Not posted for a while. Was just wondering how long you guys spent in hospital?
When I read, talk, listen or watch something about somebody’s brain injury they say things like “I was in hospital for 4 months” or how ever long they were in hospital.
I spent 4 month in Salford hospital, from brain surgery to being in a coma to waking from said coma etc.. (I have no memories of being in this hospital) & I spent just over 8 month in Trafford General Hospital rehabilitating, from being pretty much “locked in” to talking, wheeling myself in wheel chair & learnt (pretty much from the start) how to do everyday things. A total of 1 year & 22 days in hospital. I'm not comparing injury’s but I’ve not heard of somebody staying in hospital for this long & was curious to know how long people were in hospital.
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Wazza84
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Hello Wazza84 , I stayed in coma at hospital for one month. After that there was no rehabilitation and went home near my family. I was like a new born baby. I couldn't eat meal or walk. My memory has lost for five years. I have to learn everything again but it's too hard to concentrate to learn for me. How did you do?
I was given a smart drug called Modafinil around 8 months after my bleed and it gave me such a boost, all of a sudden I was more alert. I still take it to this day as it helps fight neurological fatigue. Maybe talk to your GP or a neurologist about such things.
My brother was in hospital for 5 months,because of waiting for a place at a rehabilitation, . He has been in rehabilitation for 5 months now..He had a brain haemorrhage. He was in post traumatic amnesia for months.. left side paralysis, and alot of memory processing difficulties.
Yes, most definitely time.. Caused by hypertension, that we didn't know he suffered from 🤔 his only 38 yrs. How old were you when you had your brain haemorrhage? Did you find out why yours happened?
I was born with it and didn’t know it was there until it was too late.. I went in for Radiosurgery to rid me of the AVM a year after my bleed & in 2018 I was given the all clear, the AVM was gone 😁
My husband had an AVM too - diagnosed in 2014 in his thirties but they didn’t want to operate at first as it was too big, he had radiosurgery in 2019 after one minor haemorrhage but then had a second bad haemorrhage before it had been got rid of - spent over three months in hospital but had to leave when covid hit.
Had a very hard couple of years at home with a lot of confusion - it is a slow road to recovery but now he has a part-time job gardening job which he loves. Speech very limited and he can’t write unfortunately so it’s a bit lonely for him
His was at the back of his head on the left side - was over 5cm - but eventually disappeared around 4 years after the radiosurgery. Good luck with everything
Was it a sky diving accident that caused your injury and if so would you do it again? For me these days it’s a big No Thanks, possible would of attempted it before my haemorrhage but anxiety etc wouldn’t allow me these days 😳
I was in the Royal London for about 3 months, then went to the Wellington for rehab for about 3 months so about 6 months in total. Im still having community rehab and I have been back to hospital to have my titanium plate put in and will be going back to have it replaced
I’ve heard Royal London is a good hospital.. is it true? I’ve just read your bio. Must of been a bad accident 😳. I don’t have a plate or anything however I do have a VP shunt and can be uncomfortable. Is the plate uncomfortable or is it a case of not “knowing” it’s there?
The Roayl london is brilliant. It was a pretty bad accident.TheThey tootook me there as it has one of the largest trauma centres in the UK. I had life saving surgery to remove part of my skull due to brain swelling and I have the pplate in as they couldn't reuse the bone as I had skull and facial fratures. Without the air ambulance and the royal london, I wouldn'wouldn't be here today. I can't feel the plate. I only know roughly the size after seeing a recent CT scan (the right hhalf of my skull is titanium)
I had a TBI 11yrs ago in France. They quickly cut half my skull off then placed me in a coma for 10 days. Then in ICU for a week ran a further 14 days in hospital before flying home in an ambulance. Then 1 month in Salford hospital. A couple of months later I had titanium placed on the removed skull. After that I simply had to identify sanity👍🏻
Luckily I never look back so I never think of my previous experiences. Day to day I never think about or feel my titanium head, but I do have to cope with the damage that’s underneath it. That’s a challenge.
As for the ward I was on at Salford, I was brain dead, so I’ll have to check to find out. Come back to you👍🏻
Was lucky, they just drilled 2 holes in scull. Drain & what looked like a spark plug apparently a month in an induced coma, 6 months in various hospitals. Last was the Wilson neuro rehab when it was in Wimbledon. Learnt to walk, talk again. 20 + years learning to accept the new me?!!
I was in hospital for 1 week after they removed the blood clot from my brain but I was an outpatient for 8 years after that before they gave mr the final ok it was 1977 when I had my lifesaving operation
Headaches occasionally short term memory loss remembering names etc I’ve worked around other problems oh and I had to learn to walk again I can drive my injury was at 13 years old I’ve got a good spouse to help I’m not good with maths neither I used to play the piano accordion but lost interest after my injury
My headaches, sleep & depression are under control with a drug called Nortriptyline sister drug of Amitriptyline , they have changed my life, I’ve posted about them before but my short term memory is still bad 🙄
The thing is , not everyone who is profoundly impacted spends anytime in hospital.
They always want me for studies, because I spent zero nights in hospital. (When it became obvious I ought to have gone I wasn't in a state to get myself there, so I just stayed at home on my own and got through by the seat of my pants.)
People at my local society were always trying to see where my scar was.
As it turns out, some people can be in hospital and in a coma - wake up - and waltz out the door. Little to no impact, they just get on with life.
And some just get a nasty bump, and their life is toast.
In my case, hit my head on the headrest, though most damage seems to have been from the chemicals of inflammation melting the tails off my neurons - aka diffuse axonal shearing. (No treatment or cure possible.) If that doesn't scan, think shaken baby syndrome. (I also got shook back and forth pretty hard... like James Bond's favourite cocktail, I am shaken, but not stirred.)
This is part of the reason , I feel, it is so hard to get anywhere with the medical profession. They really can't figure it out, the way they can figure out a broken leg, and if it can't be neatly packaged in a 'standards of care' script, they have no idea how to think outside that box.
I fully get what you’re saying but please believe me when I say “I’m not comparing brain injuries” or I think because I spent a long time in hospital my injury is “better than others” I fully get that brain injury is about the individual & each brain injury is unique.
I read on Headways website that they wanted footballers to stop heading the ball from great heights because it’s a blow to the head just like a boxer being punched in the head.
In the u.s. they have banned school-age (soccer) football players from doing any head strikes on the ball because of the health threat. However , american football is proven to cause brain injury, but nobody wants to give it up .
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Update on loved one's severe TBI 
Good grief a year has passed since last post, phew what happened :-)
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My 22 year old son who lives with me, doesn’t believe me… 
