Search
Search
About
Log in
Join
Experiences with
Neuropathies
Posts
Communities
565 public posts
Filter results
Pain in hip and down leg
Hi just wondering if any body as suffered pain in hip when sitting down my pain is so severe I can't sit for a second before having to move feels like some things pressing on something when I push my weight down when sitting
Hi just wondering if any body as suffered pain in hip when sitting down my pain is so severe I can't sit for a second before having to move feels like some things pressing on something when I push my weight down when sitting
Spudster1
in
Pain Concern
7 years ago
More help for restless legs-possible
I was just surfing around the site-trying to learn more about navigating this site on my computer. (I'm left handed, right brain dominant and absolutely confused by most things technical) Anyway, found a 2 month old post from chrillo1976 Haven't seen that name again. He/she mentioned being greatly helped
I was just surfing around the site-trying to learn more about navigating this site on my computer. (I'm left handed, right brain dominant and absolutely confused by most things technical) Anyway, found a 2 month old post from chrillo1976 Haven't seen that name again. He/she mentioned being greatly helped
Hidden
in
Restless Legs Syndrome
7 years ago
Painful fingers latest update
Following my posts a month or so ago querying the cause of painful fingers at the same time as a flare, with all the subsequent great replies, thought I'd let you know that the fingers, knuckles, wrists pains finally went. When I saw our locum GP last week she said to just leave things as they are until
Following my posts a month or so ago querying the cause of painful fingers at the same time as a flare, with all the subsequent great replies, thought I'd let you know that the fingers, knuckles, wrists pains finally went. When I saw our locum GP last week she said to just leave things as they are until
Lin-lou
in
PMRGCAuk
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Need Advice
I am 52, diagnosed with RA about 1 yr ago , suffered for a year before that. very hard to walk at times, sometimes I couldn't hold a cup of coffee. Doctor gave me some high doses of Prednisone and within a day I felt awesome! I could walk without my feet killing me, I could use my hands without severe
I am 52, diagnosed with RA about 1 yr ago , suffered for a year before that. very hard to walk at times, sometimes I couldn't hold a cup of coffee. Doctor gave me some high doses of Prednisone and within a day I felt awesome! I could walk without my feet killing me, I could use my hands without severe
danvb
in
PMRGCAuk
7 years ago
leflunomide or mycophenolate
Hi All, So a very long story short, after a disappointing Rheumy visit who after a total 4 minute consult suggested Mycophenloate I went to see my doctor, saying I was reluctant and asked him to take over my care. He was concerned about my age as I am young (although many are on this forum) for this
Hi All, So a very long story short, after a disappointing Rheumy visit who after a total 4 minute consult suggested Mycophenloate I went to see my doctor, saying I was reluctant and asked him to take over my care. He was concerned about my age as I am young (although many are on this forum) for this
lesley2015
in
PMRGCAuk
7 years ago
Wrist joint injection
Hi I'm due to have a joint injection in my wrist in a couple of days, not had one before only ever had into my hips. Wanted to know whether I will be able to drive home from the hospital?? I feel like I'm gonna need one in most joints! My elbow, my si joint, hips! I am so stiff at the moment am so
Hi I'm due to have a joint injection in my wrist in a couple of days, not had one before only ever had into my hips. Wanted to know whether I will be able to drive home from the hospital?? I feel like I'm gonna need one in most joints! My elbow, my si joint, hips! I am so stiff at the moment am so
Sara_A
in
LUPUS UK
7 years ago
Peripheral neuropathy and burning feet
Saw some comments a few days ago, and wanted to remind everyone to carefully read the literature that comes with all your drugs. For a couple of years, I have had intense burning feet, especially in the evenings, and assumed it just went with the neuropathy. Not so! After studying all my medicine literature
Saw some comments a few days ago, and wanted to remind everyone to carefully read the literature that comes with all your drugs. For a couple of years, I have had intense burning feet, especially in the evenings, and assumed it just went with the neuropathy. Not so! After studying all my medicine literature
4fishylady
in
My MSAA Community
7 years ago
magnesium glycinate help
so its nice Rahim told you about magnesium glycinate but I can find all that out under google, we needed info from anyone who has tried it...my sister tracey has, she swears by it, she is actually bringing me a bottle of it today...buuuut it makes a difference which one you get and how much you pay..
