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Non-small-cell lung carcinoma
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CALR Type 1 & 2 Have Contrasting OS Outcomes
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
socrates_8
in
MPN Voice
6 years ago
Getting back up and running
Earlier this month I braved my first run since my pneumothorax back in January. Unsurprisingly it was considerably slower and more difficult than immediately prior to the collapse but it felt great to be back out there again. Psychologically it's a huge lift as it's a sign that I'm getting stronger
Earlier this month I braved my first run since my pneumothorax back in January. Unsurprisingly it was considerably slower and more difficult than immediately prior to the collapse but it felt great to be back out there again. Psychologically it's a huge lift as it's a sign that I'm getting stronger
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 years ago
Just been to see my consultant.
Just been to see my respritory consultant, he asked me about having a lung transplant, this was a surprise as I didn't think I would ever be offered one. I will have to go to Newcastle for tests, I'm not worried. I know it's not gaurnteed be the offer is there. I'm also being assessed for home oxygen
Just been to see my respritory consultant, he asked me about having a lung transplant, this was a surprise as I didn't think I would ever be offered one. I will have to go to Newcastle for tests, I'm not worried. I know it's not gaurnteed be the offer is there. I'm also being assessed for home oxygen
Damon1864
Volunteer
in
Lung Conditions Community Forum
6 years ago
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Report on the 2018 Lung Cancer Leadership Conference
“Lung Cancer Leadership Conference” - that is an intriguing title for a conference. Free to Breathe has held this conference for several years. The event was not offered in 2017, as Free to Breathe and the Lung Cancer Research Foundation (LCRF) merged, but it was back this year, and I was invited to
“Lung Cancer Leadership Conference” - that is an intriguing title for a conference. Free to Breathe has held this conference for several years. The event was not offered in 2017, as Free to Breathe and the Lung Cancer Research Foundation (LCRF) merged, but it was back this year, and I was invited to
scifiknitter
Blogger
in
Lung Cancer Support
6 years ago
ADVISE ON HOW TO STOP STOMACH PAIN IN MY 5 YR SICKLE CELL CHILD
My boy is in great stomach pain.what can i do to have him relieved since its late here and i cant find there sickle cell clinic open.any prescriptions.i will be glad
My boy is in great stomach pain.what can i do to have him relieved since its late here and i cant find there sickle cell clinic open.any prescriptions.i will be glad
mosesmale
in
Sickle Cell Society
6 years ago
The History of BMT
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
MFBMT2011
in
MPN Voice
6 years ago
Myelofibrosis & Yransplant Symposium
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
MFBMT2011
in
MPN Voice
6 years ago
Possibility of secondary mutation ?
Hi my sister starts Iressa this month a supply of 15 pills for now. Just curious if this medication to be taken indefinitely even if the tumor shrink and gone. What is the possibility of secondary mutation ( she is EGFR positive with Exon 19 deletion )
Hi my sister starts Iressa this month a supply of 15 pills for now. Just curious if this medication to be taken indefinitely even if the tumor shrink and gone. What is the possibility of secondary mutation ( she is EGFR positive with Exon 19 deletion )
CCheng8346
in
The Roy Castle Lung Cancer Foundation
6 years ago
Shocked
My dear husband was diagnosed with lung cancer stage 4 today , I cannot breath , it was so shocking to both of us , he never smoked , no even a drinker , healthy eater . He started his HVAC company last year and has 5 workers . We don’t know what to do , I don’t know if is he going to manage his company
My dear husband was diagnosed with lung cancer stage 4 today , I cannot breath , it was so shocking to both of us , he never smoked , no even a drinker , healthy eater . He started his HVAC company last year and has 5 workers . We don’t know what to do , I don’t know if is he going to manage his company
Parisaeshg
in
Lung Cancer Support
6 years ago
Strength in numbers
A couple of weeks ago I visited the BLF Direct Helpline team up in Liverpool as part of my induction training after joining the BLF in December. I was enormously impressed by everything that I saw and what struck me the most was just how passionate, friendly and hard-working the whole team are. Their
A couple of weeks ago I visited the BLF Direct Helpline team up in Liverpool as part of my induction training after joining the BLF in December. I was enormously impressed by everything that I saw and what struck me the most was just how passionate, friendly and hard-working the whole team are. Their
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 years ago
Transplant Viability
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh down. I was diagnosed last year and the amount of study into my condition by the various health care teams has been admirable. Before the disease started having a
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh down. I was diagnosed last year and the amount of study into my condition by the various health care teams has been admirable. Before the disease started having a
Laird_Mac
in
AMN EASIER
6 years ago
lung cancer.
