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Nephritis
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Reynauds is of the Devil
I currently have SLE and my
Nephritis
has gone into remission. 👊🏽👊🏽 I was diagnosed with Reynauds disease when I noticed these red splotches on my fingertips. They were painful! Felt as if I had no skin on my fingertips. Then sores formed which caused more pain.
I currently have SLE and my
Nephritis
has gone into remission. 👊🏽👊🏽 I was diagnosed with Reynauds disease when I noticed these red splotches on my fingertips. They were painful! Felt as if I had no skin on my fingertips. Then sores formed which caused more pain.
Hidden
in
LUPUS UK
7 years ago
HSP Nephritis
Hello, I've been diagnosed with HSP
Nephritis
in August 2017. I was on 20mg prednisolone for 5 days and 20mg cozaar daily. On Day 3 I had a bad flare up of vasulitis. Rheumatology doctor suggests that I need to up the steroids. Now I am on day 6 of 45mg prednisolone.
Hello, I've been diagnosed with HSP
Nephritis
in August 2017. I was on 20mg prednisolone for 5 days and 20mg cozaar daily. On Day 3 I had a bad flare up of vasulitis. Rheumatology doctor suggests that I need to up the steroids. Now I am on day 6 of 45mg prednisolone.
AP38
in
Vasculitis UK
7 years ago
Do I Need to be referred back to a Rheumatologist?
At 18 I was in hospital for weeks with HSP & ongoing kidney issues (iga
nephritis
) which got better in time. I was told that it was quite rare to get HSP as an adult & I would never get it again.
At 18 I was in hospital for weeks with HSP & ongoing kidney issues (iga
nephritis
) which got better in time. I was told that it was quite rare to get HSP as an adult & I would never get it again.
MariaK71
in
Vasculitis UK
7 years ago
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4 New Things About Lupus
Exercise is Good for Lupus
, Social Stress Not So Much Daily moderate exercise and stress management are underemphasized in the care of patients who have lupus
nephritis
because their potential roles in controlling the inflammatory response are poorly understood, researchers from The
Exercise is Good for Lupus
, Social Stress Not So Much Daily moderate exercise and stress management are underemphasized in the care of patients who have lupus
nephritis
because their potential roles in controlling the inflammatory response are poorly understood, researchers from The
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults
Joint European League Against Rheumatism and European Renal Association–European Dialysis and Transplant Association (EULAR/ERA-EDTA) recommendations for the management of adult and paediatric lupus
nephritis
. Ann Rheum Dis 2012;71:1771–82. 5Hahn BH, McMahon MA, Wilkinson A et al.
Joint European League Against Rheumatism and European Renal Association–European Dialysis and Transplant Association (EULAR/ERA-EDTA) recommendations for the management of adult and paediatric lupus
nephritis
. Ann Rheum Dis 2012;71:1771–82. 5Hahn BH, McMahon MA, Wilkinson A et al.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Mycophenolate
I was diagnosed 6 weeks ago with Lupus
Nephritis
, the membrane of my kidneys has been damaged. I've been put on mycophenolate (Cellcept) to suppress my immune system. Is anyone else on this and does anyone know if I will have to take this for the rest of my life?
I was diagnosed 6 weeks ago with Lupus
Nephritis
, the membrane of my kidneys has been damaged. I've been put on mycophenolate (Cellcept) to suppress my immune system. Is anyone else on this and does anyone know if I will have to take this for the rest of my life?
Sofi2610
in
LUPUS UK
7 years ago
Thyroid/AcuteKidneyFailure
Has anyone suffered from thyroid problems or acute kidney failure due to lupus
nephritis
? I'm currently on 4 blood pressure medicines (hydrolozine, atenolol, labetalol, and clonidine) but my blood pressure is still high... Mycophenolate Sodium.... and 60 mg of prednisone..
Has anyone suffered from thyroid problems or acute kidney failure due to lupus
nephritis
? I'm currently on 4 blood pressure medicines (hydrolozine, atenolol, labetalol, and clonidine) but my blood pressure is still high... Mycophenolate Sodium.... and 60 mg of prednisone..
EbonieL
in
LUPUS UK
7 years ago
17 Years post transplant
I had strep throat as a child, wound up with
nephritis
a couple months later and on the transplant list 40 years later. I have been doing well with great kidney function. Does anyone else have problems with your meds? specially myfortic (cellcept)? stomach upset, diarrhea?
I had strep throat as a child, wound up with
nephritis
a couple months later and on the transplant list 40 years later. I have been doing well with great kidney function. Does anyone else have problems with your meds? specially myfortic (cellcept)? stomach upset, diarrhea?
WYOAnne
NKF Ambassador
in
Kidney Transplant
7 years ago
Currently in remission but watching very closely
I was diagnosed with lupus
nephritis
stage 4 last year, and went into remission after 2 months of treatment. I go for checkups every quarter to make sure that I am still on track.
I was diagnosed with lupus
nephritis
stage 4 last year, and went into remission after 2 months of treatment. I go for checkups every quarter to make sure that I am still on track.
