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Mycophenolate
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toxcillizumab
i have raynauds and diffuse systemic scleroderma i have tried chemo for 9 months and
mycophenolate
for 9 months only to be told that its getting worse so i have now started a clinical trial weekly injections of toxcillizumab or placebo it is 50 50 as to wether i am on tcz or placebo just want to know
i have raynauds and diffuse systemic scleroderma i have tried chemo for 9 months and
mycophenolate
for 9 months only to be told that its getting worse so i have now started a clinical trial weekly injections of toxcillizumab or placebo it is 50 50 as to wether i am on tcz or placebo just want to know
llindylou
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
When, if ever, do we begin medication withdrawal?
I have been on prednisolone and
mycophenolate
mofetil for 2 years now and was expecting some long withdrawal from one or both to begin this year as I have been symptom free for around 9 months.
I have been on prednisolone and
mycophenolate
mofetil for 2 years now and was expecting some long withdrawal from one or both to begin this year as I have been symptom free for around 9 months.
Ayla
Volunteer
in
Vasculitis UK
11 years ago
What does it feel like to be in SLE remission?
I have had a pred 40mg initially then reduced to 20mg and up and down to 15mg currently and 2000mg
Mycophenolate
, with Placquenil 400mg. My white cells are always on the high side and lymphocytes low, and low complements. ANA reduced from 1:640 to 0.1.
I have had a pred 40mg initially then reduced to 20mg and up and down to 15mg currently and 2000mg
Mycophenolate
, with Placquenil 400mg. My white cells are always on the high side and lymphocytes low, and low complements. ANA reduced from 1:640 to 0.1.
helsnz34
in
LUPUS UK
11 years ago
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Mycophenolate vs Methotrexate
Just been diagnosed with CNS Lupus and the Neuro and Rheumy are debating which medication to use, They are favouring
Mycophenolate
. Anyone advise me from personal experience?
Just been diagnosed with CNS Lupus and the Neuro and Rheumy are debating which medication to use, They are favouring
Mycophenolate
. Anyone advise me from personal experience?
DaleDiva
in
LUPUS UK
11 years ago
Cyclophosphamide
Anyone taken Prednisone (60 mg) with cyclophosphamide (100 mg) for 6 months, then
mycophenolate
? I expect to lose my hair but wonder if it will return when I stop the prednisone and cyclo. and go on the
mycophenolate
? How bad were the side effects?
Anyone taken Prednisone (60 mg) with cyclophosphamide (100 mg) for 6 months, then
mycophenolate
? I expect to lose my hair but wonder if it will return when I stop the prednisone and cyclo. and go on the
mycophenolate
? How bad were the side effects?
Billpayer1958
in
LUPUS UK
11 years ago
Have just been commenced on mycophenolate for large cell arteritis has anyone found any side effects with drug also reducing prednisolone??
Hidden
in
Vasculitis UK
11 years ago
Keep getting really bad heads is it due to lowering steroids??
I've been taking
mycophenolate
mofetil now for 3 month this is about the fourth lot of meds I've tried due to side effects. Over the last 3 weeks I've lowered my steroids from 7mg to 3mg and I've started to have the worst headaches ever. Should I increase the steroids back up ??
I've been taking
mycophenolate
mofetil now for 3 month this is about the fourth lot of meds I've tried due to side effects. Over the last 3 weeks I've lowered my steroids from 7mg to 3mg and I've started to have the worst headaches ever. Should I increase the steroids back up ??
Geordie-chick
in
LUPUS UK
11 years ago
Mycophenolate and Eltrombopag
Hi, my daughter (who is 23) who was diagnosed in April last year with ITP and had a brain bleed in October 2012, has had flunctuating platelets ranging between 0 and 6, and has been on various treatments has now been put on to a combination of
mycophenolate
and eltrombopag ( as neither worked just by
Hi, my daughter (who is 23) who was diagnosed in April last year with ITP and had a brain bleed in October 2012, has had flunctuating platelets ranging between 0 and 6, and has been on various treatments has now been put on to a combination of
mycophenolate
and eltrombopag ( as neither worked just by
lindylou45
in
ITP Support Association
11 years ago
Steroids???
Did start
mycophenolate
but that has been stopped at present. In the last few months I have been getting alot of palpatations, chest pain, and my bp is high only about 140/95,but my Bp always been about 100/60.
Did start
mycophenolate
but that has been stopped at present. In the last few months I have been getting alot of palpatations, chest pain, and my bp is high only about 140/95,but my Bp always been about 100/60.
ktaylor47
in
LUPUS UK
11 years ago
Sudden Weakness, Headache, stiff neck, grey skin - colour just gone from my face :-(
Hey there, I was hoping someone may be able to give me some advice or at least let me know if they have also suffered from the same symptoms that i describe below: I am getting used to recognising my lupus flares and have recently started
mycophenolate
and have been steadily increasing the dose
Hey there, I was hoping someone may be able to give me some advice or at least let me know if they have also suffered from the same symptoms that i describe below: I am getting used to recognising my lupus flares and have recently started
mycophenolate
and have been steadily increasing the dose
helsnz34
in
LUPUS UK
11 years ago
hands and feet spasming and having to use wheelchair whenever i go out - do i leave this until next app?
