Stage 4 lung cancer

[Wolfette1956]

Hi Everyone!

I'm on here on behalf of my partner, Jim, age 71.

He was diagnosed with stage 4 lung cancer in January of this year and has been referred for chemotherapy but has heard a lot of bad things about it.

He has stopped smoking and subtituted cigarettes with 10% CBD Vape which he uses frequently along with 15% CBD in oral form. Since he started using it his overall health has improved and he eats well. His disposition is also now much calmer.

He asked for a further x-ray and scan recently. The x-ray showed that the cancer had increased slightly - roughly the size of a tennis ball in his right lung and metastasis to the right lung. He is waiting for the results of his scan and hoping that the CBD will have at least reduced the metastasis if not the primary tumour.

Does anyone else have any advice on CBD Vape strength levels available in the UK?

You can read more of his story, and also his mother's, on my blog at thechrissiefullerdaily.blog...

Thanks - looking forward to hearing from some of you!

[judg69]

Hi Wolftte, best advice to you an Jim is to talk things through with Jim's oncologist. Seems to me that you both are treating Jim's very serious cancer as not being imminently life-theatening and will be in for a serious wake-up call very soon. Please meet with his Doctor and follow his best advice, Period. I know this is blunt, but so be it. Jim needs best medical treatment, not smoking cod and wishing the cancer away. Best Wishes, judg69.

[Wolfette1956 in reply to judg69]

Hi there. Sorry, I didn't make it clear - Jim's oncologist is very much involved and has recommended chemo to start asap. He IS going to start with the chemo shortly but we want to do everything we can to mitigate the side-effects. His oncologist has agreed that CBD WILL help with this. Hence my request for further information of CBD strength levels available in the UK.

Thanks again,

Chrissie

[Vekim2018 in reply to judg69]

Can see why u chose the moniker y did ..maybe Jim is doing what he wants to do ..maybe not everyone thinks the dr is god, his will be done. perhaps chemo is better than it used to be but it's til an individual's choice - not yours.. as for "wishing the cancer away" isn't that what every single one of you doing chemo is doing? Our did you get a guarantee with your treatment? .. didn't think so .. judg69 I hope you live a long and prosperous life but one day you may find your own self in a serious wake - up call .. geez ppl .. Wolfie, the dosage varies but the one thing I've read is you can't be hurt by too much .. is the oral CBD in pill or drops? Is it CBD Oil or Tincture?Recommended for drops is 1 for every 10 lbs but then again, nothing set in stone, it's too new. I understand the Oil form has a higher CBD content than Tincture and it sounds like Tim is in an advanced stage with the metastasis (SP) moving right along. If using drops try 50mgs in the AM 50 at night see if Tim can notice a difference .. read, research, ask questions .. pro-alternative treatment info can be scandalous so be careful and try to validate everything .. fight the good fight however you like - just fight ..

[FtB_Peggy]

Hi Wolfette, I have to agree with judg69. this is a serious medical situation that needs treatment based on solid science. Time is of the essence for Jim. Please have a very sincere talk with your oncologist so you have all the facts when making treatment decisions.

[Wolfette1956 in reply to FtB_Peggy]

Thanks Peggy. Please see my previous reply. We are most certainly aware of the seriousness of his condition, but we personally know of many cancer sufferers who have not died from the cancer, but from the complications of chemotherapy. This is why we're exploring all options.

[FtB_Peggy]

Wolfette, thank you for the explanation - that information puts my mind at ease. Please keep us updated, and welcome to our community!

[judg69]

Hi again Wolfette, very relieved that Jim will be getting the requisite chemotherapy. Please keep me posted as to any side effects, as I most probably can provide some first hand advice. Best Wishes, judg69

[Wolfette1956 in reply to judg69]

Thanks. Will do.

[Ncpoet]

Hi Wolfette, I am 71 and was diagnosed with stage 4 non small cell adenocarcinoma in 2013. I did chemotherapy, and targeted drugs for 2-1/2 years. No surgery, no lobectomy. My cancer was in lung, outside the lung, on the chest wall and a lymph node. Been in remission since 2016.

Serious disease means serious treatment. I won’t lie. There will be side effects. I suffered through them because I kept my eye on the prize-to be a survivor. If Jim truly wants to live, he needs to accept getting there is not going to be easy.

Jim, you just have to stay positive, surround yourself with supportive and knowledgeable people, have faith and hang onto hope. Try to find things to do that take away stress and fill your life with laughter. I saw 4 family members succomb to lung cancer and I decided I was going to be different. I was a non-smoker and I know nothing about vapes but I can’t see how this would have any effect on getting rid of cancer. You have to walk the walk.

All the best,

Judy

[Wolfette1956 in reply to Ncpoet]

Thank you Judy.

[Denzie Moderator Volunteer]

You wrote “The x-ray showed that the cancer had increased slightly - ”. Of course the CT is the idefining imaging tool here because X-rays are not as sensitive and often miss cancerous lesions that are small. Personally I would want to get started on that chemo soon. Has he received the results of his genetic marker testing yet? Also here in the US they test for PDL1 expression. Knowing the results of these will determine treatment type- he might require something other than chemo.

CBDs are useful as an anti-nausea med and appetite stimulant as you’ve discovered. To date, there have been no studies or clinical trials that established what the most effective dosage might be. So how much at what dosage is trial and error. Doctors here have told my acquaintances who use CBDs to talk to the techs (sales people) to find the optimal dosage. Since he’s eating better you are probably at the optimum dosage and he should stick with that. Between the improved diet and having given up tobacco I would expect he would feel better over all. And that will work in his favor doing chemo.

Sending hope that they find he has a targetable mutation and that he doesn’t require chemo. That said, if they order one of the standard Chemo treatments let us know what it is and we can help you with side effects management. There are new medications that help prevent Chemo induced nausea and chemo is not as brutal as it use to be. Also, please can you tell us what type of lung cancer he has?

[Wolfette1956]

Hi. It's a Adenosarcoma. Oncologist said the chemo won't cause him to lose his hair as it is milder on the system. I don't know anything about genetic markers. Guess we need to ask more questions!

[anrean in reply to Wolfette1956]

Hi All the advice above is very good! I write down the questions and give the list to my oncologist at every visit, that way I don't forget to ask an important question. Then I ask for explanations over and over again until I fully understand what is happening. Often I record the visit so that I can go over it later, when I am not so overwhelmed. This helps a great deal in understanding. Knowing exactly what is happening can help you both find better ways to get through the chemo. We are all here when you need us!

Lauri-Anne

[Wolfette1956 in reply to anrean]

Great advice. Many thanks.