I have had 3 quite severe phases of hairloss over the last year or so, and not been able to work out what the pattern was. It was suggested to me that it could be a side effect of mycophenolate or part of an auto immune process but I have realised now that everytime I have had one of these phases I have been tapering my steroid dose and each time the hairloss started once I had reached between the 10 - 7.5mg level. The previous two times my symptoms returned at the 7.5mg stage and I had to go up to 20mg and both times the hair loss stopped. However this time I am on 7mg and feeling ok and so tapering more successfully but my hair is falling out. I am sure it has something to do with tapering and I know 7.5mg is around the equivalent level of cortisol that we naturally produce so wonder if it has something to do with that?
Has anyone else experienced this? I know things could be much worse and it may sound trivial in the bigger picture but I'm finding it a little upsetting.