Hi everyone, I was diagnosed with aortitis in Dec 2015 and have been taking prednisolone and mycophenolate for this. My consultant wants me to think about possibly starting cyclophosphamide, as my inflammatory markers have stuck for some time now at around 10-13 and I still feel exhausted etc. I didnt realise that mycophenolate was the strongest immunosuppressant, as informed by my consultant. I was unable to tolerate 1.5g twice daily due to constant diarrhoea, so ive been taking 1.5g in morning and 1g at night.Ive been tapering my pred for some time now and currently am taking 2.5mg a day. Im quite worried about having what is effectively chemo, in particular, the side effects. Has anyone here had cyclophosphamide and seen good results? Also, i would like to ask if anyone has had side effects and what happens as regards further treatment, if the cyclophosphamide works.
Aortitis, now might have to start cyclophosp... - Vasculitis UK
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