so its nice Rahim told you about magnesium glycinate but I can find all that out under google, we needed info from anyone who has tried it...my sister tracey has, she swears by it, she is actually bringing me a bottle of it today...buuuut it makes a difference which one you get and how much you pay..
prayer7
in
Restless Legs Syndrome
7 years ago
Massages & flare dosage
Have been browing on here and read something about massages being good/not good with PMR and now I can't find the posts! I am approaching a "big 0" birthday next month (not many of those left, this will be my 80th!), and I have two very good friends who want to treat me to some pampering, on two different
Have been browing on here and read something about massages being good/not good with PMR and now I can't find the posts! I am approaching a "big 0" birthday next month (not many of those left, this will be my 80th!), and I have two very good friends who want to treat me to some pampering, on two different
Lin-lou
in
PMRGCAuk
7 years ago
Alpha lipoic acid & acetyl l-carnitine both thyroid inhibitors. How much extra NDT to add?
I started taking Alpha lipoic acid (1600mgs per day) and acetyl l-carnitine (5000mg per day) for some reasons not related to thyroid. I will be taking it for 3 months. I am already taking 1 grain of NDT per day. I heard that both ALA and carnitine can lower thyroid hormone and after a couple of days
I started taking Alpha lipoic acid (1600mgs per day) and acetyl l-carnitine (5000mg per day) for some reasons not related to thyroid. I will be taking it for 3 months. I am already taking 1 grain of NDT per day. I heard that both ALA and carnitine can lower thyroid hormone and after a couple of days
confused85
in
Thyroid UK
7 years ago
Functional B12 deficiency/NutrEval results
Hello, I am new here. Can anyone pls help me? I seem to have a functional B12 deficiency despite normal (now ) or super elevated (previously) serum B12. When I used to take methyl B12 1,000 mg sublingually daily, my serum B12 was off the chart high! I was advised to stop taking the B12, despite being
Hello, I am new here. Can anyone pls help me? I seem to have a functional B12 deficiency despite normal (now ) or super elevated (previously) serum B12. When I used to take methyl B12 1,000 mg sublingually daily, my serum B12 was off the chart high! I was advised to stop taking the B12, despite being
Natalija1
in
Pernicious Anaemia Society
7 years ago
Tennis advantage
There are some things that they don't tell you about getting cancer aren't there? Walking around the house in my waddling and breathless way I discovered I was grunting like Rafa Nadal when he serves. Result. I wonder if I could win Wimbledon now I have perfected the grunt? Hope you have time to enjoy
There are some things that they don't tell you about getting cancer aren't there? Walking around the house in my waddling and breathless way I discovered I was grunting like Rafa Nadal when he serves. Result. I wonder if I could win Wimbledon now I have perfected the grunt? Hope you have time to enjoy
PhillipandBettykid
in
My Ovacome
7 years ago
Ampyra Question
I've been on Ampyra since November 2016. I am also on Aubagio. I have RRMS and thankfully, other than episodes, I am fairly functionally and hope to stay that way as long as this 62 year old body allows. I was shocked by the quick turnaround in my body once I started Ampyra. For years, I have been unsteady
I've been on Ampyra since November 2016. I am also on Aubagio. I have RRMS and thankfully, other than episodes, I am fairly functionally and hope to stay that way as long as this 62 year old body allows. I was shocked by the quick turnaround in my body once I started Ampyra. For years, I have been unsteady
toriartist
in
My MSAA Community
7 years ago
Accident help!
