly working. Saw osteo surgeon again today regarding the initial hip pain and looked at all scan and MRI results. Seeing as I had a bone marrow transplant and radiation 27 years ago, which made me post menopausal, I have really good bones for
Angiejnz
in
PMRGCAuk
6 years ago
Breakthrough therapy saves Mike's life - reports of innovative precision medicines for cancers from ASCO in Daily Mail
One man to have already benefited from the advances in precision medicine is leukaemia sufferer Mike Brandon. The 34-year-old from Bristol was desperately ill when he underwent pioneering CAR T therapy in the US city of Philadelphia in 2016. Mike was suffering from chronic lymphocytic leukaemia (
One man to have already benefited from the advances in precision medicine is leukaemia sufferer Mike Brandon. The 34-year-old from Bristol was desperately ill when he underwent pioneering CAR T therapy in the US city of Philadelphia in 2016. Mike was suffering from chronic lymphocytic leukaemia (
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Mum's stage 4 diagnosis
Last Monday my mum was diagnosed with a non-specific stage 4 lung cancer. I say non-specific as the consultant does not want to put her through a bronchoscopy as he has suggested that whilst it will reveal the type of cancer she has, it won't ultimately change anything in terms of treatment. We've been
Last Monday my mum was diagnosed with a non-specific stage 4 lung cancer. I say non-specific as the consultant does not want to put her through a bronchoscopy as he has suggested that whilst it will reveal the type of cancer she has, it won't ultimately change anything in terms of treatment. We've been
Polly2018
in
The Roy Castle Lung Cancer Foundation
6 years ago
Yay good bones
Because I had a bone marrow transplant in the 90's I have a density scan every 5 years and just had the latest done after being diagnosed with pmr. My back with compressed vertebrae and failed fusions has improved, with t score going from .7 to .8 and z score going from -0.1to 0.2, forearm score going
Because I had a bone marrow transplant in the 90's I have a density scan every 5 years and just had the latest done after being diagnosed with pmr. My back with compressed vertebrae and failed fusions has improved, with t score going from .7 to .8 and z score going from -0.1to 0.2, forearm score going
Angiejnz
in
PMRGCAuk
6 years ago
Pred tapering starts tomorrow
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow. The doctor wants me to consider Tocilizumab weekly infusions. I have read the study and understand the side effects, but I would like to hear some of your thoughts and/or experiences
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow. The doctor wants me to consider Tocilizumab weekly infusions. I have read the study and understand the side effects, but I would like to hear some of your thoughts and/or experiences
kay7954
in
PMRGCAuk
6 years ago
UK Lung Transplant List
Good afternoon everyone, does anyone know or can anyone help? Is there such a thing as the waiting list and the active waiting lis? That you are put on if you are fortunate enough to be given the chance? If anyone knows please let me know. Kind regards Joe
Good afternoon everyone, does anyone know or can anyone help? Is there such a thing as the waiting list and the active waiting lis? That you are put on if you are fortunate enough to be given the chance? If anyone knows please let me know. Kind regards Joe
Joseph260268
in
Lung Conditions Community Forum
6 years ago
Foods to eat to support the fight with lung cancer and brain mets, which is also suitable during chemotherapy
Hi All My lovely step dad has suddenly become unwell and diagnosed with squamous cell lung cancer and brain mets. We are devastated. My dad dies 3 years ago of lung cancer and I have just ran the London marathon for Roy Castle. this has shaken us. We want to do all we can. can you recommend and foods
Hi All My lovely step dad has suddenly become unwell and diagnosed with squamous cell lung cancer and brain mets. We are devastated. My dad dies 3 years ago of lung cancer and I have just ran the London marathon for Roy Castle. this has shaken us. We want to do all we can. can you recommend and foods
sarah_budden
in
The Roy Castle Lung Cancer Foundation
6 years ago
Eejit!!!!
Well, I guess there's a first time for everything... but feel I like a right idiot!!! It was 1:30 this afternoon, before I realised, I had forgotten to take my Prednisolone! I wondered why I felt weird and sluggish, just off... it was like I was going in slow motion and couldn't get going. Not
Well, I guess there's a first time for everything... but feel I like a right idiot!!! It was 1:30 this afternoon, before I realised, I had forgotten to take my Prednisolone! I wondered why I felt weird and sluggish, just off... it was like I was going in slow motion and couldn't get going. Not
Hidden
in
PMRGCAuk
6 years ago
What if venetoclax and/or ibritinib stops working?
Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor prognossis. I have had FCR when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group
Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor prognossis. I have had FCR when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group
JanAmsterdam
in
CLL Support
6 years ago
Pulmonary hypertension
Good afternoon all, After my last visit to Wythenshawe Hospital in Manchester UK. I found out that I am also suffering with pulmonary hypertension on the right side of my heart, I am currently trying to get on the Lung Transplant List. This was found as part of my 3 day assessment. I currently have
Good afternoon all, After my last visit to Wythenshawe Hospital in Manchester UK. I found out that I am also suffering with pulmonary hypertension on the right side of my heart, I am currently trying to get on the Lung Transplant List. This was found as part of my 3 day assessment. I currently have
Joseph260268
in
Lung Conditions Community Forum
6 years ago
Just Because
Well seen doctor AND been for X-ray re cubital tunnel syndrome I surspect am suffering from. Doc did few test and is organising some electric conductive nerves test. But did say if I suffer prolonged numbness I need to go AE as mater of emergency 🚨 But I can’t understand how can make you feel unwell
Well seen doctor AND been for X-ray re cubital tunnel syndrome I surspect am suffering from. Doc did few test and is organising some electric conductive nerves test. But did say if I suffer prolonged numbness I need to go AE as mater of emergency 🚨 But I can’t understand how can make you feel unwell
Hidden
in
Lung Conditions Community Forum
6 years ago
Lumber puncture
So today a neurologist came in at 11:00. Did a lumber puncture right in the room. Now it’s a waiting game. Which I hate. Gave me gababapentin. For headache. I only had 2 doses and I can’t tell if it’s working. Or how long it takes to kick in. I’m hoping to go home tomorrow. But my right leg is bothering
So today a neurologist came in at 11:00. Did a lumber puncture right in the room. Now it’s a waiting game. Which I hate. Gave me gababapentin. For headache. I only had 2 doses and I can’t tell if it’s working. Or how long it takes to kick in. I’m hoping to go home tomorrow. But my right leg is bothering
Hali12
in
PMRGCAuk
6 years ago
So confusing continued
Long talk with GP today and getting a better understanding of his reasoning I have pmr...... amongst other things. I had a large shwanoma removed from my spine as well as a second attempt at a 3 level fusion, which still isn't fused. I get two different pain collections from these. Layer over leukemia
Long talk with GP today and getting a better understanding of his reasoning I have pmr...... amongst other things. I had a large shwanoma removed from my spine as well as a second attempt at a 3 level fusion, which still isn't fused. I get two different pain collections from these. Layer over leukemia
Angiejnz
in
PMRGCAuk
6 years ago
Who the Hell is Ali ibn Isa?
He may be the guy who documented the very first written account of a TAB (Temporal Artery Biopsy) procedure; sometime between 940 to 1010 A.D!!! Go Ali! Another very technical (and to me, the layperson) mind boggling editorial about recent advances in giant cell arteritis and impacts to how the disease
He may be the guy who documented the very first written account of a TAB (Temporal Artery Biopsy) procedure; sometime between 940 to 1010 A.D!!! Go Ali! Another very technical (and to me, the layperson) mind boggling editorial about recent advances in giant cell arteritis and impacts to how the disease
Hidden
in
PMRGCAuk
6 years ago
Managing the Complications of Chronic Lymphocytic Leukemia (CLL) Online Program by The CancerCare Education Department (USA)
We appreciate your participation in Managing the Complications of Chronic Lymphocytic Leukemia (CLL), which took place on May 17. We hope you found this workshop informative and look forward to your feedback. If you were not able to attend this workshop, it is available on telephone replay 24 hours a
We appreciate your participation in Managing the Complications of Chronic Lymphocytic Leukemia (CLL), which took place on May 17. We hope you found this workshop informative and look forward to your feedback. If you were not able to attend this workshop, it is available on telephone replay 24 hours a
lankisterguy
Volunteer
in
CLL Support
6 years ago
Male hypo's support and advice
Hello everyone. I'm 41 male in the United States. I had aplastic anemia and a follow-up bone marrow transplant in 1998. The complications are GVH of the gut, low thyroid, and skin vitiligo. 200 mcg levo. Blood tests in April are the following Vit D 25, D3 19mg/dl Vit D D2 6mg D 25mg Folate 7.8 ng/ml
Hello everyone. I'm 41 male in the United States. I had aplastic anemia and a follow-up bone marrow transplant in 1998. The complications are GVH of the gut, low thyroid, and skin vitiligo. 200 mcg levo. Blood tests in April are the following Vit D 25, D3 19mg/dl Vit D D2 6mg D 25mg Folate 7.8 ng/ml
Jeffreyt
in
Thyroid UK
6 years ago
Immunotherapy after 4 months hasn’t worked any suggestions other than more Chemotherapy?
Please see my previous post. Thank you
Please see my previous post. Thank you
ParchWoody
in
The Roy Castle Lung Cancer Foundation
6 years ago
Am I in crisis?
I have been suffering from occasional foot swelling and severe pain, for about 4-5yrs. It has recently become more frequent and more painful. Body is sore and always tired. However... I was told by doctor as a teen I have the sickle trait. My mother says I have sickle cell. Can trait become actual sickle
I have been suffering from occasional foot swelling and severe pain, for about 4-5yrs. It has recently become more frequent and more painful. Body is sore and always tired. However... I was told by doctor as a teen I have the sickle trait. My mother says I have sickle cell. Can trait become actual sickle
SarahXo
in
Sickle Cell Society
6 years ago
Stage 4 lung cancer
Hi Everyone! I'm on here on behalf of my partner, Jim, age 71. He was diagnosed with stage 4 lung cancer in January of this year and has been referred for chemotherapy but has heard a lot of bad things about it. He has stopped smoking and subtituted cigarettes with 10% CBD Vape which he uses frequently
Hi Everyone! I'm on here on behalf of my partner, Jim, age 71. He was diagnosed with stage 4 lung cancer in January of this year and has been referred for chemotherapy but has heard a lot of bad things about it. He has stopped smoking and subtituted cigarettes with 10% CBD Vape which he uses frequently
Wolfette1956
in
Lung Cancer Support
6 years ago
1
...
70
71
72
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
831 results
The Roy Castle Lung Cancer Foundation
498 results
Lung Cancer Support
363 results
View top 10 communities
Sort by
Most Relevant
Newest