I’ve had numbness in my feet for quite awhile, but recently I’ve had hot & cold feet as well as swelling. Note: this occurs in one foot or the other (switching from left to right and back). I just read that this is part of neuropathy too. This is a new item on my list of strange occurrences that MS has offered me. All that being said...what have you learned helps w/these new found issues?
I take Gabapentin & Baclofen to help w/this and other issues.
God bless you all & thank you for your unfailing love and support.
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robster1
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I take both medications that you mentioned, robster1 for spasticity. I do notice that I get ice cold feet most times. All that seems to help is a hot soak, or to put them on my hubs!
Glad I’m not the only one with “ice for feet”. Even in summer I wear socks to bed! (My hands are always cold, too, [From poor circulation, but no one seems to care! Just wonder who I’ll sue when my hands turn black & fall off!]
I can’t tell you . If it is no seriuous, don’ t put attention . In MS there are more things important . And maybe you never in the future will have serious things .
Does elevating your feet help at all with the swelling? I have a heated blanket for helping with the cold feet a bit. I just got some heated socks, but they are too thick to wear with my regular shoes. I may try them with some shoes that are at least a half size larger. I know the cold or burning feet are really annoying and sure make it hard to sleep.
I’ll try elevating them. Yes it is annoying. Certainly not in the league of other stuff w/MS. With my PPMS there are much bigger fish to fry...heck w/any MS!
Cold foot is the norm for me, I wear socks 24/7. Years ago though, my feet were on fire for about a year as peripheral neuropathy was doing it's damage. Literally, it felt like my feet were on fire, putting them in cold / ice water helped. Unfortunately, I could only do that at home. I wish you the best in controlling your symptoms!
Thank you jorell. Yeah I’ve had the numbness in both feet for a bunch of years. The cold/hot/swelling just a few months. Oh well, I’ll add it to the list. No matter what takes place in me...
And God is so great for all of us, after all, I'm still alive!
Numb feet 🦶, going on 2 years....Whole body numbness, going on a year now....
First diagnosis, after head MRI..said possible MS.
After not improving, 2nd MRI done on my neck...
Which showed damage to my spine (C4,5 &6)...
Neuropathy and spinal cord damage....
I had C4,5 &6 fused in April......still have lots of numbness all over. They still have not addressed the ‘possible MS’
and probably won’t, until I seek a different physician.
Just wanted to reply to you... I can relate.
I take Gabapentin...but don’t really think 🤔 it helps.
I say prayers 🙏🙏 and hope for the best.
I will say prayers for you also robster1.
It definitely affects everything in my life. I am 53 and my disability was approved in September. I would trade every dime for my health back....as I ask sure, everyone on this site would also.
Believe me, I know the feeling of having cold feet, swelling, spasticity and having PPMS. It is non stop pain. For the swelling, I wear support stockings and for cold feet a lot of socks. 🧦 Hang in there. 👍🏾
Cold feet...when home and truly bothering, I stick disposable heat pads on my socks. Recently, sensation of swelling (but don’t look swollen). Put my soft slippers on or try legs up the wall yoga position.
That sensation of swelling began happening to me recently: it feels as if my insteps have been wrapped in duct tape. It happens to both feet simultaneously, mostly when I've been walking about outside.
Here's what has helped my dear old feet (and yes, that's how I address them every morning.) When I was receiving therapy after the ankle fracture, every session started with a ten minute massage of each foot. The first time the therapist massaged my feet, it felt so good, my emotions were brimming. I realized how much I took my feet for granted as at the same time I totally depended on them.
My feet begin every morning as stiff as boards. My first steps are always lurching, causing me to walk like Frankenstein's monster. Therapy ended more than a year ago, so I begin every morning by loosening/massaging my feet as best I can, telling them silently how important they are to me and how glad I am of their hard work. Before pulling on my detested compression knee highs (these help with the swelling) I apply a moisturizer. I am less faithful about my foot exercises (moving marbles from the floor to the container, writing the alphabet in the air with each foot, standing at the counter to do toe rises (or whatever the exercise is called). I have occasional pain and take no medications, but for 20 years I have struggled to explain how my feet feel, but not until I had great physical therapy did anyone hear me.
These are great! thanks for the advice. I take my feet for granted like I used to take my legs for granted...until now. Now I will thank my feet for putting up with carrying me around all day.
My feet have been numb probably for 10 years. I also experience extreme tightness, especially in the balls of my feet. Sometimes I feel like I’m walking on stubs. These days they’re cold all the time. But I’ve had other times when they feel like they’re on fire. I take gabapentin, sometimes I soak them in Epson salts (not too often, just because of the hassle), warm socks, and massages when I’m lucky enough to have those. My feet are one of my main concerns. I need to distract myself so I don’t focus on the uncomfortable/ painful sensations.
My feet are either hot or cold ,nothing in between. I use a electric blanket designed just for your feet for these cold michigan winters. My left leg is swollen from the knee down, mostly my ankle. After a few test the docs found that because I don't get enough exercise. My ppms makes it difficult to bend/move that leg from the knee down. Stretching, massage whatever exercise you can do will show improvement. I bought a leg cuff on amazon that actually helps with this. Diet too makes a difference. Bottom line is that I was told to get the fluids moving through the body. Watch out for type two diabetes or please get tested.
My toes almost always feel like ice but if I touch them with my hands they're usually fine feeling. At night if they're keeping me up I keep an extra thick pair of footie socks in my nightstand drawer. It fools those toes and they think they should be warm in those socks so I can sleep. I took Gabapentin for awhile but it didn't make any difference.
My neurologist has me on baclofen and gabapentin as well. But he changed up the times I am supposed to take the gabapebtin. Rather than morning noon night, he has me take one at 4 pm, then 2 at 9 pm. This was to deal with the sensation of having the flesh sliced off my right foot with a red hot knife. It has helped. But the last few nights, my right foot is back to feeling like a block of ice. So I go to sleep with one slipper sock on my right foot. My left foot just feels like I've stuck it IN a camp fire, so I don't put a slipper sock on that foot.
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Just venting....as usual!
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Neurologic based physical therapy
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