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Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
heartinmotion
in
Cure Parkinson's
6 months ago
Prednisolone
Just been prescribed prednisolone started taking yesterday, could anyone tell me how long it takes to feel less pain? Thanks
Just been prescribed prednisolone started taking yesterday, could anyone tell me how long it takes to feel less pain? Thanks
Mistyfied
in
PMRGCAuk
9 months ago
Radiation 10+ years after initial imrt
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Tommyj2
in
Advanced Prostate Cancer
6 months ago
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High platelet count due to iron deficiency anaemia maybe?
Just again when I thought all was going well ! High platelet count from recent blood test shows Platelet count 515 10*9/L Platelet count has been abnormal for some time, but never this high. Not sure whether I should request the ferrous sulphate again, OR could it be PMR flare. I have felt pretty
Just again when I thought all was going well ! High platelet count from recent blood test shows Platelet count 515 10*9/L Platelet count has been abnormal for some time, but never this high. Not sure whether I should request the ferrous sulphate again, OR could it be PMR flare. I have felt pretty
gillsky8
in
PMRGCAuk
6 months ago
Strange nightime happenings
This only happened a couple of times when I was particularly stressed and since I stopped Prednisolone completely three months ago. I found I could not settle at night (or I woke up after a short sleep) and I felt like I could not breathe or get comfortable. I was only able to go to sleep when I propped
This only happened a couple of times when I was particularly stressed and since I stopped Prednisolone completely three months ago. I found I could not settle at night (or I woke up after a short sleep) and I felt like I could not breathe or get comfortable. I was only able to go to sleep when I propped
TheMoaningViolet
in
PMRGCAuk
9 months ago
imurel
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
NormaB
in
PMRGCAuk
9 months ago
Urgent dental appointment for pain may need molar extraction should I increase steroids
I have reduced to 1mg prednisolone since October did take extra 1mg for a number of days over Christmas period as had to deal with a stressful situation and do a lot of driving was fine until now tooth has really started to play up , interesting started just before Christmas. Sought advice from neighbour
I have reduced to 1mg prednisolone since October did take extra 1mg for a number of days over Christmas period as had to deal with a stressful situation and do a lot of driving was fine until now tooth has really started to play up , interesting started just before Christmas. Sought advice from neighbour
carport
in
PMRGCAuk
9 months ago
General Headache Question
Hi all, I have two GCA-related questions.... Question 1: If a GCA patient has a headache and they take extra prednisone (thinking it a flare) and the headache goes away, is that evidence that the headache was in fact inflammatory in nature? Question 2: If a GCA patient has a headache and they take
Hi all, I have two GCA-related questions.... Question 1: If a GCA patient has a headache and they take extra prednisone (thinking it a flare) and the headache goes away, is that evidence that the headache was in fact inflammatory in nature? Question 2: If a GCA patient has a headache and they take
montebello
in
PMRGCAuk
6 months ago
Diuretic?
Is prednisone diuretic? Going to loo 5 to 6 times at night!
Is prednisone diuretic? Going to loo 5 to 6 times at night!
tonyevans48
in
PMRGCAuk
6 months ago
Basal Cortisol Test Result
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
Floridafan
in
PMRGCAuk
9 months ago
Urinary incontinence in mCRPC
I am looking for help for my 81-year-old father who is mCRPC. He was diagnosed at stage 4 about 18 months ago with mets to 8+ bones including the skull. Summary of the following treatments: Bicalutamide this drug failed in July 2023 and the patient transitioned to Xtandi started in September 2023.
I am looking for help for my 81-year-old father who is mCRPC. He was diagnosed at stage 4 about 18 months ago with mets to 8+ bones including the skull. Summary of the following treatments: Bicalutamide this drug failed in July 2023 and the patient transitioned to Xtandi started in September 2023.
