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Methylenetetrahydrofolate reductase (MTHFR) deficiency
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Xarasho
I am Suffering from severe RLS and I’ve tried everything from vitamins to CBT OIL, 5 HTP Hydroxytry.. , nothing works, the only thing helps is the agnostic dopamine drugs which is for Parkinson disease, it has really bad side effects , please someone help me and be. genuine!!!
I am Suffering from severe RLS and I’ve tried everything from vitamins to CBT OIL, 5 HTP Hydroxytry.. , nothing works, the only thing helps is the agnostic dopamine drugs which is for Parkinson disease, it has really bad side effects , please someone help me and be. genuine!!!
Xarasho
in
Restless Legs Syndrome
4 years ago
Paramedic views on B12 deficiency
I recently had to call out a paramedic. I had been tired and a bit breathless and generally unwell for several days and then developed other more concerning symptoms (didn't have co-vid19 as no cough or temperature). My call to 111 service for advice resulted in the arrival of an ambulance. When the
I recently had to call out a paramedic. I had been tired and a bit breathless and generally unwell for several days and then developed other more concerning symptoms (didn't have co-vid19 as no cough or temperature). My call to 111 service for advice resulted in the arrival of an ambulance. When the
carer999
in
Pernicious Anaemia Society
4 years ago
Low iron levels
Have been prescribed ferrous fumarate as my iron levels are low which may be causing my breathlessness. I have had ECG and xray etc and they are ok. Wondered if anyone else has had this problem and how long these tablets take to work.
Have been prescribed ferrous fumarate as my iron levels are low which may be causing my breathlessness. I have had ECG and xray etc and they are ok. Wondered if anyone else has had this problem and how long these tablets take to work.
Gilly100
in
Asthma Community Forum
4 years ago
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Blood test advice, specifically Iron
I am currently on 100mcg of thyroxine, but have been struggling over the last year with tiredness and dizziness, dry skin, hair loss. I did a private test last year (I will attach more pics in the comments), this identified low vit D and folate and also low ferritin. I took this to my GP who advised
I am currently on 100mcg of thyroxine, but have been struggling over the last year with tiredness and dizziness, dry skin, hair loss. I did a private test last year (I will attach more pics in the comments), this identified low vit D and folate and also low ferritin. I took this to my GP who advised
Ejsmith
in
Thyroid UK
4 years ago
b12 injection query
ACTIVE B12 49.8 37.5 - 187.5 Recent bloods showed my iron stores good on the upper end of the scale. My folate was 10 in January and I have been supplementing since My Active B12 is just in range. If I inject B12 will it make my iron too high or does it not affect iron. I get shortness of breath
ACTIVE B12 49.8 37.5 - 187.5 Recent bloods showed my iron stores good on the upper end of the scale. My folate was 10 in January and I have been supplementing since My Active B12 is just in range. If I inject B12 will it make my iron too high or does it not affect iron. I get shortness of breath
ninja1
in
Pernicious Anaemia Society
4 years ago
!!!"Iron deficiency anemia/ B12 deficiency cause heart palpations/flutters?
Desperately seeking reassurance, advice etc. I've had on and off heart palpations and ectopic beats since I lost a lot of blood during child birth 7 years ago. That's when it all started. I've had all the checks but my heart is structurally fine. The doctor thinks because my iron is very low this
Desperately seeking reassurance, advice etc. I've had on and off heart palpations and ectopic beats since I lost a lot of blood during child birth 7 years ago. That's when it all started. I've had all the checks but my heart is structurally fine. The doctor thinks because my iron is very low this
Lilianxious
in
Pernicious Anaemia Society
4 years ago
Parkinsons Disease and B12 deficiency
Hi All, Saw this link on a recent thread and thought I'd draw attention to it. https://parkinsonsnewstoday.com/2020/03/27/possible-link-between-vitamin-b12-and-dementia-in-parkinsons-disease/ I had both dementia symptoms and tremors when at my worst and suspect that sometimes people are misdiagnosed
Hi All, Saw this link on a recent thread and thought I'd draw attention to it. https://parkinsonsnewstoday.com/2020/03/27/possible-link-between-vitamin-b12-and-dementia-in-parkinsons-disease/ I had both dementia symptoms and tremors when at my worst and suspect that sometimes people are misdiagnosed
Sleepybunny
in
Pernicious Anaemia Society
4 years ago
What helped my ferritin - hopefully helps someone :)
Hey there, I've decided to share some good news! I have tried everything to increase my ferritin, it was always a bit low in range. I have tested in September 2019 and it was 52 (13-150) which is about 28% of range. I was already happy with it because previously it had been even lower. I went for tests
Hey there, I've decided to share some good news! I have tried everything to increase my ferritin, it was always a bit low in range. I have tested in September 2019 and it was 52 (13-150) which is about 28% of range. I was already happy with it because previously it had been even lower. I went for tests
Hidden
in
Thyroid UK
4 years ago
What do my new levels mean? Been taking levo for six weeks. Many thanks.
