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Experiences with
Methylenetetrahydrofolate reductase (MTHFR) deficiency
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Bloods Results
These where printed out for me as requested, any advice most welcome 🌸 Was taking teva levo 75mcg, thybon henning t3 10mcg, prior to these results. Now taking 5mcg three times a day. Supplement vit D with k2, mk7 and magnesium glycinate
These where printed out for me as requested, any advice most welcome 🌸 Was taking teva levo 75mcg, thybon henning t3 10mcg, prior to these results. Now taking 5mcg three times a day. Supplement vit D with k2, mk7 and magnesium glycinate
Geegee777
in
Thyroid UK
1 year ago
Iron and B12 deficiency
Had a massive realisation after getting a diagnosis of ME and not feeling like it fit/refusing to accept it. As we all are, I'm just trying to piece together this puzzle as GPS dont seem to bother Now realise I have chronically low FERRITIN. Doctors only look at the serum iron (similar to how they
Had a massive realisation after getting a diagnosis of ME and not feeling like it fit/refusing to accept it. As we all are, I'm just trying to piece together this puzzle as GPS dont seem to bother Now realise I have chronically low FERRITIN. Doctors only look at the serum iron (similar to how they
Hidden
in
Pernicious Anaemia Society
1 year ago
help please, migraine meds
does anyone know if migraleve is contra-indicated with T3? I know I'm OK with T4 but: paracetamol, codeine phosphate & buclizine hydrochloride, anyone? @helvella ? sorry to tag just can't find info
does anyone know if migraleve is contra-indicated with T3? I know I'm OK with T4 but: paracetamol, codeine phosphate & buclizine hydrochloride, anyone? @helvella ? sorry to tag just can't find info
turquoisea7
in
Thyroid UK
1 year ago
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Iron Levels with CLL
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
susq9948
in
CLL Support
1 year ago
Low Ferritin and iron supplements & Iron Panel interpretation
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Watamu
in
Thyroid UK
1 year ago
parietal cell antibody lab results
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
Purplegirl2
in
Pernicious Anaemia Society
1 year ago
Advice on iron test results please
Having had a history of low ferritin and been prescribed iron tablets, I thought I’d do a test to see if I actually needed them. Surprisingly, my ferritin level has improved but is still not optimal to support my thyroid. Should I take the iron supplements?
Having had a history of low ferritin and been prescribed iron tablets, I thought I’d do a test to see if I actually needed them. Surprisingly, my ferritin level has improved but is still not optimal to support my thyroid. Should I take the iron supplements?
Pastelart
in
Thyroid UK
1 year ago
USA Iron Infusion billing code E83.1
I finally got an iron infusion approved for tomorrow. The doc put request in for anemia but I got the correct billing code from the RLS Foundation:E83.1 Disorder of iron metabolism, unspecified. Excludes1: iron deficiency anemia/ sideroblastic anemia E83 Excludes1: dietary mineral deficiency/ parathyroid
I finally got an iron infusion approved for tomorrow. The doc put request in for anemia but I got the correct billing code from the RLS Foundation:E83.1 Disorder of iron metabolism, unspecified. Excludes1: iron deficiency anemia/ sideroblastic anemia E83 Excludes1: dietary mineral deficiency/ parathyroid
SkyCop
in
Restless Legs Syndrome
1 year ago
Ferritin
Hi everyone,Firstly thank you for all the fantastic advice on this forum. I've got a Serum Ferritin level of 308ng/ml (my GP was concerned that this was a bit too high), Transferrin Saturation of 31% but a Serum Transferrin level of 2.3g/L. Please can you give me your thoughts on this & am I looking
Hi everyone,Firstly thank you for all the fantastic advice on this forum. I've got a Serum Ferritin level of 308ng/ml (my GP was concerned that this was a bit too high), Transferrin Saturation of 31% but a Serum Transferrin level of 2.3g/L. Please can you give me your thoughts on this & am I looking
blades10
in
Restless Legs Syndrome
1 year ago
Anaemia test results
Hi all, I recently did the 'Full health screen' from Monitor My Health and all the vitamin results have come back without proper ranges. Only the graphs. Which is irritating. BUT Would you supplement iron with these results? I can't afford to do a full iron panel, and I had assumed this test would
Hi all, I recently did the 'Full health screen' from Monitor My Health and all the vitamin results have come back without proper ranges. Only the graphs. Which is irritating. BUT Would you supplement iron with these results? I can't afford to do a full iron panel, and I had assumed this test would
Hidden
in
Thyroid UK
1 year ago
Iron results-any advice?
