I have come to the conclusion that I need to take a minimum 20mg prednisilone to feel human.
A couple of months ago I started mycophenolate and my rheumy said that in time i should just manage on 10mg of steroid.
I have been on 10mg for just over a week and I could cry. Admittedly my joint pain isn't as bad as normal, but there is still protein in my urine, my chest hurts , I have a sore throat and I am so exhausted its untrue.
I asked my GP today if I could increase my steroids back up, his answer contact your specialist, I can't interfere with their plan!
I am not sure whether to just plod on until my next appointment in october or just to increase my steroids back up. I don't warrant an SOS app with the rheumy nurse, so was just wondering what dose everybody else copes on.