Experiences with

Multiple system atrophy (MSA)

Just had the letter from the hospital last week which says "I worrying about his condition being the result of a multiple system atrophy ..." Made the mistake of looking at Dr Google now unsure what to think

https://www.medscape.com/viewarticle/early-promise-vaccine-parkinsons-and-multiple-system-atrophy-2024a1000im2?ecd=wnl_sci_tech_241016_MSCPEDIT_etid6906963&uac=415290AR&impID=6906963

A differential diagnosis deeper dive has convinced me my PD is really MSA (Multiple System Atrophy) - anyone else?

SC044535) Multiple System Atrophy Trust 128B Business Design Centre, 52 Upper Street, London, Greater London N1 0QH

The Faces and Voices Campaign at CCF is more than just a collection of tales; it's a beacon of hope and a call to action for those affected by atypical Parkinsonism, including conditions like PSP (Progressive Supranuclear Palsy), MSA (Multiple System Atrophy), CBD (Corticobasal Degeneration) and DLB

All the best, James Grogan Support Services Coordinator Multiple System Atrophy Trust

An experimental vaccine UB-312 shows early promise in Parkinson's disease (PD) and multiple system atrophy (MSA), results of a phase 1b study suggest.

hey. I’m nearly 2 months post laparoscopy + official diagnosis; have had the hormonal coil fitted during my op and my skin and hormones have been mental. I’ve been having random nights where I just cannot sleep, no matter how tired I am, or seemingly not very anxious, I just can’t sleep. I just lie

Hi guys! I would really appreciate some advice. I gave birth in January 2024. I know he’s my last baby so I wanted to get on a form of contraception that is long lasting that I do not have to think about. I was going back and forth between the hormonal coil and the copper coil. I had read that the copper

hey ! I had the merina coil put in during my Endo laparoscopy 6 weeks ago. I'm about to start my second period, like clockwork, since the op. The pain is so bad ! I need a little hope and reassurance that this will slowly stop ? I thought the hormonal coil was meant to stop the pain, but it’s just like

Hello ! I had my surgery + diagnosis just over two weeks ago now. I had the hormonal coil put in during my surgery as a ‘helpful measure of controlling the endo’ as obvs no cure yet. I was due on my period today, but wasn’t actually expecting it to start ? Is this normal for the hormonal coil ? I

I now have a friend with MSA [Multiple System Atrophy] who's legs are so heavy and stubborn now and which I am finding increasingly difficult to lift into my car once we have her bottom in. She always laughs when I mention lifting tree trunks and it eases the situation.

i Have been diagnosed with MSA and although marrired my husband gives little suppor i also cannot speak and it takes so long to anything.what to do?

Hello, one of our members in our group has been diagnosed with both Scleroderma and Multiple Sclerosis. Is there anyone out there who also has this dire combination who she can chat with? Thank you Heather

Last weekend I finally had my laparoscopy on the NHS and received my diagnosis and treatment, I couldn’t have been happier. Please read my story here and get in touch if you want any advice: https://www.instagram.com/p/CzUKTp4tkwb/?igshid=anZzcWtpdjNuZmN3 But now I have been left feeling lost, my

August 7,2024 article from Scitechdaily.com Breakthrough Parkinson’s Treatment Enters Human Trials After Primate Success TOPICS:BrainNeuroscienceParkinson's DiseaseUniversity Of Wisconsin-Madison By UNIVERSITY OF WISCONSIN-MADISON AUGUST 7, 2024 A clinical trial has begun to offer a new treatment

Hi all ,Had my hip arthroscopy last week successfully and recovering well from it. What amazing leg range I have now compared to what I did not have before. I struggled to go on our static bike before and now I can sit on there with our any issues and bike so fluidly. The combination of my hip surgery

Allogenic hematopoietic stem cell transplantation is a potentially curative treatment for advanced polycythemia vera (PV). This procedure involves replacing defective stem cells with healthy ones from a donor. It's considered a last resort when other treatments have been ineffective, or if the

[i]For those of us trying to keep up with or in need of an update on the many CLL treatment developments of the past year, this MedPage Today summary is an excellent resource to do so. It has numerous links to the various developments noted within the article, so use the link to the full article at the

From Medscape - More reason to eat fiber. Might possibly help with stem cell transplants and could even help with regard to myeloma… here’s link. https://www.medscape.com/viewarticle/high-fiber-diet-linked-improved-stem-cell-transplant-gvhd-2024a1000mm2?ecd=WNL_conf_onc_ASH-SPON_241209_MSCPEDIT_etid7068946&