I have been on
mycophenolate
since may, it has helped considerably with the joint pain and swelling and am very thankful for that.
I have been on
mycophenolate
since may, it has helped considerably with the joint pain and swelling and am very thankful for that.
tiredmum
in
LUPUS UK
11 years ago
Is it safe to fly long-haul while on Mycophenolate? Hilary
Keymer71
in
Vasculitis UK
11 years ago
Found out why no referral - computer lost it!
That is in addition to a cocktail of Azathioprine,
Mycophenolate
Mofetil, Methotrexate, and many other drugs to cope with side-effects and symptoms from my cerebral vasculitis and the brain damage it causes.
That is in addition to a cocktail of Azathioprine,
Mycophenolate
Mofetil, Methotrexate, and many other drugs to cope with side-effects and symptoms from my cerebral vasculitis and the brain damage it causes.
vivdunstan
Volunteer
in
Vasculitis UK
11 years ago
Mycophenolate
I was put on
Mycophenolate
(Cellcept) 2 weeks ago How long did it take for anyone else to start to see real improvement in their conditions when they went on to this medication?
I was put on
Mycophenolate
(Cellcept) 2 weeks ago How long did it take for anyone else to start to see real improvement in their conditions when they went on to this medication?
Hidden
in
LUPUS UK
11 years ago
dall05
Exercise, prednisolne 20mg daily, and
mycophenolate
2grams daily, home and portable oxygen is what I am treated with. I've been told its not exactly COPD but I still do the weekly breath easy exercise class which has been brilliant.
Exercise, prednisolne 20mg daily, and
mycophenolate
2grams daily, home and portable oxygen is what I am treated with. I've been told its not exactly COPD but I still do the weekly breath easy exercise class which has been brilliant.
dall05
in
Lung Conditions Community Forum
11 years ago
morning all !!!
Well been on the
mycophenolate
for over 4 months now. introduced them slowly and so far no side effects thank goodness!! I have noticed an improvement in my join pain, However I have turned into a walking virus!!!!
Well been on the
mycophenolate
for over 4 months now. introduced them slowly and so far no side effects thank goodness!! I have noticed an improvement in my join pain, However I have turned into a walking virus!!!!
tiredmum
in
LUPUS UK
12 years ago
Steroids and hair loss?
It was suggested to me that it could be a side effect of
mycophenolate
or part of an auto immune process but I have realised now that everytime I have had one of these phases I have been tapering my steroid dose and each time the hairloss started once I had reached between the 10 - 7.5mg level.
It was suggested to me that it could be a side effect of
mycophenolate
or part of an auto immune process but I have realised now that everytime I have had one of these phases I have been tapering my steroid dose and each time the hairloss started once I had reached between the 10 - 7.5mg level.
Galaxy2
in
Vasculitis UK
12 years ago
What is EGID?
Some of those used are, Azathioprine,
Mycophenolate
Mofetil or MMF and 6MP Patients with an Eosinophilic condition commonly will have other allergic conditions such as, Asthma, Eczema, Hayfever, Rhinitis etc.
Some of those used are, Azathioprine,
Mycophenolate
Mofetil or MMF and 6MP Patients with an Eosinophilic condition commonly will have other allergic conditions such as, Asthma, Eczema, Hayfever, Rhinitis etc.
Hidden
FABED
in
FABED
12 years ago
What dose steroids do you manage on whilst taking mycophenolate?
A couple of months ago I started
mycophenolate
and my rheumy said that in time i should just manage on 10mg of steroid. I have been on 10mg for just over a week and I could cry.
A couple of months ago I started
mycophenolate
and my rheumy said that in time i should just manage on 10mg of steroid. I have been on 10mg for just over a week and I could cry.
tiredmum
in
LUPUS UK
12 years ago
Things Going on Upper Side
My Wife(30 years age) was Diaganosed with Lupus Nephriyus Class iv ,2 and a half years go , Innitially put on to Bonus IV Solution Solumedrol (3 doses Rcvd) ,
Mycophenolate
3gm ,Hydrochloroquin ,Prednesol 20mg, After 3 months she was having Rashes on all of her body , then she was given 2 doses of cyclophosphomide
My Wife(30 years age) was Diaganosed with Lupus Nephriyus Class iv ,2 and a half years go , Innitially put on to Bonus IV Solution Solumedrol (3 doses Rcvd) ,
Mycophenolate
3gm ,Hydrochloroquin ,Prednesol 20mg, After 3 months she was having Rashes on all of her body , then she was given 2 doses of cyclophosphomide
imran
in
LUPUS UK
12 years ago
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