LLLin
in
LUPUS UK
7 years ago
Up again 🤔
Hi all just recently got s
nephritis
flare into near remission Kidneys perfect 6 weeks ago however 2 week ago gfr had dropped to 80 and today at hospital 3 plus of protein and 2 plus of blood what the heck is going on The only thing different is I started hydroxy and reduced steroid from 10 mg to 7
Hi all just recently got s
nephritis
flare into near remission Kidneys perfect 6 weeks ago however 2 week ago gfr had dropped to 80 and today at hospital 3 plus of protein and 2 plus of blood what the heck is going on The only thing different is I started hydroxy and reduced steroid from 10 mg to 7
poodlegal
in
LUPUS UK
7 years ago
46 with Minimal kidneys decease, Lupus Nephritis, hypothyroidism & hashimotos & Sjogrens, Post menopausal for 3 years and gallbladder issue
I'm in remission fior kidney decease and Lupus
nephritis
. I have a handle on Lupus and Sjogrens, although dealing with daily pain and suffering.
I'm in remission fior kidney decease and Lupus
nephritis
. I have a handle on Lupus and Sjogrens, although dealing with daily pain and suffering.
Healthtalk0112
in
Thyroid UK
7 years ago
Lupus nephritis ?
Hi I was diagnosed with lupus in November last year . I have been getting headaches which may be due to the brain tumour I also have, however have been feeling awful. My ankles are swollen and I constantly feel bloated with marked weight gain and my GP says I have high blood pressure! My blood pressure
Hi I was diagnosed with lupus in November last year . I have been getting headaches which may be due to the brain tumour I also have, however have been feeling awful. My ankles are swollen and I constantly feel bloated with marked weight gain and my GP says I have high blood pressure! My blood pressure
Caramia1964
in
LUPUS UK
7 years ago
Considering Rituximab
But I don't have
nephritis
or any major organ involvement. Is it realistic to think I might be able to get to remission? What experience have others had with this drug? Thank you 🌸
But I don't have
nephritis
or any major organ involvement. Is it realistic to think I might be able to get to remission? What experience have others had with this drug? Thank you 🌸
ShannonB
in
LUPUS UK
7 years ago
LUPUS NEPHRITIS - stage 4 (kidneys)
I went to the doctor (kidney specialist) in December and he told me I was recovering but I would never be off my medication. 8 weeks later (and 5 of those weeks I was taking Black Seed Oil) I had another appointment and the doctor said I had completely recovered! He was amazed - he said you were dying
I went to the doctor (kidney specialist) in December and he told me I was recovering but I would never be off my medication. 8 weeks later (and 5 of those weeks I was taking Black Seed Oil) I had another appointment and the doctor said I had completely recovered! He was amazed - he said you were dying
Beverly
Administrator
in
The Australian Sjögren's Syndrome Association
8 years ago
SLE, Lupus Nephritis, IVF
Hello I have SLE, and I'm currently in remission from lupus
nephritis
. I changed from MMF to azathioprine at the end of January due to my desire to start a family. Unfortunately, due to a separate issue I will need to have IVF to conceive; we have our first IVF appointment in April!!!
Hello I have SLE, and I'm currently in remission from lupus
nephritis
. I changed from MMF to azathioprine at the end of January due to my desire to start a family. Unfortunately, due to a separate issue I will need to have IVF to conceive; we have our first IVF appointment in April!!!
Cameron25
in
LUPUS UK
8 years ago
Warfarin
heparin due to slightly positive results of aps and previous pre eclampsia Lost both Now it has been suggested I may have to be put in warfarin which I'm petrified about Just when u think things can't get any worse with this bloody condition something new always crops up Currently on 2 be flare of
nephritis
heparin due to slightly positive results of aps and previous pre eclampsia Lost both Now it has been suggested I may have to be put in warfarin which I'm petrified about Just when u think things can't get any worse with this bloody condition something new always crops up Currently on 2 be flare of
nephritis
poodlegal
in
LUPUS UK
8 years ago
Low blood pressure anyone have this ?
I am on ibersartan for high blood pressure and to reduce protein leak from my kidneys as i have lupus
nephritis
. I am now wondering if i should take the ibersartan if my blood pressure is going too low , i had this problem years ago when i was put on ramipril so i stopped taking that .
I am on ibersartan for high blood pressure and to reduce protein leak from my kidneys as i have lupus
nephritis
. I am now wondering if i should take the ibersartan if my blood pressure is going too low , i had this problem years ago when i was put on ramipril so i stopped taking that .
Buffy14
in
LUPUS UK
8 years ago
"PPIs May Increase Risk for Chronic, Silent Kidney Damage" --- Long-term and large scale study points to need for caution.
PPI treatment is known to increase the risk for AKI, acute interstitial
nephritis
, and CKD. However, whether PPI use is tied to a greater risk for chronic kidney damage in the absence of an earlier episode of AKI has been unclear.
PPI treatment is known to increase the risk for AKI, acute interstitial
nephritis
, and CKD. However, whether PPI use is tied to a greater risk for chronic kidney damage in the absence of an earlier episode of AKI has been unclear.
gutlesswonder
in
Oesophageal & Gastric Cancer
8 years ago
Insurance anyone?
I have lupus
nephritis
, Raynaud's and Sjogren's. and am on low dose prednisolone , hydroxychloroquine and losartan. My condition is described atm by my consultant as 'stable disease.' Does anybody know where I can find a reasonable quote.?
I have lupus
nephritis
, Raynaud's and Sjogren's. and am on low dose prednisolone , hydroxychloroquine and losartan. My condition is described atm by my consultant as 'stable disease.' Does anybody know where I can find a reasonable quote.?
Neriah
in
LUPUS UK
8 years ago
High potassium level and lupus nephritis
Has anyone else with lupus
nephritis
had this problem , I read this can cause kidney failure .
Has anyone else with lupus
nephritis
had this problem , I read this can cause kidney failure .
Buffy14
in
LUPUS UK
8 years ago
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