Search
Search
About
Log in
Join
Experiences with
Mycophenolate
Posts
Communities
789 public posts
Filter results
Have just been commenced on mycophenolate for large cell arteritis has anyone found any side effects with drug also reducing prednisolone??
Hidden
in
Vasculitis UK
12 years ago
Keep getting really bad heads is it due to lowering steroids??
I've been taking
mycophenolate
mofetil now for 3 month this is about the fourth lot of meds I've tried due to side effects. Over the last 3 weeks I've lowered my steroids from 7mg to 3mg and I've started to have the worst headaches ever. Should I increase the steroids back up ??
I've been taking
mycophenolate
mofetil now for 3 month this is about the fourth lot of meds I've tried due to side effects. Over the last 3 weeks I've lowered my steroids from 7mg to 3mg and I've started to have the worst headaches ever. Should I increase the steroids back up ??
Geordie-chick
in
LUPUS UK
12 years ago
Mycophenolate and Eltrombopag
Hi, my daughter (who is 23) who was diagnosed in April last year with ITP and had a brain bleed in October 2012, has had flunctuating platelets ranging between 0 and 6, and has been on various treatments has now been put on to a combination of
mycophenolate
and eltrombopag ( as neither worked just by
Hi, my daughter (who is 23) who was diagnosed in April last year with ITP and had a brain bleed in October 2012, has had flunctuating platelets ranging between 0 and 6, and has been on various treatments has now been put on to a combination of
mycophenolate
and eltrombopag ( as neither worked just by
lindylou45
in
ITP Support Association
12 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Steroids???
Did start
mycophenolate
but that has been stopped at present. In the last few months I have been getting alot of palpatations, chest pain, and my bp is high only about 140/95,but my Bp always been about 100/60.
Did start
mycophenolate
but that has been stopped at present. In the last few months I have been getting alot of palpatations, chest pain, and my bp is high only about 140/95,but my Bp always been about 100/60.
ktaylor47
in
LUPUS UK
12 years ago
Sudden Weakness, Headache, stiff neck, grey skin - colour just gone from my face :-(
Hey there, I was hoping someone may be able to give me some advice or at least let me know if they have also suffered from the same symptoms that i describe below: I am getting used to recognising my lupus flares and have recently started
mycophenolate
and have been steadily increasing the dose
Hey there, I was hoping someone may be able to give me some advice or at least let me know if they have also suffered from the same symptoms that i describe below: I am getting used to recognising my lupus flares and have recently started
mycophenolate
and have been steadily increasing the dose
helsnz34
in
LUPUS UK
12 years ago
hands and feet spasming and having to use wheelchair whenever i go out - do i leave this until next app?
I have been on
mycophenolate
since may, it has helped considerably with the joint pain and swelling and am very thankful for that.
I have been on
mycophenolate
since may, it has helped considerably with the joint pain and swelling and am very thankful for that.
tiredmum
in
LUPUS UK
12 years ago
Is it safe to fly long-haul while on Mycophenolate? Hilary
Keymer71
in
Vasculitis UK
12 years ago
Found out why no referral - computer lost it!
That is in addition to a cocktail of Azathioprine,
Mycophenolate
Mofetil, Methotrexate, and many other drugs to cope with side-effects and symptoms from my cerebral vasculitis and the brain damage it causes.
That is in addition to a cocktail of Azathioprine,
Mycophenolate
Mofetil, Methotrexate, and many other drugs to cope with side-effects and symptoms from my cerebral vasculitis and the brain damage it causes.
vivdunstan
Volunteer
in
Vasculitis UK
12 years ago
Mycophenolate
I was put on
Mycophenolate
(Cellcept) 2 weeks ago How long did it take for anyone else to start to see real improvement in their conditions when they went on to this medication?
I was put on
Mycophenolate
(Cellcept) 2 weeks ago How long did it take for anyone else to start to see real improvement in their conditions when they went on to this medication?
Hidden
in
LUPUS UK
12 years ago
dall05
Exercise, prednisolne 20mg daily, and
mycophenolate
2grams daily, home and portable oxygen is what I am treated with. I've been told its not exactly COPD but I still do the weekly breath easy exercise class which has been brilliant.
Exercise, prednisolne 20mg daily, and
mycophenolate
2grams daily, home and portable oxygen is what I am treated with. I've been told its not exactly COPD but I still do the weekly breath easy exercise class which has been brilliant.
dall05
in
Lung Conditions Community Forum
12 years ago
morning all !!!
Well been on the
mycophenolate
for over 4 months now. introduced them slowly and so far no side effects thank goodness!! I have noticed an improvement in my join pain, However I have turned into a walking virus!!!!
Well been on the
mycophenolate
for over 4 months now. introduced them slowly and so far no side effects thank goodness!! I have noticed an improvement in my join pain, However I have turned into a walking virus!!!!
tiredmum
in
LUPUS UK
12 years ago
Steroids and hair loss?