lgutman
in
Advanced Prostate Cancer
6 months ago
Hydroxychloroquine
Hi all, My rheumatologist recently suggested I try a prescription of Hydroxychloroquine as I am tapering off of prednisone for my PMR and still having trouble with very sore muscles. Have any of you tried this as a potential way to help with PMR pain and what were the pros and cons? Earlier I was
Hi all, My rheumatologist recently suggested I try a prescription of Hydroxychloroquine as I am tapering off of prednisone for my PMR and still having trouble with very sore muscles. Have any of you tried this as a potential way to help with PMR pain and what were the pros and cons? Earlier I was
fondofforest
in
PMRGCAuk
6 months ago
low blood pressure
I have GCA and I have been tapering prednisone for 3 years. I am on my second attempt at tapering prednisone and just got to 4mg. Last year I actually got down to 3 mg but suffered a 4th and acute diverticulitis attack which was too much for my sputtering adrenals. While in the ER the PA didn’t
I have GCA and I have been tapering prednisone for 3 years. I am on my second attempt at tapering prednisone and just got to 4mg. Last year I actually got down to 3 mg but suffered a 4th and acute diverticulitis attack which was too much for my sputtering adrenals. While in the ER the PA didn’t
pmac22
in
PMRGCAuk
6 months ago
Hello - I'm new to all this.
Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg steroid dose alongside 2 x 500mg Naproxen, 1 dose 20mg Omeprazole, 4 daily doses of 2 x 500mg paracetamol plus 2 Adcal-D Calcium/vit D tablets. The pain is manageable now - I can get some sleep and the pain/stiffness in my shoulders
Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg steroid dose alongside 2 x 500mg Naproxen, 1 dose 20mg Omeprazole, 4 daily doses of 2 x 500mg paracetamol plus 2 Adcal-D Calcium/vit D tablets. The pain is manageable now - I can get some sleep and the pain/stiffness in my shoulders
Positive__
in
PMRGCAuk
6 months ago
Kerfufalmelodious
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
Kerfufalmelodious
in
PMRGCAuk
6 months ago
The end ??
This is more of a whinge than a question. I have been trying to reduce prednisone to 3.5mg for the last 4 months. I was diagnosed 4 years ago with PMR and GCA. I was happy enough with the one to two year burnout prediction from rhumatoligist. Yes I have read all your stories and realise it may never
This is more of a whinge than a question. I have been trying to reduce prednisone to 3.5mg for the last 4 months. I was diagnosed 4 years ago with PMR and GCA. I was happy enough with the one to two year burnout prediction from rhumatoligist. Yes I have read all your stories and realise it may never
Caloo650
in
PMRGCAuk
6 months ago
Temporal artery biopsy
Biopsy did not show positive result but I am told to continue tapering the prednisolone. How common is this?
Biopsy did not show positive result but I am told to continue tapering the prednisolone. How common is this?
Helliwelli12
in
PMRGCAuk
9 months ago
reducing Prednisolone
I have had PMR for eight years and for the last five, I have been on 3 mg of prednisolone. My GP was concerned that I had been on Pred for so long. My blood sugar is normal as is my DEXA scan, although it does show slight deterioration in my spine. However, it’s within the normal range. First rheumatologist
I have had PMR for eight years and for the last five, I have been on 3 mg of prednisolone. My GP was concerned that I had been on Pred for so long. My blood sugar is normal as is my DEXA scan, although it does show slight deterioration in my spine. However, it’s within the normal range. First rheumatologist
Bobbikins
in
PMRGCAuk
9 months ago
omega 3 Vitamin D3
I currently take 1280mg Omega3 with 2000mg D3 supplements daily is this good idea with PMR I’m presently on 7-1/2mg prednisone and tapering I dont eat fish. Also has anyone tried Omega 3 with Curcumin it’s supposed to help with inflammation I haven taken that yet just wondered if it’s good idea?
I currently take 1280mg Omega3 with 2000mg D3 supplements daily is this good idea with PMR I’m presently on 7-1/2mg prednisone and tapering I dont eat fish. Also has anyone tried Omega 3 with Curcumin it’s supposed to help with inflammation I haven taken that yet just wondered if it’s good idea?
Januzzi
in
PMRGCAuk
6 months ago
Collagen Supplements and Prednisolone
Someone has recommended Collagen supplements to help treat tennis elbow. Does anyone know if it’s safe to take with Pred (currently on 0.75mg)?
Someone has recommended Collagen supplements to help treat tennis elbow. Does anyone know if it’s safe to take with Pred (currently on 0.75mg)?
Dorothy61
in
PMRGCAuk
9 months ago
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