Experiences with

Methylenetetrahydrofolate reductase (MTHFR) deficiency

About 4 weeks ago I had an appointment at the Barberry Centre, Birmingham and was prescribed Targinact 2.5mg tablets and am taking 1 tablet at 10.00 pm daily which has eliminated all night time RLS. 😆 Instructions from Consultant are “to reduce pregabalin to target dose of 250/300mg. Concurrently, gradually

Good morning from Belgium.. Could anyone look at my iron results and tell me what i should focus on? 🤓 🩷 I eat meat daily, but I do have heavy periods. Iron: 53 (50-170) Transferrine : 2.37 (2-3.60) iron saturation: 18 (15-50) ferritine: 75 (15-150)

I have an iron saturation level of 17. I saw someone post here that if it is under 20 an infusion is appropriate. Where is the “under 20” guideline from? If it is from a reliable source, I would like to show it to my doctor. She advised me to take oral iron - which I do - but did not order the transfusion

These are my iron blood test results Ferritin 72 ug/L Range: 15 - 300 ug/L Transferrin saturation % 8.3 % Range: 20 - 50 % transferrin 2.4 g/L Range: 2 - 4 g/L Iron 5 umol/L Range: 10 - 30 umol/L mean cell heamoglobin 28.3 pg Range: 27 - 33 pg Heamoglobin 142 g/L Range: 115 - 165

Hi everyone, hope you’re all well. I just wanted to ask about a blood test result I got today to see if anyone could give me some advice please? My index saturation of transferrin was at 11% while the normal test range is 25% to 50%. So I’m well below the range here. I’ve been feeling a bit odd recently

Saw the neurologist yesterday, 6 months since first appointment when he put me on ferrous sulphate 200mg x 2 which I’ve been taking at night with vitamin C. Whilst my symptoms have improved (38 to 24 on the RLS UK rating scale) this is most probably due to other changes I’ve made (dietary, will do a

Hello Sue and anyone who may have experience weaning off of Pregabalin. I was on 300 mg for 3 months with great results and then much less effective. I went from 300 mg to 450 mg over a 4 week period and now it is effective about 50% of the time. Never bad symptoms and 10-15 minutes of stretching and

Hello people, I’ve had decades of RLS. As of, also, decades ago I’ve been regularly diagnosed with iron deficient anemia. When it gets bad I notice because the RLS becomes unbearable and I take iron for a while. In the past 3 months or so I’ve maybe taken half of one small iron supplement bottle;

Hello to everyone. I'm sorry I've been off the forum for so long but really don't have much to add to the constant wonderful advice given here. My RLS is still very bad every day in arms and legs (always scoring 39/40 on the RLS rating scale) despite taking Temgesic (buprenorphine) and gabapentin

I have just got my blood results back after my annual check up (taken in an afternoon). I stopped supplements 3 days prior: Serum T4 17.2 (range 11.5-22.7) Serum TSH 0.09 (range 0.55-4.78) Serum ALT 45 (range 0-34) Serum ALL 175 (30-130) Haemoglobin 124 (range 118-158) RBC 4.16 (range 3.85-5.20) Haematocrit

Hi, Just wondered if other PA sufferers still get electric shock sensations even though your having the injection? I went for years having these sensations and kept trying to explain them to the Doctor, their only response was it was anxiety, I couldn't get them to understand that I new it wasn't. I

Hello everyone. Does and one have elevated hematocrit and hemoglobin serum levels after taking pregabalin?

Hi Everyone Can anyone help me with my Iron blood tests results please. I am taking 200mg Ferrous Sulphate once a week as prescribed by my Doctor. I was originally on it daily but my dose has been gradually reduced over the course of the last year or so. I haven’t spoken to the Doctor about my results

Hi all, I have recently had blood tests done in Ireland and I'm not sure how to interpret the results, input would be greatly appreciated.Iron: 19.7 Transferrin: 2.1 TF Saturation: 37.5 Ferritin: 479 Thanks

Ref. my posts last month, the augmentation has now settled down and I’m intending to start weaning off pramipexole. However, a new iron levels check has shown my serum ferritin level to be very low (12). I’m now taking iron sulphide, 3 x 200mg tabs / day - hope that will build levels up! Question

July 2024 my husband went through a detox in hospital. He became seriously ill suffering from Delirium Tremens. He has end stage liver disease - has stopped drinking. Cut a long story short he is always extremely cold even with a hot water bottle he is so cold to touch. His skin on his face has

Hi just wondered if I could get some help with my test results. To put this in context I have been feeling exhausted for the last couple of months. I've recently started doing some weight training - I've been easing in gently with 1-3 sessions a week at only 30 mins long. However I've been finding myself

Iron Bind.Cap.(TIBC) 328 range 250-450 / ug/dL Final 01 UIBC 233 range 111-343 / ug/dL Final 01 Iron 95 range 38-169 / ug/dL Final 01 Iron Saturation 29 do I need to supplement?

Posted last week. I am due to have vascular surgery in a few weeks - lost the ability to walk - major blockages in both groins. Lo and behold, the GP now wants to see me regarding thyroid levels. I am nearly 72 now! I have been taking thyroid-S for years - no problems, but I think I would like to try

I have found this information helpful and take my ferrous sulphate every other day now. [i]Efficacy of daily versus intermittent oral iron supplementation for prevention of anaemia among pregnant women: a systematic review and meta-analysis[/i] https://www.thelancet.com/journals/eclinm/article