has anyone had mycophenolate suggested as a medication after a course of steroids to do with immflamation/sjogrens disease. x
mycophenolate: has anyone had... - Fibromyalgia Acti...
mycophenolate
have a look at - arthritisresearchuk.org/art...
Yes i was prescribed for Lupus for some years.
my rheumatologist diagnosed me with lupus for a start and was given hydroxychloroquine after a month of steroids. steroids were amazing but hydro made me feel worse. I don't get rashes but intense sensitivity to smells, noise and light/sunlight. I pressure very easily and moods up and down like a yoyo. I can hardly do anything as my body soon aches and feel like jelly/lead weighted arms and legs. list goes on. I have a lot of soreness on my back and sometimes my face, feels a bit like sunburn. sorry for ranting . I waffle a lot and words come out wrong. forgetful, clumsy and hands shake when I write anything down also making my wrist ache which I used to suffer with carpal tunnel. xxx
I had very bad side effects with Methorextate and hydroxychloroquine. Only mycophenolate was not that bad.
Hi!
Yes, I was on Mycofenalate Mofetil 1g twice daily for 4 years together with steroids to control very severe difficult asthma. It was the ONLY med that controlled my severe asthma attacks!
Only thing was, it’s highly toxic, with loads of nasty side effects. When MEPOLIZUMAB injection became available last year, I was slowly weaned off the Mycofenalate but if it hadn’t been for that, I would not be here now, cos the steroids alone couldn’t control the severe asthma.
Give it a go.. it’s worth a try!..
Good luck!
Rose
ok but I think he is thinking about putting me on it for either suspected inconclusive results for sjogrens. xx