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Experiences with
Mycophenolate
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Has anyone experienced a dry persistent cough?
I have been on
Mycophenolate
, Steriods and Plaquenil for the past 11 years. I saw a consultant in May 2012 and he ordered a chest X-ray. I see a rheumy once a year.
I have been on
Mycophenolate
, Steriods and Plaquenil for the past 11 years. I saw a consultant in May 2012 and he ordered a chest X-ray. I see a rheumy once a year.
eunidarling
in
LUPUS UK
11 years ago
Does anyone else have a very dry mouth on Mycophenolate?
I have been taking
Mycophenolate
since July last year and in the last few weeks my mouth has become uncomfortably dry. I read the side effects leaflet this morning and it does not site this as a side effect. I wonder if anyone else had experienced this? NickyD
I have been taking
Mycophenolate
since July last year and in the last few weeks my mouth has become uncomfortably dry. I read the side effects leaflet this morning and it does not site this as a side effect. I wonder if anyone else had experienced this? NickyD
NickyD
in
ITP Support Association
11 years ago
Consequences of stopping the immunosuppressants?
When I was suffering from a bad dose of campylobacter enteritis recently, my consultant advised me to stop taking
mycophenolate
mofetil. He did say to re start once I thought the infection had gone, which is now.
When I was suffering from a bad dose of campylobacter enteritis recently, my consultant advised me to stop taking
mycophenolate
mofetil. He did say to re start once I thought the infection had gone, which is now.
Ayla
Volunteer
in
Vasculitis UK
11 years ago
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Night Sweats and terrible Thirst
I do have other medical problems including vasculitis, connective tissue disease, raynauds, pituitary cyst, asthma, eczema and lots of allergy's I take 2grams
Mycophenolate
Mofetil , 8mg prednisolone and I am classed as being steroid defendant, Risodronate, vit D, folic acid, telfast 180, Tramadol SR
I do have other medical problems including vasculitis, connective tissue disease, raynauds, pituitary cyst, asthma, eczema and lots of allergy's I take 2grams
Mycophenolate
Mofetil , 8mg prednisolone and I am classed as being steroid defendant, Risodronate, vit D, folic acid, telfast 180, Tramadol SR
tracynoe
in
Vasculitis UK
11 years ago
Can Hyperthyroidism cause extreme thirst and severe night sweats?
I do have other medical problems including vasculitis, connective tissue disease, raynauds, pituitary cyst, asthma, eczema and lots of allergy's I take
Mycophenolate
Mofetil an immune suppressant for the vasculitis and connective tissue disease, 8mg prednisolone and I am classed as being steroid defendant
I do have other medical problems including vasculitis, connective tissue disease, raynauds, pituitary cyst, asthma, eczema and lots of allergy's I take
Mycophenolate
Mofetil an immune suppressant for the vasculitis and connective tissue disease, 8mg prednisolone and I am classed as being steroid defendant
tracynoe
in
Thyroid UK
11 years ago
Does anyone experience the side-effects associated with Tacrolimus and Mycophenolate?
ChrisKerrigan
in
British Liver Trust
11 years ago
Fungal infection on Finger and Toenails?
Mycophenolate
(2500mg daily) + 10mg Prednisolone or as a result of my immune system being suppressed by such medication. I will be raising this with my consultant on Friday and my GP tomorrow but any comments which suggest similar occurrences would be helpful.
Mycophenolate
(2500mg daily) + 10mg Prednisolone or as a result of my immune system being suppressed by such medication. I will be raising this with my consultant on Friday and my GP tomorrow but any comments which suggest similar occurrences would be helpful.
Albasain
in
Vasculitis UK
11 years ago
I have MPA I`ve realized that for some time, my nerves are not as good as they should be, by this I mean,
I know it seems a small thing, but I wonder if any one has had the same problem If It helps I`m on
MYCOPHENOLATE
ALFACALCIDOL LANSORAZOLE OLMETEC ATORVASTATIN and CALCIUM CARBONATE Thanks Tony
I know it seems a small thing, but I wonder if any one has had the same problem If It helps I`m on
MYCOPHENOLATE
ALFACALCIDOL LANSORAZOLE OLMETEC ATORVASTATIN and CALCIUM CARBONATE Thanks Tony
Tony-LakeDistrict
in
Vasculitis UK
11 years ago
Fluid retention and immunosuppressant drugs
I recently commenced taking
mycophenolate
mofetil (2 g daily) as a secondary agent to prednisolone with a view to improving the control of chronic hepatitis (autoimmune) and while it seems to be controlling the liver enzyme readings to normal or near normal parameters I have been experiencing some itching
I recently commenced taking
mycophenolate
mofetil (2 g daily) as a secondary agent to prednisolone with a view to improving the control of chronic hepatitis (autoimmune) and while it seems to be controlling the liver enzyme readings to normal or near normal parameters I have been experiencing some itching
findasolution
in
British Liver Trust
11 years ago
just wondering about mycophenolate mofetil
well, i was put on mmf about 9 months ago and due to apps being cancelled haven't seen a consultant since. since being on them i have lost over a stone in weight, i have got weaker, only managing to walk about 100m before needing a wheelchair and also can not cope with the heat, i have spent the
well, i was put on mmf about 9 months ago and due to apps being cancelled haven't seen a consultant since. since being on them i have lost over a stone in weight, i have got weaker, only managing to walk about 100m before needing a wheelchair and also can not cope with the heat, i have spent the
tiredmum
in
LUPUS UK
11 years ago
Listen to your body and trust your instincts! Ring your rheumy nurse.