It was suggested to me that it could be a side effect of
mycophenolate
or part of an auto immune process but I have realised now that everytime I have had one of these phases I have been tapering my steroid dose and each time the hairloss started once I had reached between the 10 - 7.5mg level.
It was suggested to me that it could be a side effect of
mycophenolate
or part of an auto immune process but I have realised now that everytime I have had one of these phases I have been tapering my steroid dose and each time the hairloss started once I had reached between the 10 - 7.5mg level.
Galaxy2
in
Vasculitis UK
12 years ago
What is EGID?
Some of those used are, Azathioprine,
Mycophenolate
Mofetil or MMF and 6MP Patients with an Eosinophilic condition commonly will have other allergic conditions such as, Asthma, Eczema, Hayfever, Rhinitis etc.
Some of those used are, Azathioprine,
Mycophenolate
Mofetil or MMF and 6MP Patients with an Eosinophilic condition commonly will have other allergic conditions such as, Asthma, Eczema, Hayfever, Rhinitis etc.
Hidden
FABED
in
FABED
12 years ago
What dose steroids do you manage on whilst taking mycophenolate?
A couple of months ago I started
mycophenolate
and my rheumy said that in time i should just manage on 10mg of steroid. I have been on 10mg for just over a week and I could cry.
A couple of months ago I started
mycophenolate
and my rheumy said that in time i should just manage on 10mg of steroid. I have been on 10mg for just over a week and I could cry.
tiredmum
in
LUPUS UK
12 years ago
Things Going on Upper Side
My Wife(30 years age) was Diaganosed with Lupus Nephriyus Class iv ,2 and a half years go , Innitially put on to Bonus IV Solution Solumedrol (3 doses Rcvd) ,
Mycophenolate
3gm ,Hydrochloroquin ,Prednesol 20mg, After 3 months she was having Rashes on all of her body , then she was given 2 doses of cyclophosphomide
My Wife(30 years age) was Diaganosed with Lupus Nephriyus Class iv ,2 and a half years go , Innitially put on to Bonus IV Solution Solumedrol (3 doses Rcvd) ,
Mycophenolate
3gm ,Hydrochloroquin ,Prednesol 20mg, After 3 months she was having Rashes on all of her body , then she was given 2 doses of cyclophosphomide
imran
in
LUPUS UK
12 years ago
Mycophenolate..HELP
Mycophenolate
, Cyclophosphamide and one other. Is this correct? And has anyone else found that
Mycophenolate
just made them worse? EG> Breathlessness, chest pains, bowel problems, rashes? Thanks for reading! xx
Mycophenolate
, Cyclophosphamide and one other. Is this correct? And has anyone else found that
Mycophenolate
just made them worse? EG> Breathlessness, chest pains, bowel problems, rashes? Thanks for reading! xx
AshtonRains
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
I'm turning into a dalmation!!!!!!!!
I also have been taking
mycophenolate
mofitil for the past month and my legs are covered in bruises for no reason. I only have a couple on the rest of my body but the bruises on my legs are appearing daily., has anybody experienced the same thing? :)
I also have been taking
mycophenolate
mofitil for the past month and my legs are covered in bruises for no reason. I only have a couple on the rest of my body but the bruises on my legs are appearing daily., has anybody experienced the same thing? :)
tiredmum
in
LUPUS UK
12 years ago
Changing from Azathiaprine to Mycophenolate
I've just changed over to
Mycophenolate
and was wondering what other people's experience was like? My Joint pains and muscle aches are my main symptoms which are getting worse along with the fatigue....
I've just changed over to
Mycophenolate
and was wondering what other people's experience was like? My Joint pains and muscle aches are my main symptoms which are getting worse along with the fatigue....
Prisca
in
LUPUS UK
12 years ago
Hia, I'm new to site and Behcet's. Been reading blogs. As it's been helpful I'm venturing a question! Anyone taken CellCept (Mycophenolate)?
I've had to increase steroids since taking
Mycophenolate
and also seen a resurgence of symptoms that had gone. I'd appreciate hearing anyone's experience please? Thanks.
I've had to increase steroids since taking
Mycophenolate
and also seen a resurgence of symptoms that had gone. I'd appreciate hearing anyone's experience please? Thanks.
Godles
in
Behçet's UK
12 years ago
Steroid tapering. Can anyone identify with these symptoms?
My doctor thinks the
mycophenolate
should be working and I should be able to be without steroids but I always suffer the same symptoms when I get to this point. I wonder if anyone has had similar problems, if so I would really appreciate your advice. Many Thanks Jenny
My doctor thinks the
mycophenolate
should be working and I should be able to be without steroids but I always suffer the same symptoms when I get to this point. I wonder if anyone has had similar problems, if so I would really appreciate your advice. Many Thanks Jenny
Galaxy2
in
Vasculitis UK
12 years ago
1
...
37
38
39
40
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
290 results
Vasculitis UK
104 results
Scleroderma & Raynaud's UK (SRUK)
92 results
View top 10 communities
Sort by
Most Relevant
Newest