Experiences with

Multiple system atrophy (MSA)

Just had the letter from the hospital last week which says "I worrying about his condition being the result of a multiple system atrophy ..." Made the mistake of looking at Dr Google now unsure what to think

https://www.medscape.com/viewarticle/early-promise-vaccine-parkinsons-and-multiple-system-atrophy-2024a1000im2?ecd=wnl_sci_tech_241016_MSCPEDIT_etid6906963&uac=415290AR&impID=6906963

A differential diagnosis deeper dive has convinced me my PD is really MSA (Multiple System Atrophy) - anyone else?

All the best, James Grogan Support Services Coordinator Multiple System Atrophy Trust

An experimental vaccine UB-312 shows early promise in Parkinson's disease (PD) and multiple system atrophy (MSA), results of a phase 1b study suggest.

hey. I’m nearly 2 months post laparoscopy + official diagnosis; have had the hormonal coil fitted during my op and my skin and hormones have been mental. I’ve been having random nights where I just cannot sleep, no matter how tired I am, or seemingly not very anxious, I just can’t sleep. I just lie

Hi guys! I would really appreciate some advice. I gave birth in January 2024. I know he’s my last baby so I wanted to get on a form of contraception that is long lasting that I do not have to think about. I was going back and forth between the hormonal coil and the copper coil. I had read that the copper

I now have a friend with MSA [Multiple System Atrophy] who's legs are so heavy and stubborn now and which I am finding increasingly difficult to lift into my car once we have her bottom in. She always laughs when I mention lifting tree trunks and it eases the situation.

hey ! I had the merina coil put in during my Endo laparoscopy 6 weeks ago. I'm about to start my second period, like clockwork, since the op. The pain is so bad ! I need a little hope and reassurance that this will slowly stop ? I thought the hormonal coil was meant to stop the pain, but it’s just like

Hello ! I had my surgery + diagnosis just over two weeks ago now. I had the hormonal coil put in during my surgery as a ‘helpful measure of controlling the endo’ as obvs no cure yet. I was due on my period today, but wasn’t actually expecting it to start ? Is this normal for the hormonal coil ? I

i Have been diagnosed with MSA and although marrired my husband gives little suppor i also cannot speak and it takes so long to anything.what to do?

Hello, one of our members in our group has been diagnosed with both Scleroderma and Multiple Sclerosis. Is there anyone out there who also has this dire combination who she can chat with? Thank you Heather

Last weekend I finally had my laparoscopy on the NHS and received my diagnosis and treatment, I couldn’t have been happier. Please read my story here and get in touch if you want any advice: https://www.instagram.com/p/CzUKTp4tkwb/?igshid=anZzcWtpdjNuZmN3 But now I have been left feeling lost, my

August 7,2024 article from Scitechdaily.com Breakthrough Parkinson’s Treatment Enters Human Trials After Primate Success TOPICS:BrainNeuroscienceParkinson's DiseaseUniversity Of Wisconsin-Madison By UNIVERSITY OF WISCONSIN-MADISON AUGUST 7, 2024 A clinical trial has begun to offer a new treatment

I've got a long and varied CLL history. Long story made short for those not familiar, I was diagnosed in 2013 in my own lab when I was working as a NHS healthcare scientist in Haematology. I am. 11q del and rapidly enlarging nodes meant I started treatment with Ibrutinib in October 2015. Six years

this is the email i Got, what do you think Hello, Thank you for your interest in Biostar’s stem cell therapy for Parkinson’s disease. The treatment is recommended for patients with early to mild stages. The cell dose for treatment will be determined on the patient’s stage of the disease. This will

will be needed a stem cell transplant after my third round for Flagida Chemotherapy. Has anyone had similar?

Hey all. I don't know if I'm asking a question or just venting so bare with me.Brief history- 31yr old female. Diagnosed Jak2+ ET start of this year but going by bloodwork, I have had it since 2019. Had a BMB in the summer which showed "mild fibrosis" and "hypercellular marrow" but diagnosis remained

It’s been awhile for an update, here is the latest. I’m at Day plus 127 from my Bone Marrow Transplant. I saw my doctor (main specialist) on day+119. This was after a BMBiopsy +105 and colonoscopy +109! Those results revealed the great and not so good! There’s no sign of cancer in my BoneMarrow, and

Hello! This is my first post. Since my teen years, I know I've had some repetitive movements of my fingers, ticks/twitches of my eyebrows and face, and counting even and odd numbers, often imagining doing so on my front teeth (sounds a bit odd, but that's what it is!) It was manageable and possibly annoying