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Experiences with
Methylenetetrahydrofolate reductase (MTHFR) deficiency
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Any help? My doctors are useless
Had a blood test done two days ago and my hematocrit is 55% my hematocrit of 44% is classed as high my haemoglobin is 168 and the optimal range is 155 (high end)alongside my liver and calcium levels and my ferritin has dropped again to 26. My TSH was 2.90 optimal range of 0.25-4.90. My white blood cells
Had a blood test done two days ago and my hematocrit is 55% my hematocrit of 44% is classed as high my haemoglobin is 168 and the optimal range is 155 (high end)alongside my liver and calcium levels and my ferritin has dropped again to 26. My TSH was 2.90 optimal range of 0.25-4.90. My white blood cells
Soxakita
in
Thyroid UK
7 months ago
Help with test results - haemochromatosis with iron deficiency?
A few years ago I regularly had blood tests which showed high iron levels so my doc suspected Haemochromatosis. I had the genetic testing which showed I had the gene mutation. I used to get blood drawn to treat it and bring down my iron levels. However, recently I had blood tests which showed low ferritin
A few years ago I regularly had blood tests which showed high iron levels so my doc suspected Haemochromatosis. I had the genetic testing which showed I had the gene mutation. I used to get blood drawn to treat it and bring down my iron levels. However, recently I had blood tests which showed low ferritin
tnefeh
in
Pernicious Anaemia Society
7 months ago
blue fingers when in hot bath??
Has anyone else had this? It happen to my toes when I was in the shower the other day too. I don’t know if it’s Raynauds or my low ferritin/anemia or what. About to go for a colonoscopy this week for the anemia and a high positive FIT test but I can’t see it being linked to that.
Has anyone else had this? It happen to my toes when I was in the shower the other day too. I don’t know if it’s Raynauds or my low ferritin/anemia or what. About to go for a colonoscopy this week for the anemia and a high positive FIT test but I can’t see it being linked to that.
Newfylady
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
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Advice needed on iron levels (plus an update on Targinact)
Hi everyone, I posted recently asking for advice about Targinact, which I started taking on 10 January. I had such an extreme and horrible reaction that I stopped taking it 15 days later. Given my dose was only 5/2.5mg daily, I haven't had any withdrawal issues other than feeling very tired and depressed
Hi everyone, I posted recently asking for advice about Targinact, which I started taking on 10 January. I had such an extreme and horrible reaction that I stopped taking it 15 days later. Given my dose was only 5/2.5mg daily, I haven't had any withdrawal issues other than feeling very tired and depressed
Claire_lc
in
Restless Legs Syndrome
7 months ago
My low ferritin saga continues
Following on from my post a few weeks ago https://healthunlocked.com/thyroiduk/posts/150411438/low-ferritin-again - apologies for not posting results etc but ended up dealing with bit of a family crisis and then the GP surgery rang saying a doc wanted to discuss my blood results of mid-November! I've
Following on from my post a few weeks ago https://healthunlocked.com/thyroiduk/posts/150411438/low-ferritin-again - apologies for not posting results etc but ended up dealing with bit of a family crisis and then the GP surgery rang saying a doc wanted to discuss my blood results of mid-November! I've
Rollercoaster44
in
Thyroid UK
7 months ago
Low iron
I have an iron count of between 29 and 33 from 2021 to now on a range of 11-360. For the last six months I've been taking a supplement to boost the serum iron level and the level has dropped from 33 to 31. I think I'm anaemic for symptomatic reasons. I SI EOD and have done for a year. My health is beginning
I have an iron count of between 29 and 33 from 2021 to now on a range of 11-360. For the last six months I've been taking a supplement to boost the serum iron level and the level has dropped from 33 to 31. I think I'm anaemic for symptomatic reasons. I SI EOD and have done for a year. My health is beginning
Orchard33
in
Pernicious Anaemia Society
7 months ago
any advice 🙏🏽
Report Mybirthday1975 profile imageMybirthday1975Sheila_G 1 hour ago Hi I’m new here I have RA I’m (stero positive)I’m having flare after flare in so sick of feeling poorly with it and so tired.I feel like it’s stole my life away from me,I can’t plan as I don’t know how I will feel I’m so fed up.I
Report Mybirthday1975 profile imageMybirthday1975Sheila_G 1 hour ago Hi I’m new here I have RA I’m (stero positive)I’m having flare after flare in so sick of feeling poorly with it and so tired.I feel like it’s stole my life away from me,I can’t plan as I don’t know how I will feel I’m so fed up.I
Mybirthday1975
in
NRAS
7 months ago
Spinal stenosis & b12 deficiency
Hi, Have just been diagnosed with severe spinal stenosis. I have reasons to believe it has a congenital aspect with me so that would eliminate b12 deficiency. But in reading I found some correlation studies with b12 deficiency. I thought that b12 deficiency only caused issues with degeneration of
Hi, Have just been diagnosed with severe spinal stenosis. I have reasons to believe it has a congenital aspect with me so that would eliminate b12 deficiency. But in reading I found some correlation studies with b12 deficiency. I thought that b12 deficiency only caused issues with degeneration of
Litatamon
in
Pernicious Anaemia Society
7 months ago
Low ferritin again
