New diagnosis

[Creamteas]

Hi I have just been diagnosed with sphenoid meningioma and also with dehisence semi circular canal , which is a problem with bones that affect balance in inner ear. Can't believe I received diagnosis unexpectedly in a letter. I then received 2 outpatient appointments, one for ENT and one for Neurosurgery but very stressed not being able to discuss with anyone until appointments in 6 weeks. So many questions and no answers and feel I can't plan anything until I know situation. Also really worried about work and losing by driving licence, I have blue badge due to poor mobility and rely on my car to work and get around. Finding it hard to feel positive about anything right now and also don't want my family to worry too much

[Zhaleh_TBTC Administrator]

Hello and thank you for sharing this with the group. I am sorry to hear about your diagnosis experience and I am sure there are a lot of people here who can relate to how overwhelming things can feel at times. You are not alone.

You may find it helpful to order a copy of our information pack, which you can order on our website here: thebraintumourcharity.org/b...

Please do feel able to reach out to us, if you want to talk things through, have questions, or if you just need someone to listen. You can give us a call on 0808 800 0004, Monday – Friday, 9 - 5. You can also email the team on: [e-mail].

Warmest wishes, The Support Team.