I was on Eviplera for 9 months but switched to Duranuvr and truvada combo about two months ago my housemate hid my tablets as guests where coming and when putting them back Mixed them up and left Eviplera and truvada where my old tablets had been so for six days not knowing I have been taking Eviplera
I was on Eviplera for 9 months but switched to Duranuvr and truvada combo about two months ago my housemate hid my tablets as guests where coming and when putting them back Mixed them up and left Eviplera and truvada where my old tablets had been so for six days not knowing I have been taking Eviplera
Lightbulb1
in
HIV Partners
7 years ago
Tingling hands and feet. Is this norm for PMR?
Hi, have been diagnosed this week with PMR. Steroids making a significant positive difference except for tingling in hands, feet and to lesser extent head. In ariticles I have read on net this tingling isn't mentioned as a symptom for PMR. Does anyone else have this as part of their symptoms or could
Hi, have been diagnosed this week with PMR. Steroids making a significant positive difference except for tingling in hands, feet and to lesser extent head. In ariticles I have read on net this tingling isn't mentioned as a symptom for PMR. Does anyone else have this as part of their symptoms or could
Marilyn1959
in
PMRGCAuk
7 years ago
BMJ Best Practice website advice on B12 deficiency
Symptoms and signs Patients with unexplained neurological disease (specifically, decreased vibration sense, gait abnormalities, and peripheral
neuropathies
) should be tested for vitamin B12 deficiency.
Symptoms and signs Patients with unexplained neurological disease (specifically, decreased vibration sense, gait abnormalities, and peripheral
neuropathies
) should be tested for vitamin B12 deficiency.
seamail57
in
Pernicious Anaemia Society
7 years ago
Physical Therapy
Does anyone go to PT? If so, does it cause more pain. They work my ass off then I hurt even more!!!!!!! it's starting to making me crazy! I am there for manual stretching and traction. So I am starting to get very angry! I am just wondering if any one has the same experience? So please, chime in. If
Does anyone go to PT? If so, does it cause more pain. They work my ass off then I hurt even more!!!!!!! it's starting to making me crazy! I am there for manual stretching and traction. So I am starting to get very angry! I am just wondering if any one has the same experience? So please, chime in. If
rlh1974
in
My MSAA Community
7 years ago
Acupressure points benefited by Walking
Found this image in a WhatsApp group. I wanted to share it as i found this to be very interesting. Walking is an important and simple exercise for all diabetics.
Found this image in a WhatsApp group. I wanted to share it as i found this to be very interesting. Walking is an important and simple exercise for all diabetics.
Hidden
Volunteer
in
Diabetes India
7 years ago
Medications to manage neuropathic pain
It's been a bit quiet on this forum recently. Everyone must be enjoying the spring. I've written a fair amount about my neuropathic pain in the past. I never took medication to help manage it until it started getting significantly worse about six months ago. So far this year, I've tried gabapentin (titrated
It's been a bit quiet on this forum recently. Everyone must be enjoying the spring. I've written a fair amount about my neuropathic pain in the past. I never took medication to help manage it until it started getting significantly worse about six months ago. So far this year, I've tried gabapentin (titrated
Aaron98
in
AMN EASIER
7 years ago
Puffy eyes
I used to get puffy eyes quite often but since preds I have them all the time. I have fluid retention and also pee a lot so I have diuretics and for controlling the pee I have "betmiga 50 mg" my Spanish gp thinks it's the fluid retention can anyone give me any ideas on what night help.? Bad enough
I used to get puffy eyes quite often but since preds I have them all the time. I have fluid retention and also pee a lot so I have diuretics and for controlling the pee I have "betmiga 50 mg" my Spanish gp thinks it's the fluid retention can anyone give me any ideas on what night help.? Bad enough
isabella2015
in
PMRGCAuk
7 years ago
1
...
17
18
19
...
29
Next page
10
20
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
131 results
Diabetes India
66 results
My MSAA Community
55 results
View top 10 communities
Sort by
Most Relevant
Newest