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I'm lost! Please will you give me directions?
I have SLE, including Lupus
nephritis
, diagnosed almost 7 months ago. Please how do I use this resource? My cognitive function is kaput just now: there are many different places one can write, & I'm not sure where to go or how...? O dear, I wrote that 4 months ago, & nobody has replied.
I have SLE, including Lupus
nephritis
, diagnosed almost 7 months ago. Please how do I use this resource? My cognitive function is kaput just now: there are many different places one can write, & I'm not sure where to go or how...? O dear, I wrote that 4 months ago, & nobody has replied.
AileenT
in
Anxiety Support
8 years ago
SLE Nephritis
Hi all, I was diagnosed with SLE
Nephritis
IV in 2008 (a year after my Daughter was born). I was also diagnosed with anti phospholipid syndrome after having two DVT's. Luckily I was in remission for six years and was not taking any medication.
Hi all, I was diagnosed with SLE
Nephritis
IV in 2008 (a year after my Daughter was born). I was also diagnosed with anti phospholipid syndrome after having two DVT's. Luckily I was in remission for six years and was not taking any medication.
Roxy21
in
LUPUS UK
8 years ago
Interstitial Nephritis
I had a biopsy, which showed I had Interstitial
Nephritis
, likely caused by Aspirin or Ibuprofen. Unfortunately the biopsy was delayed by a few weeks due to a spurious blood infection result and a stay in hospital treating something I didn't have. All the while my kidneys were no better.
I had a biopsy, which showed I had Interstitial
Nephritis
, likely caused by Aspirin or Ibuprofen. Unfortunately the biopsy was delayed by a few weeks due to a spurious blood infection result and a stay in hospital treating something I didn't have. All the while my kidneys were no better.
Han72
in
Early CKD Support
8 years ago
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endoxsan and pregnancy?
I have a sister with SLE should now receive endoxan due to active lupus
nephritis
, she has 25 years experience tell me about pregnancy after receiving endoxan? Thanks
I have a sister with SLE should now receive endoxan due to active lupus
nephritis
, she has 25 years experience tell me about pregnancy after receiving endoxan? Thanks
andrijana
in
LUPUS UK
8 years ago
First Post :) Cyclophosphamide to treat CNS Lupus/ Kidneys- Advice please?!
I have SLE and now Lupus
Nephritis
, I have had bad illness this year first sign of organ involvement in May when bloods showed my Kidneys were leaking protein (biopsy in september showed stage 3 verging 4 damage). my methotrexate was increased to 20mg weekly, in July I saw my rheumatologist after getting
I have SLE and now Lupus
Nephritis
, I have had bad illness this year first sign of organ involvement in May when bloods showed my Kidneys were leaking protein (biopsy in september showed stage 3 verging 4 damage). my methotrexate was increased to 20mg weekly, in July I saw my rheumatologist after getting
HannahLupus
in
LUPUS UK
8 years ago
Dreaded nephritis is back
Nephritis
again, pregnancy and flare Last time I started on 40 mg steroid I'm dreading the moon face the water retention heart racing etc the dr suggested maybe intravenous to reduce side affects I'm worried the word termination is going to be mentioned I suppose iv been lucky been in remission for
Nephritis
again, pregnancy and flare Last time I started on 40 mg steroid I'm dreading the moon face the water retention heart racing etc the dr suggested maybe intravenous to reduce side affects I'm worried the word termination is going to be mentioned I suppose iv been lucky been in remission for
poodlegal
in
LUPUS UK
8 years ago
Prednisone, Insomnia, and Type 1 Bipolar
I have lupus
nephritis
, if that makes a difference.
I have lupus
nephritis
, if that makes a difference.
quirkytizzy
in
LUPUS UK
8 years ago
Lol76help
hi am lol was diagnosed with lupus 16 months ago I have
nephritis
stage three and am really scared help haha I have a brill nephrology team they are great but don't know what will happen in the future 😊 xxx
hi am lol was diagnosed with lupus 16 months ago I have
nephritis
stage three and am really scared help haha I have a brill nephrology team they are great but don't know what will happen in the future 😊 xxx
lol76
in
LUPUS UK
8 years ago
Advice please
I was diagnosed with lupus
nephritis
in Jan 2015, I was treated with cyclophosphamide, mycrophenlate but stopped myclo due to side effects. I was taken off all meds in Dec 2015 but continued with steriods.
I was diagnosed with lupus
nephritis
in Jan 2015, I was treated with cyclophosphamide, mycrophenlate but stopped myclo due to side effects. I was taken off all meds in Dec 2015 but continued with steriods.
ajanjua
in
LUPUS UK
8 years ago
Methylprednislone with rituximab infusion
I Recently seen my renal consultant and said they need to start me on treatment as my lupus is effecting my kidneys (lupus
nephritis
). I have 2 options- to have rituximab which has to be given with steroids but i dont tolerate steroids as i have a psychotic reation (very scary).
I Recently seen my renal consultant and said they need to start me on treatment as my lupus is effecting my kidneys (lupus
nephritis
). I have 2 options- to have rituximab which has to be given with steroids but i dont tolerate steroids as i have a psychotic reation (very scary).