My Husband was told last Tuesday that he had lung cancer but they said he had to have another biopsy as they did not know what type it is. they said he may need surgery but we could not get any answer from the Doctor what to what will happen next, how long will he be in hospital, how long before he is
My Husband was told last Tuesday that he had lung cancer but they said he had to have another biopsy as they did not know what type it is. they said he may need surgery but we could not get any answer from the Doctor what to what will happen next, how long will he be in hospital, how long before he is
joeyroe
in
Lung Cancer Support
6 years ago
Update on my dad, stage IV NSCLC, and Help needed
Hi everyone! It has been a whirlwind few weeks so I'm back to update on my dad and also hoping to receive a bit more advice and/or encouragement on our latest decisions. So my dad (64 YO) underwent his biopsy, and all testing finally. Official diagnosis - stage IV NSCLC adenocarcinoma. He has a 3-
Hi everyone! It has been a whirlwind few weeks so I'm back to update on my dad and also hoping to receive a bit more advice and/or encouragement on our latest decisions. So my dad (64 YO) underwent his biopsy, and all testing finally. Official diagnosis - stage IV NSCLC adenocarcinoma. He has a 3-
Lisam81
in
Lung Cancer Support
6 years ago
A picture with a moan
Aria is back in the garden, a sign of spring and better days to come! Have you been watching the Hospital documentary on BBC2? Awful to see how they must juggle with beds and cancellations, such a waste of human life. When you think the NHS has made an agreement with a Calais hospital because hip and
Aria is back in the garden, a sign of spring and better days to come! Have you been watching the Hospital documentary on BBC2? Awful to see how they must juggle with beds and cancellations, such a waste of human life. When you think the NHS has made an agreement with a Calais hospital because hip and
Hidden
in
Lung Conditions Community Forum
6 years ago
Stem cell transplant?
Hi everyone, am glad to join this society of inspiring and strong people. I have been reading a lot of posts on here but no one seems to be talking about the only possible cure for this disease. So has anyone ever thought of having a transplant, especially for the little kids?
Hi everyone, am glad to join this society of inspiring and strong people. I have been reading a lot of posts on here but no one seems to be talking about the only possible cure for this disease. So has anyone ever thought of having a transplant, especially for the little kids?
Bellamie09
in
Sickle Cell Society
6 years ago
Hello from North Carolina USA
As of today, I have been officially diagnosed with ET following the results of my BMB and bloodwork. My name is Pam and I am a 62 year old woman who transplanted from Maine to North Carolina about two years ago -the weather is surely better here! My PCP originally suspected a problem when my platelets
As of today, I have been officially diagnosed with ET following the results of my BMB and bloodwork. My name is Pam and I am a 62 year old woman who transplanted from Maine to North Carolina about two years ago -the weather is surely better here! My PCP originally suspected a problem when my platelets
PamelaNC
in
MPN Voice
6 years ago
Sickle cell trait but leg pains
My daughter ( she’s 8) has sickle cell trait, never really has any problems but recently she complaining of leg and feet pain, she says it just comes and goes sometimes when she’s just walking? Could this be due to the sickled cells?
My daughter ( she’s 8) has sickle cell trait, never really has any problems but recently she complaining of leg and feet pain, she says it just comes and goes sometimes when she’s just walking? Could this be due to the sickled cells?
Staceyg
in
Sickle Cell Society
6 years ago
How do you know that you are in remission?
Hi, I had a stem cell transplant in feb 2016 which has been successful although I did suffer from very severe gut gvhd and to some extent skin gvhd which left me hospitalised at Kings for 5 months. I’ve been out of hospital for just over a year now and have been receiving chemo as a preventative measure
Hi, I had a stem cell transplant in feb 2016 which has been successful although I did suffer from very severe gut gvhd and to some extent skin gvhd which left me hospitalised at Kings for 5 months. I’ve been out of hospital for just over a year now and have been receiving chemo as a preventative measure
StarryRoo
in
Leukaemia CARE
6 years ago
2018 Peer Review National Lung Cancer Audit : Lung Cancer Asbestos Mesothelioma Dementia Alzheimer’s.
Getting a SNIFF of something quite not right. Haveing looked into my dad’s so called lung cancer nodule I surspect is mesothelioma BUT as he as Alzheimer’s Dementia oncologist are trying to pull fast one with NONE clinical diagnosis of asbestos mesothelioma. Thought I would share pathway my dad is at
Getting a SNIFF of something quite not right. Haveing looked into my dad’s so called lung cancer nodule I surspect is mesothelioma BUT as he as Alzheimer’s Dementia oncologist are trying to pull fast one with NONE clinical diagnosis of asbestos mesothelioma. Thought I would share pathway my dad is at
Hidden
in
The Roy Castle Lung Cancer Foundation
6 years ago
2018 Peer Review National Lung Cancer Audit : Lung Cancer Asbestos Mesothelioma Dementia Alzheimer’s.
Getting a SNIFF of something quite not right. Haveing looked into my dad’s so called lung cancer nodule I surspect is mesothelioma BUT as he as Alzheimer’s Dementia oncologist are trying to pull fast one with NONE clinical diagnosis of asbestos mesothelioma. Thought I would share pathway my dad is at
Getting a SNIFF of something quite not right. Haveing looked into my dad’s so called lung cancer nodule I surspect is mesothelioma BUT as he as Alzheimer’s Dementia oncologist are trying to pull fast one with NONE clinical diagnosis of asbestos mesothelioma. Thought I would share pathway my dad is at
Hidden
in
Lung Conditions Community Forum
6 years ago
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