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Cerebellar degeneration

Anybody else being diagnosed with cerebellar degeneration following acoustic neuroma neurosurgery? Had neurosurgery in 2018 and already some 9-10 months following surgery and rehab, my balance started worsening.
Anybody else being diagnosed with cerebellar degeneration following acoustic neuroma neurosurgery? Had neurosurgery in 2018 and already some 9-10 months following surgery and rehab, my balance started worsening.
esbjorn profile image
esbjorn
in Acoustic Neuroma Support
4 months ago

Next NoSilverBullet Zoom webinar on Monday 5th of June: “Vibrotactile fingertip stimulation to ease Parkinson’s symptoms” by Dr. Peter Tass

Since 2017 he is Professor of Neurosurgery in the Department of Neurosurgery, Stanford University Medical School.
Since 2017 he is Professor of Neurosurgery in the Department of Neurosurgery, Stanford University Medical School.
Michel0220 profile image
Michel0220
in Cure Parkinson's
16 days ago

Does going to an Neurosurgery Clinic mean you have to have surgery

I am going to see an specialist next Monday and the clinic I have to go to is Neurosurgery - General Cranial does this automatically mean they are going to suggest surgery
I am going to see an specialist next Monday and the clinic I have to go to is Neurosurgery - General Cranial does this automatically mean they are going to suggest surgery
Blessed1982 profile image
Blessed1982
in Meningioma Support
8 months ago
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Scared to start prescribed Fentanyl Patch

hello,I am awaiting neurosurgery for multiple extruded discs in my lumbar and sacral spine. My pain has not been controlled on oral opiates, gabapentin, and muscle relaxers.
hello,I am awaiting neurosurgery for multiple extruded discs in my lumbar and sacral spine. My pain has not been controlled on oral opiates, gabapentin, and muscle relaxers.
Coco1115 profile image
Coco1115
in Pain Concern
2 months ago

‘World's 1st' fetal brain stem cell transplant effective in Parkinson's disease: study

The research team, led by Professor Kim Joo-pyung of Neurosurgery at CBMC, administered three different doses of cells to 15 patients accompanied by a 12-month follow-up under the age of 70.
The research team, led by Professor Kim Joo-pyung of Neurosurgery at CBMC, administered three different doses of cells to 15 patients accompanied by a 12-month follow-up under the age of 70.
Baron1 profile image
Baron1
in Cure Parkinson's
2 months ago

Headaches and sleep issues

Now I am urgently transferred to a hospital that can perform neurosurgery and I have a drain fitted to drain the blood that is merrily compressing my brain. I was discharged from care a few weeks later and am feeling much better, but it is safe to say to that life is not perfect.
Now I am urgently transferred to a hospital that can perform neurosurgery and I have a drain fitted to drain the blood that is merrily compressing my brain. I was discharged from care a few weeks later and am feeling much better, but it is safe to say to that life is not perfect.
SDH_Recovery profile image
SDH_Recovery
in Headway
2 months ago

Abiraterone plus Prednisone and 3 monthly injection failing now in 79 year old dad with mets to bone on NHS in UK.

Hi Everyone, This site has been a great comfort and source of knowledge for me. I'm travelling down a difficult road. I've had a brain tumour/brain surgery. My mother has severe dementia. My father was diagnosed with PC in 2018. He had prostate removed in 2019, but cancer had already spread outside prostate
Hi Everyone, This site has been a great comfort and source of knowledge for me. I'm travelling down a difficult road. I've had a brain tumour/brain surgery. My mother has severe dementia. My father was diagnosed with PC in 2018. He had prostate removed in 2019, but cancer had already spread outside prostate
Lemonpower profile image
Lemonpower
in Advanced Prostate Cancer
2 months ago

how many ct scans for brain surgery do you get

I’ve gotten a tbi and had to get brain surgery craniectomyfor it. It’s been a while now and I could say I feel ok but I’m curious to know the average number of ct scans given for tbi brain surgery.? anyone know?
I’ve gotten a tbi and had to get brain surgery craniectomyfor it. It’s been a while now and I could say I feel ok but I’m curious to know the average number of ct scans given for tbi brain surgery.? anyone know?
Itsliifee profile image
Itsliifee
in Headway
4 months ago

Update 7.4

Just met with my regular hematologist for a follow up. The CBC looks good, with HCT dropping a bit more to 43.0%. All the other numbers look good. We will carry on with the current plan, Besremi 150mcg and monitor labs every 8 weeks. I am very pleased that the three more doses of Besremi + a single
Just met with my regular hematologist for a follow up. The CBC looks good, with HCT dropping a bit more to 43.0%. All the other numbers look good. We will carry on with the current plan, Besremi 150mcg and monitor labs every 8 weeks. I am very pleased that the three more doses of Besremi + a single
hunter5582 profile image
hunter5582
in MPN Voice
4 months ago

Treatment Resistant Major Depressive Disorder: I am proof that there is hope.

I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
jnelson66 profile image
jnelson66
in Major Depressive Disorder (MDD) Support
4 months ago

Watch Prof Tom Foltynie on the topic of repurposing diabetes drugs for Parkinson's disease - Recording now available

. ----------- Professor Tom Foltynie is Professor of Neurology in the Department of Clinical and Movement Neurosciences, UCL Institute of Neurology and Consultant Neurologist at the National Hospital for Neurology and Neurosurgery, Queen Square, London.
. ----------- Professor Tom Foltynie is Professor of Neurology in the Department of Clinical and Movement Neurosciences, UCL Institute of Neurology and Consultant Neurologist at the National Hospital for Neurology and Neurosurgery, Queen Square, London.
Michel0220 profile image
Michel0220
in Cure Parkinson's
11 months ago

FUS PTT in Switzerland - 2 years update.