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Penicookie
in
Thyroid UK
1 year ago
Low MCHC
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
davidgrush
in
CLL Support
1 year ago
ALC is still going up
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Moonmyst
in
CLL Support
1 year ago
Brain iron vs Blood iron
Has anyone read that in RLS patients brain iron can be lower than indicated by blood measurements? I read a study out of Quebec about the gene we carry causing a malformation in the brain that makes it harder to uptake the iron.... So blood levels are not accurate in showing brain anemia. My RLS totally
Has anyone read that in RLS patients brain iron can be lower than indicated by blood measurements? I read a study out of Quebec about the gene we carry causing a malformation in the brain that makes it harder to uptake the iron.... So blood levels are not accurate in showing brain anemia. My RLS totally
SkyCop
in
Restless Legs Syndrome
1 year ago
Vit B and Ferritin levels
So had my FBC, Vit B and "iron" tests yesterday. Turns out they only tested Ferritin for iron, but I've got a full anaemia panel with MMH to complete this morning for a full picture. Now to play the waiting game and see what the GP decides to tell me 🙄 Edit: had a text from my surgery to let me know
So had my FBC, Vit B and "iron" tests yesterday. Turns out they only tested Ferritin for iron, but I've got a full anaemia panel with MMH to complete this morning for a full picture. Now to play the waiting game and see what the GP decides to tell me 🙄 Edit: had a text from my surgery to let me know
dizzyarmadillo
in
Thyroid UK
1 year ago
Slightly raised ferritin, any advice please
Iron 31.0 (5.8-34.5)TIBC 51.3 (45-81) UIBC 20.6 (24.2-70.1) Transferring saturation 60.6 (20-50) Ferritin 203 (13-150) Crp 4.15 (0-5) Can I ask your advice please? As advised on here a few months ago I rechecked my iron levels in December, hoping to have some reason for continuing ectopic heartbeats.
Iron 31.0 (5.8-34.5)TIBC 51.3 (45-81) UIBC 20.6 (24.2-70.1) Transferring saturation 60.6 (20-50) Ferritin 203 (13-150) Crp 4.15 (0-5) Can I ask your advice please? As advised on here a few months ago I rechecked my iron levels in December, hoping to have some reason for continuing ectopic heartbeats.
Baggiesfan
in
Thyroid UK
1 year ago
iron related help
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
Racheeeel78
in
Thyroid UK
1 year ago
blood test results help! Haemoglobin, RBC low but iron in range?
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
Racheeeel78
in
Pernicious Anaemia Society
1 year ago
High Dose Niacin (Nicotinic Acid) and Hashimoto's?
Update 01/22/2023: I just learned there is an increased risk of diabetes on niacin therapy: https://heart.bmj.com/content/102/3/198 This study was based on people taking Niacin for cardiovascular reasons, which I think would be dosed at 500 to 6000 mg a day: https://www.mayoclinic.org/drugs-supplements
Update 01/22/2023: I just learned there is an increased risk of diabetes on niacin therapy: https://heart.bmj.com/content/102/3/198 This study was based on people taking Niacin for cardiovascular reasons, which I think would be dosed at 500 to 6000 mg a day: https://www.mayoclinic.org/drugs-supplements
Bolt_Upright
in
Thyroid UK
1 year ago
DX 5 years on Dec 26th. What I’ve learned about my PD. Please Read! It might be helpful.
Most of all,
MTHFR
which is said to be a b2
deficiency
.
MTHFR
struggles with removing toxins. They cannot convert folic acid to folate. It actually blocks the pathway. This is VITAL!!! Your folate levels will show fine but it’s not working well.Your most likely borderline anemic.
Most of all,
MTHFR
which is said to be a b2
deficiency
.
MTHFR
struggles with removing toxins. They cannot convert folic acid to folate. It actually blocks the pathway. This is VITAL!!! Your folate levels will show fine but it’s not working well.Your most likely borderline anemic.
38yroldmale
in
Cure Parkinson's
4 months ago
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