Rach459
in
LUPUS UK
8 years ago
Mandatory consideration
I have lupus
nephritis
level 3 and joint and rash involvement, I have osteoporosis after 14 years on steroids, I am on immunosuppressant drugs so at serious risk of infection, I am deaf in right ear after having a tumour removed , I am on lifelong warfarin after 2 large blood clots one in the brain but
I have lupus
nephritis
level 3 and joint and rash involvement, I have osteoporosis after 14 years on steroids, I am on immunosuppressant drugs so at serious risk of infection, I am deaf in right ear after having a tumour removed , I am on lifelong warfarin after 2 large blood clots one in the brain but
Buffy14
in
LUPUS UK
8 years ago
Nephritis
Well after feeling pants for a while and kidney's leaking,it is officially
nephritis
and I have to to have biopsy
Well after feeling pants for a while and kidney's leaking,it is officially
nephritis
and I have to to have biopsy
B0xermad
in
Lung Conditions Community Forum
8 years ago
Lupus and the dwp
Hi , I have had lupus SLE for 14 years I am now 56 .I have arthritis, rash and lupus
nephritis
level 3 .since my diagnosis I have had an acoustic neuroma and after surgery lost the hearing in my right ear , after a leak of CSF fluid a few years later I had my ear drum removed , 3 months after the surgery
Hi , I have had lupus SLE for 14 years I am now 56 .I have arthritis, rash and lupus
nephritis
level 3 .since my diagnosis I have had an acoustic neuroma and after surgery lost the hearing in my right ear , after a leak of CSF fluid a few years later I had my ear drum removed , 3 months after the surgery
Buffy14
in
LUPUS UK
8 years ago
Lupie Talk - Starting Women Only Chat Group & Book/Film Group (Men and Women)
I've had lupus
nephritis
for 14 years and after dealing with that as an 11 year old, I just got on with everything. I had my flares, my dark days and my days when I felt like I could finally be 'normal', although that never lasted long!
I've had lupus
nephritis
for 14 years and after dealing with that as an 11 year old, I just got on with everything. I had my flares, my dark days and my days when I felt like I could finally be 'normal', although that never lasted long!
Bellaflowe
in
St Thomas Lupus Trust
8 years ago
Lupie Talk - Starting Women Only Chat Group & Book/Film Group (Men and Women)
I've had lupus
nephritis
for 14 years and after dealing with that as an 11 year old, I just got on with everything. I had my flares, my dark days and my days when I felt like I could finally be 'normal', although that never lasted long!
I've had lupus
nephritis
for 14 years and after dealing with that as an 11 year old, I just got on with everything. I had my flares, my dark days and my days when I felt like I could finally be 'normal', although that never lasted long!
Bellaflowe
in
World According to Lupus
8 years ago
Lupie Talk - Starting Women Only Chat Group & Book/Film Group (Men and Women)
I've had lupus
nephritis
for 14 years and after dealing with that as an 11 year old, I just got on with everything. I had my flares, my dark days and my days when I felt like I could finally be 'normal', although that never lasted long!
I've had lupus
nephritis
for 14 years and after dealing with that as an 11 year old, I just got on with everything. I had my flares, my dark days and my days when I felt like I could finally be 'normal', although that never lasted long!
Bellaflowe
in
LUPUS UK
8 years ago
Lupie Talk - Starting Women Only Chat Group & Book/Film Group (Men and Women)
I've had lupus
nephritis
for 14 years and after dealing with that as an 11 year old, I just got on with everything. I had my flares, my dark days and my days when I felt like I could finally be 'normal', although that never lasted long!
I've had lupus
nephritis
for 14 years and after dealing with that as an 11 year old, I just got on with everything. I had my flares, my dark days and my days when I felt like I could finally be 'normal', although that never lasted long!
Bellaflowe
Volunteer
in
LUpus Patients Understanding and Support
8 years ago
Diagnosed at 14 now turning 18
Hello my name is Karissa, I was diagnosed with Lupus at 14 years old with stage 4 S.L.E Lupus
Nephritis
also along with failing Lungs and an inflamed gallbladder. That was 4 years ago and my Rheumatologist told me I would never be able to live a normal lifestyle again.
Hello my name is Karissa, I was diagnosed with Lupus at 14 years old with stage 4 S.L.E Lupus
Nephritis
also along with failing Lungs and an inflamed gallbladder. That was 4 years ago and my Rheumatologist told me I would never be able to live a normal lifestyle again.
Kathleen1998
in
LUPUS UK
8 years ago
Chemotherapy for Lupus Nephritis
A year ago, after a kidney biopsy I was diagnosed with lupus
nephritis
class IV, and put on mychophenolate. However after 6 months of this treatment the protein in my urine refused to come down so I was told I had to start chemotherapy!
A year ago, after a kidney biopsy I was diagnosed with lupus
nephritis
class IV, and put on mychophenolate. However after 6 months of this treatment the protein in my urine refused to come down so I was told I had to start chemotherapy!
Lilly25
in
LUPUS UK
8 years ago
Lupus Nephritis
can a lupus nephtritis patient fast during ramadan...
can a lupus nephtritis patient fast during ramadan...
Sle_remission
in
LUPUS UK
8 years ago
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