I have asked a few questions recently about
mycophenolate
and how I was still struggling with my Lupus symptoms and that even though I am supposed to have appointments every three months with my consultant they got cancelled twice so it ended up being 8 months.
I have asked a few questions recently about
mycophenolate
and how I was still struggling with my Lupus symptoms and that even though I am supposed to have appointments every three months with my consultant they got cancelled twice so it ended up being 8 months.
tiredmum
in
LUPUS UK
11 years ago
I am wondering if Mycophenolate is making my acid reflux worse.
I have been taking
Mycophenolate
1500 mg a day for nearly 2 years. But recently I find that the meds I have taken for ages to control my gut problems (acid reflux, wind and stomach ache) don't seem to be controlling it any more.
I have been taking
Mycophenolate
1500 mg a day for nearly 2 years. But recently I find that the meds I have taken for ages to control my gut problems (acid reflux, wind and stomach ache) don't seem to be controlling it any more.
Jude65
in
LUPUS UK
11 years ago
An Inspirational Story...
She has had 2 children since she was diagnosed, she is going for a nose reconstruction operation next year, she had a tracheotomy in 1994, she started treatment for her Vasculitis before Cylophos,
Mycophenolate
, Methotrexate and Rituximab were available for treating Vasculitis. she was amazing....
She has had 2 children since she was diagnosed, she is going for a nose reconstruction operation next year, she had a tracheotomy in 1994, she started treatment for her Vasculitis before Cylophos,
Mycophenolate
, Methotrexate and Rituximab were available for treating Vasculitis. she was amazing....
John_Mills
Vasculitis UK
in
Vasculitis UK
11 years ago
Tink
I have has BD now for 8 years and have struggled over the last 12 months with continuing long term flare ups where I suffer in server pain can hardly walk sometimes suffer with server preanal and vulva and mouth ulcers, just started a new drug not liking it (
mycophenolate
). Just hope that work.
I have has BD now for 8 years and have struggled over the last 12 months with continuing long term flare ups where I suffer in server pain can hardly walk sometimes suffer with server preanal and vulva and mouth ulcers, just started a new drug not liking it (
mycophenolate
). Just hope that work.
tinkmbs
in
Behçet's UK
11 years ago
Reflux and heartburn
I take Pred 8mg
Mycophenolate
2grams risodronate once a week and lots of others meds which my GP thinks is not helping but as I have osteopenia not something I should stop taking unless it absolutely necessary Any help would be appreciated Thanks Tracy
I take Pred 8mg
Mycophenolate
2grams risodronate once a week and lots of others meds which my GP thinks is not helping but as I have osteopenia not something I should stop taking unless it absolutely necessary Any help would be appreciated Thanks Tracy
tracynoe
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
toxcillizumab
i have raynauds and diffuse systemic scleroderma i have tried chemo for 9 months and
mycophenolate
for 9 months only to be told that its getting worse so i have now started a clinical trial weekly injections of toxcillizumab or placebo it is 50 50 as to wether i am on tcz or placebo just want to know
i have raynauds and diffuse systemic scleroderma i have tried chemo for 9 months and
mycophenolate
for 9 months only to be told that its getting worse so i have now started a clinical trial weekly injections of toxcillizumab or placebo it is 50 50 as to wether i am on tcz or placebo just want to know
llindylou
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
When, if ever, do we begin medication withdrawal?
I have been on prednisolone and
mycophenolate
mofetil for 2 years now and was expecting some long withdrawal from one or both to begin this year as I have been symptom free for around 9 months.
I have been on prednisolone and
mycophenolate
mofetil for 2 years now and was expecting some long withdrawal from one or both to begin this year as I have been symptom free for around 9 months.
Ayla
Volunteer
in
Vasculitis UK
11 years ago
What does it feel like to be in SLE remission?
I have had a pred 40mg initially then reduced to 20mg and up and down to 15mg currently and 2000mg
Mycophenolate
, with Placquenil 400mg. My white cells are always on the high side and lymphocytes low, and low complements. ANA reduced from 1:640 to 0.1.
I have had a pred 40mg initially then reduced to 20mg and up and down to 15mg currently and 2000mg
Mycophenolate
, with Placquenil 400mg. My white cells are always on the high side and lymphocytes low, and low complements. ANA reduced from 1:640 to 0.1.
helsnz34
in
LUPUS UK
11 years ago
Mycophenolate vs Methotrexate
Just been diagnosed with CNS Lupus and the Neuro and Rheumy are debating which medication to use, They are favouring
Mycophenolate
. Anyone advise me from personal experience?
Just been diagnosed with CNS Lupus and the Neuro and Rheumy are debating which medication to use, They are favouring
Mycophenolate
. Anyone advise me from personal experience?
DaleDiva
in
LUPUS UK
12 years ago
Cyclophosphamide
Anyone taken Prednisone (60 mg) with cyclophosphamide (100 mg) for 6 months, then
mycophenolate
? I expect to lose my hair but wonder if it will return when I stop the prednisone and cyclo. and go on the
mycophenolate
? How bad were the side effects?
Anyone taken Prednisone (60 mg) with cyclophosphamide (100 mg) for 6 months, then
mycophenolate
? I expect to lose my hair but wonder if it will return when I stop the prednisone and cyclo. and go on the
mycophenolate
? How bad were the side effects?
Billpayer1958
in
LUPUS UK
12 years ago
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