Good evening! Please can I have some advice on my levels? Have included previous blood levels below. Many thanks!!!!! FYI Have been taking Levo 50mcg since 4 feb 2020 Have had a ferritin deficiency for a long time and have been taking ferrous sulphate for seven months. 2x200 a day. Indeed my ferritin
Good evening! Please can I have some advice on my levels? Have included previous blood levels below. Many thanks!!!!! FYI Have been taking Levo 50mcg since 4 feb 2020 Have had a ferritin deficiency for a long time and have been taking ferrous sulphate for seven months. 2x200 a day. Indeed my ferritin
Flashgirl
in
Thyroid UK
4 years ago
Are these iron results ok?
Range wasn't given Transferrin 2.3 Transferrin saturation % 19 Iron 11 (theres a * next to it but doc didn't bring it up as a problem) Ferritin 51 BTW TSH currently 1.29 and FT4 13 on 50ug levo but this was a random test I wasn't expecting. I will be doing early morning with T3 next week
Range wasn't given Transferrin 2.3 Transferrin saturation % 19 Iron 11 (theres a * next to it but doc didn't bring it up as a problem) Ferritin 51 BTW TSH currently 1.29 and FT4 13 on 50ug levo but this was a random test I wasn't expecting. I will be doing early morning with T3 next week
agyk
in
Thyroid UK
4 years ago
Ferritin v Haeomoglobin
Evening all I noticed on a previous post a reference to Ferritin tests, I dont think I have ever seen this test on my exhaustive list! Is it the same test as checking your HB to see if your anaemic or is it something else (Dr. dreaded Google says) to do with ' a protein in the body that contains iron
Evening all I noticed on a previous post a reference to Ferritin tests, I dont think I have ever seen this test on my exhaustive list! Is it the same test as checking your HB to see if your anaemic or is it something else (Dr. dreaded Google says) to do with ' a protein in the body that contains iron
LHR007
in
British Liver Trust
4 years ago
NHS website - Blood tests for iron deficiency anaemia
Just happened to notice this paragraph when I was checking something else entirely.
[i]Blood tests for iron deficiency anaemia[/i]
[i]Your GP will usually order a full blood count (FBC) test. This will find out if the number of red blood cells you have (your red blood cell count) is normal
Just happened to notice this paragraph when I was checking something else entirely.
[i]Blood tests for iron deficiency anaemia[/i]
[i]Your GP will usually order a full blood count (FBC) test. This will find out if the number of red blood cells you have (your red blood cell count) is normal
helvella
in
Pernicious Anaemia Society
4 years ago
Best Iron Supplement to up Iron & Ferritin levels
Hi My Iron and Ferritin are always on the low side. Recently my iron was 13, 3 months before it was 8 and ferritin never seems to go above 30. I am currently on 1 ferrous fumarate daily 210mg, but this never seems to increase levels higher. I can't tolerate two a day as I get a very bad stomach. I have
Hi My Iron and Ferritin are always on the low side. Recently my iron was 13, 3 months before it was 8 and ferritin never seems to go above 30. I am currently on 1 ferrous fumarate daily 210mg, but this never seems to increase levels higher. I can't tolerate two a day as I get a very bad stomach. I have
mistygrey
in
Pernicious Anaemia Society
5 years ago
Can you help with iron panel blood test please
Ferritin. 67. Range 30-470 RBC. 3.7. 3.80-5.30 Haemoglobin 117. 120-150 Haematacrit 0.36. 0.37-0.45 I had been told in the past it was anaemia of a chronic illness. But with my ferritin level where it is surely I could improve this with some treatment. (
Ferritin. 67. Range 30-470 RBC. 3.7. 3.80-5.30 Haemoglobin 117. 120-150 Haematacrit 0.36. 0.37-0.45 I had been told in the past it was anaemia of a chronic illness. But with my ferritin level where it is surely I could improve this with some treatment. (
Gcart
in
Thyroid UK
5 years ago
Are iron injections available privately or via the Nhs in the UK
