Hi all, not been on here for a long time as first I was diagnosed with lupus last February but now it's been confirmed I have fibromialgia. I have also been tested for sjogrens and had a lip biopsy which came back inconclusive bit not ruled out. on steroid trial for 2 months which they changed my mood and a bit less discomfort for about a week. I started on 20ml for 2 weeks tapering 5 ml a fortnight. down to 10ml now. I was told by rheumy to keep a pain diary and if the steroids helped that he would put me on mycophenolate which I don't like the sound of with the side effects. I am just wondering if it could be both lupus and fibromialgia. I have a lot of burning/soreness on my back, a lot of aching, dry mouth and sensitivity to light, noise and smells. I get really stressed with worry as I am not on any medication that really helps with any of my symptoms. I have chronic fatigue and even daylight I am finding I am screwing my eyes up first thing in the morning to focus. list goes on and on. just thought I would ask in here for any feedback as driving myself mad.
lupus or/and fibromialgia?: Hi all, not been on... - LUPUS UK
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