Unsurprisingly my ferritin has fallen back to the very bottom of the range yet again after i ceased iron supplements back in march. Raised a call with the surgery this morning and within 6 minutes of raising the call online it had been closed by the enhanced care practitioner as saying no action required
Unsurprisingly my ferritin has fallen back to the very bottom of the range yet again after i ceased iron supplements back in march. Raised a call with the surgery this morning and within 6 minutes of raising the call online it had been closed by the enhanced care practitioner as saying no action required
Rollercoaster44
in
Thyroid UK
7 months ago
Iron Deficiency and Iron Deficiency Anemia: Potential Risk Factors in Bone Loss
Members are likely all too familiar with patients being told that they are suffering osteopenia or osteoporosis due to having too much thyroid hormone. And, especially, too much T3. While it is important to realise that there is a case to be made regarding excess thyroid hormone, it is just as important
Members are likely all too familiar with patients being told that they are suffering osteopenia or osteoporosis due to having too much thyroid hormone. And, especially, too much T3. While it is important to realise that there is a case to be made regarding excess thyroid hormone, it is just as important
helvella
Thyroid UK
in
Thyroid UK
7 months ago
Ferritin levels decreased despite iron supplement
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Amtired
in
Thyroid UK
7 months ago
Iron study results help please
HiI had a ferritin test in November and posted my results here and got some help. My result then was low at 10.2ug/l I have since persuaded the doctor to do further tests for iron. Unfortunately she did not repeat ferritin but did an iron study results as follows Serum iron level 19 umol/L [9.0 - 30.4
HiI had a ferritin test in November and posted my results here and got some help. My result then was low at 10.2ug/l I have since persuaded the doctor to do further tests for iron. Unfortunately she did not repeat ferritin but did an iron study results as follows Serum iron level 19 umol/L [9.0 - 30.4
Cn13
in
Thyroid UK
7 months ago
Serum Ferritin levels
I had a blood test last week and my serum ferritin level is 24 ug/L. It says the normal range is 10 to 291. As I have restless legs is this level ok or should I be taking iron tablets? It doesn’t mention my transferrin saturation numbers. Maybe if I call in at the doctors I could ask if they have
I had a blood test last week and my serum ferritin level is 24 ug/L. It says the normal range is 10 to 291. As I have restless legs is this level ok or should I be taking iron tablets? It doesn’t mention my transferrin saturation numbers. Maybe if I call in at the doctors I could ask if they have
Dibbydog
in
Restless Legs Syndrome
7 months ago
Update re: Total Confusion about Ferritin (Medichecks) Results!
As promised to Seaside Susie, and 6 months later, please see below response I've had from Medichecks. I'm just sad it didn't come in time for Seaside Susie to see that they had eventually listened to us! It is an improvement on the previous reference range for over 60yrs females but it raises more questions
As promised to Seaside Susie, and 6 months later, please see below response I've had from Medichecks. I'm just sad it didn't come in time for Seaside Susie to see that they had eventually listened to us! It is an improvement on the previous reference range for over 60yrs females but it raises more questions
Jazz80
in
Thyroid UK
7 months ago
low iron and folate
My hypo daughter is clearly feeling tired. She leads a very busy life but from own hypo past experience I can see she is going downhill. Here are some of the results she received back in August when she was advised to take Spatone. At that time she had been taking iron tablets but had stopped because
My hypo daughter is clearly feeling tired. She leads a very busy life but from own hypo past experience I can see she is going downhill. Here are some of the results she received back in August when she was advised to take Spatone. At that time she had been taking iron tablets but had stopped because
mstp
in
Thyroid UK
8 months ago
pregabalin and iron
Hello, I have tried googling if there is any interaction between pregabalin and iron but can’t find anything. I take an iron tablet due to low iron (morning and it has not helped) but will switch to iron bisglycinate at night after reading posts here. I stop eating at 6:30pm so I can take my pregabalin
Hello, I have tried googling if there is any interaction between pregabalin and iron but can’t find anything. I take an iron tablet due to low iron (morning and it has not helped) but will switch to iron bisglycinate at night after reading posts here. I stop eating at 6:30pm so I can take my pregabalin
e365
in
Restless Legs Syndrome
8 months ago
My profile
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
BillCapita
in
PMRGCAuk
8 months ago
Escape from Augmentation
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
davchar23
in
Restless Legs Syndrome
8 months ago
Tirosint
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
Da52
in
Thyroid UK
8 months ago
what is Transferrin and why is mine low?
Merry Xmas everyone i had a recent full iron panel & blood count done. Everything is ok/in range but my transferrin is low. any idea what it is and it should be the ONLY thing that’s out of range for me? thank you
Merry Xmas everyone i had a recent full iron panel & blood count done. Everything is ok/in range but my transferrin is low. any idea what it is and it should be the ONLY thing that’s out of range for me? thank you
PixieElv
in
Thyroid UK
8 months ago
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