Hi, gp's and hospital Dr's have stated iron injections are no longer available in the UK. Wondered if this is true for private? I believe i may need them as i have previously been diagnosed as iron deficient. However ferritin levels high at the time of diagnoses. I suffered brain fog, exhaustion and
Hi, gp's and hospital Dr's have stated iron injections are no longer available in the UK. Wondered if this is true for private? I believe i may need them as i have previously been diagnosed as iron deficient. However ferritin levels high at the time of diagnoses. I suffered brain fog, exhaustion and
Karen154
in
Thyroid UK
5 years ago
Ferrous Sulfate
So I finally got my blood results. Dr hadn’t added transferrin saturation to the test but I managed to get the nurse to add it when I went in for the bloods. Ferritin 91 Transferrin saturation 19.9 Now on 400mg of iron daily & a referral to movement clinic. Are there likely to be options to help me get
So I finally got my blood results. Dr hadn’t added transferrin saturation to the test but I managed to get the nurse to add it when I went in for the bloods. Ferritin 91 Transferrin saturation 19.9 Now on 400mg of iron daily & a referral to movement clinic. Are there likely to be options to help me get
nosleep1969
in
Restless Legs Syndrome
5 years ago
Dangers of b12
I read this on web MD - is it correct? Vitamin B12 is LIKELY SAFE for most people when taken by mouth, applied to the skin, taken through the nose, administered as a shot, or injected into the vein (by IV). Vitamin B12 is considered safe, even in large doses. Mild itching has been reported in one person
I read this on web MD - is it correct? Vitamin B12 is LIKELY SAFE for most people when taken by mouth, applied to the skin, taken through the nose, administered as a shot, or injected into the vein (by IV). Vitamin B12 is considered safe, even in large doses. Mild itching has been reported in one person
Alfabeta
in
Pernicious Anaemia Society
5 years ago
Feraheme / new acceptable ferritin levels
FERAHEME: is definitely good/new recommendation on iron ferritin for RLS Dr. B's response. On Wed, Jan 22, 2020 at 9:59 PM <somno@verizon.net> wrote: The community of truly good RLS doctors is very small and we all know each other fairly well. MY Dr. *** is an excellent RLS doctor and his advice and
FERAHEME: is definitely good/new recommendation on iron ferritin for RLS Dr. B's response. On Wed, Jan 22, 2020 at 9:59 PM <somno@verizon.net> wrote: The community of truly good RLS doctors is very small and we all know each other fairly well. MY Dr. *** is an excellent RLS doctor and his advice and
tinabuglaw
in
Restless Legs Syndrome
5 years ago
Anyone on Gazyva and Venetaklax combo?
My husband got off Imbruvica to switch to Gazyva and Venetaklax combo as Imbruv stopped working and he got anemia as hemoglobin was very low 7.1. Then he had to get 2 blood transfusions within 10 days and hemog is now a 9. Has anyone experienced low neutriphils, platelts, and hemoglobin while on Gazyva
My husband got off Imbruvica to switch to Gazyva and Venetaklax combo as Imbruv stopped working and he got anemia as hemoglobin was very low 7.1. Then he had to get 2 blood transfusions within 10 days and hemog is now a 9. Has anyone experienced low neutriphils, platelts, and hemoglobin while on Gazyva
Anavadya
in
CLL Support
5 years ago
Too much iron causing hypo symptoms?
I've realized that, anytime I happen to eat red meat or take an iron supplement, I rapidly start feeling cold, lethargic and in a depressive mood (exactly how I feel when I am hypo) that lasts for a couple days. It seems like the extra iron interferes someway with my hormones. I take my levo in the morning
I've realized that, anytime I happen to eat red meat or take an iron supplement, I rapidly start feeling cold, lethargic and in a depressive mood (exactly how I feel when I am hypo) that lasts for a couple days. It seems like the extra iron interferes someway with my hormones. I take my levo in the morning
1366acul
in
Thyroid UK
5 years ago
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