Korsuva

[Trower]

My husband on dialysis is still suffering from rash and severe itching for months. He has tried every creme, prednisone in high doses, oatmeal baths, etc...Nothing helps except ice packs for a short time.I read that the FDA approved the drug Korsuva for treatment of CKD-aP but I can't find with research and phone calls whether medicare will cover it. Dialysis center says no. Has anyone had any experience with this?

[sehaj]

I am a caregiver to my mil, who suffers from severe itching and has dialysis three days a week. FDA approved Korsuva after phase III of clinical trials. I have not seen any patient reviews on it. Most reviews are by the company itself or by the pharmaceutical companies. Reading the results from the published paper looks promising. Medicare and Medicaid cover it. It also depends on whether your dialysis agency has signed the contract to receive the medication.

I have been trying to get korsuva for last 3 months from the Davita center

Some patients get it there, but they tell me my mom's insurance does not have a contract with Korsuva. I have to change insurance or center to receive the treatment.

We had a conference call with the social worker and the doctor assigned, and they told us they couldn't do much about it.

Not finding actual patient reviews is frustrating, too. I don't want to rely on what the pharmacy is stating. I want actual patient reviews.

[Trower in reply to sehaj]

We are in Florida. Can you tell me what state your Davita was in?

[sehaj in reply to Trower]

Murrieta, LA (California )

[Trower in reply to sehaj]

Thank you. I called kidney advocate organization to see if they could help yesterday. Waiting for a response from them also. The itching is relentless. They are putting my husband on gabapentin next week to see if it helps. It works on the nerves. If it does, I will let you know.

[sehaj in reply to Trower]

My mil has been on gabapentin and it didn't help her. They also tried benadryl

[sehaj]

Apologies! The message was sent by accident. Benadryl was tried, too, but failed. UV light therapy has started last week. We are waiting to see the results. The dermatologist has tried 2 lotions, but they did not help with the itching.

Thank you so much.

[bumblebee_tuna]

Has he tried Gabapentin/Pregabalin for his pruritus?

[Trower in reply to bumblebee_tuna]

He is going on gabapentin next week.

[bumblebee_tuna in reply to Trower]

good! hopefully he gets some relief.

[Trower in reply to bumblebee_tuna]

Thank you

[PecanSandie]

Have you tried contacting the drug company directly? Sometimes drug companies have patient assistance programs.

[Trower in reply to PecanSandie]

I called the number I found but no one answered. I am still looking. Thank you.

[RhenDutchess123]

Do they need to increase his Dialysis Prescription?...He may not be getting rid of enough toxins...Or he may have an Allergy to the type of Dialysis he is on..or some food he is consuming..

[Trower in reply to RhenDutchess123]

All his labs are good and they have done biopsies and say it is not an allergy. He is there 3 days a week for 4+ hours . I hope it does not end up more...

[RhenDutchess123 in reply to Trower]

Do you have hard water that he showers in.....He could sponge wash with purified water after showering...that may help soothe and not irritate ...

[Rm61012180]

youtu.be/Prj9IatmcFs?si=jtS...(Not working as expected?)

[Trower in reply to Rm61012180]

His phosphorous has actually been low not high?

[JEanes55]

Could be allergic to dialyser. They can change it.

[Trower in reply to JEanes55]

What is dialyser? They had to take him off heparin because he developed anti bodies to it and his platelet count went way low.

[JEanes55]

The dialyser is the tube that the blood goes through.

[Trower in reply to JEanes55]

How would you know if he was allergic to the type they use?

[JEanes55]

With the problems you’re having

[Bewray]

I had something similar. Wouldn't go away. No matter what doctors tried. Finally, doctor ordered. BENEDRYL 25mg. I came home from hospital and continued benadryl. No more rash or itching. Hope this helps. Do check with your doctor first.

[Trower in reply to Bewray]

He has tried Benedryl over the counter and also Ceterizine but neither helped. Thank you.