I leave here a copy of a reflextion i posted on my FB Sorry for the english, i'm not a native speaker "January 13, 2023 Exactly 2 years ago today my life changed radically. Exactly 2 years ago today I was in the city of Solothurn, in central Switzerland, undergoing an innovative surgery, in the
I leave here a copy of a reflextion i posted on my FB Sorry for the english, i'm not a native speaker "January 13, 2023 Exactly 2 years ago today my life changed radically. Exactly 2 years ago today I was in the city of Solothurn, in central Switzerland, undergoing an innovative surgery, in the
Markbit profile image
Markbit
in Cure Parkinson's
5 months ago

brain surgery

Hi there I have epilepsy and have had brain surgery anyone else been threw this. Memory got worse after this lost my job etc.
Hi there I have epilepsy and have had brain surgery anyone else been threw this. Memory got worse after this lost my job etc.
trinity68 profile image
trinity68
in Brain Aneurysm Support
5 months ago

Prof Tom Foltynie: “Does the repurposing of diabetes drugs offer hope for Parkinson’s patients?” - Wed 29th June at 7.30 pm London time

Professor Tom Foltynie is Professor of Neurology in the Department of Clinical and Movement Neurosciences, UCL Institute of Neurology and Consultant Neurologist at the National Hospital for Neurology and Neurosurgery, Queen Square, London.
Professor Tom Foltynie is Professor of Neurology in the Department of Clinical and Movement Neurosciences, UCL Institute of Neurology and Consultant Neurologist at the National Hospital for Neurology and Neurosurgery, Queen Square, London.
Michel0220 profile image
Michel0220
in Cure Parkinson's
1 year ago

Bayer’s BlueRock Therapeutics Establishes European Site For Cell Therapy Innovation on Bayer’s campus in Berlin

Viviane Tabar, Chair of the Department of Neurosurgery at Memorial Sloan Kettering Cancer Center. Additional Neurology sites were added at the University of California, Irvine, under the guidance of Dr. Claire Henchcliffe, M.D., D.Phil., F.A.A.N., F.A.N.A.
Viviane Tabar, Chair of the Department of Neurosurgery at Memorial Sloan Kettering Cancer Center. Additional Neurology sites were added at the University of California, Irvine, under the guidance of Dr. Claire Henchcliffe, M.D., D.Phil., F.A.A.N., F.A.N.A.
Hidden profile image
Hidden
in Cure Parkinson's
12 months ago

Feeling at a dead end.

2 years since my injury and I'm starting to realise the person I was isn't around anymore, and I'm not sure what to do about it. I contstantly think that as I seem OK to people I should just shut up and get on with it, people have a lot worse outcomes than me and I should just be greatful to be getting
2 years since my injury and I'm starting to realise the person I was isn't around anymore, and I'm not sure what to do about it. I contstantly think that as I seem OK to people I should just shut up and get on with it, people have a lot worse outcomes than me and I should just be greatful to be getting
Bushman1926 profile image
Bushman1926
in Headway
7 months ago

CoQ10

Hello everyone. I have today taken my first CoQ10 after being told that it's a good thing to take when suffering aches, pains, weakness. I am happy to try anything that might help. I don't know if my constant aches, pains, weakness and stiffness are down to my age, my brain surgery, my stroke...
Hello everyone. I have today taken my first CoQ10 after being told that it's a good thing to take when suffering aches, pains, weakness. I am happy to try anything that might help. I don't know if my constant aches, pains, weakness and stiffness are down to my age, my brain surgery, my stroke...
Lulu_Lollipop profile image
Lulu_Lollipop
in Brain Aneurysm Support
7 months ago

DBS Surgery #2, a personal essay

DBS Surgery #2 by Gary Turchin On Nov 12, 2020, a good eight months into the pandemic, I found myself checking in to Kaiser Hospital, Redwood City, for brain surgery. I arrived at the hospital in terrible pain. I had stopped taking my medications for Parkinson
DBS Surgery #2 by Gary Turchin On Nov 12, 2020, a good eight months into the pandemic, I found myself checking in to Kaiser Hospital, Redwood City, for brain surgery. I arrived at the hospital in terrible pain. I had stopped taking my medications for Parkinson
GaryTorch profile image
GaryTorch
in Cure Parkinson's
8 months ago

Dad has brain cancer, heart issues, and now PSA has increased. Concerned about medication complications..

Hello friends! It's been a long time since I've posted. It's hard to keep up with my dad's health on my end.. we've had so many close calls that his prostate cancer has felt like a bump on the head compared to all the rest of his concerns! So, to bring everyone up to speed as quickly as I can, dad
Hello friends! It's been a long time since I've posted. It's hard to keep up with my dad's health on my end.. we've had so many close calls that his prostate cancer has felt like a bump on the head compared to all the rest of his concerns! So, to bring everyone up to speed as quickly as I can, dad
Lynsi13 profile image
Lynsi13
in Advanced Prostate Cancer
8 months ago

Rehab

Reading through many posts of those who’ve suffered a TBI rehab is frequently mentioned. I was offered no rehab or OT and had to self-refer to Headway. I have no fine motor skills in my left hand since brain surgery and it is much weaker than my right. Thankfully I have a wonderful partner who is so
Reading through many posts of those who’ve suffered a TBI rehab is frequently mentioned. I was offered no rehab or OT and had to self-refer to Headway. I have no fine motor skills in my left hand since brain surgery and it is much weaker than my right. Thankfully I have a wonderful partner who is so
ftt1960 profile image
ftt1960
in Headway
9 months ago
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