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Just Venting
I went to see my oncologist this morning. I live in a city and go to locally well known cancer clinic associated with an research hospital. I was there for a three month check in and blood work as I have been stable on AI and Ibance for the past year. The last six weeks had been rough, due to a cold
I went to see my oncologist this morning. I live in a city and go to locally well known cancer clinic associated with an research hospital. I was there for a three month check in and blood work as I have been stable on AI and Ibance for the past year. The last six weeks had been rough, due to a cold
Suite1000
in
My Breast Cancer Community
2 months ago
Hi all I'm newbie. Anyone here have lung damage due to Amiodarone treatment?
Rather than going into too much detail I will keep it brief. Was prescribed Amiodarone for AFib and took it for a total of four months six days. After being on it for 3 months I started coughing mostly while asleep. Also started to get really bad pain in left lung lobe that was much worse if I lay on
Rather than going into too much detail I will keep it brief. Was prescribed Amiodarone for AFib and took it for a total of four months six days. After being on it for 3 months I started coughing mostly while asleep. Also started to get really bad pain in left lung lobe that was much worse if I lay on
DizzyD
in
Lung Conditions Community Forum
7 months ago
Overcoming anxiety about going out
Since I started on immunotherapy in January, I've had a few setbacks. I've had episodes of really bad pain - diverticulitis, I've had to have fluid drained from my lung and around my heart - both made me feel very unwell. I now have atrial fibrilation which seems to be a side issue of lung cancer
Since I started on immunotherapy in January, I've had a few setbacks. I've had episodes of really bad pain - diverticulitis, I've had to have fluid drained from my lung and around my heart - both made me feel very unwell. I now have atrial fibrilation which seems to be a side issue of lung cancer
Gingergus
in
The Roy Castle Lung Cancer Foundation
2 months ago
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Benapali and developing eczema
Has anyone else noticed that their skin on face and scalp has areas of flaky skin, especially at the edges of your hairline behind ears and on scalp. I bought E45 eczema cream but it doesn’t seem to work ? Any advice welcome 🙏
Has anyone else noticed that their skin on face and scalp has areas of flaky skin, especially at the edges of your hairline behind ears and on scalp. I bought E45 eczema cream but it doesn’t seem to work ? Any advice welcome 🙏
Gjbrose
in
NRAS
2 months ago
internal shingles
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
Mongoose123
in
PMRGCAuk
7 months ago
Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
2 months ago
Pluvicto patient
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
Reltubs
in
Advanced Prostate Cancer
2 months ago
PALB2 Stage 4 A prostate cancer treatment plan.
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
SherryKahn
in
Advanced Prostate Cancer
2 months ago
Rituximab- cold- flu - covid
Good day everyone I’m 8 weeks into my Rtx infusion and was exposed to someone who had one of the above. I’m literally …. bricks. Any thoughts please? Thank you
Good day everyone I’m 8 weeks into my Rtx infusion and was exposed to someone who had one of the above. I’m literally …. bricks. Any thoughts please? Thank you
ks1966
in
NRAS
3 months ago
Anyone have withdrawal symptoms when dropping a treatment?
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
Elle713
in
SHARE Metastatic Breast Cancer
2 months ago
Ethanol Ablation
Hi, I'm wondering if anyone has experienced Ethanol Ablation on thyroid lobe? The last post I can find was 2yrs ago. I guess it must be more in use now. My husband was scheduled for right lobe removal operation next Thursday then received a letter from his Consultant yesterday saying that on checking
Hi, I'm wondering if anyone has experienced Ethanol Ablation on thyroid lobe? The last post I can find was 2yrs ago. I guess it must be more in use now. My husband was scheduled for right lobe removal operation next Thursday then received a letter from his Consultant yesterday saying that on checking
Maggiesmum
in
Thyroid UK
2 months ago
Piqray/alpelesib. Oncologists. And various.
Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say I’ve been told, as of last Friday, I’m doing well on Piqray/Alpelesib and Fulvestrant. (Denocumab/Xgeva monthly) For any of you wondering how this regime is. For me it is going quite well but I must say, I have lost a lot
Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say I’ve been told, as of last Friday, I’m doing well on Piqray/Alpelesib and Fulvestrant. (Denocumab/Xgeva monthly) For any of you wondering how this regime is. For me it is going quite well but I must say, I have lost a lot
Timtam56
in
SHARE Metastatic Breast Cancer
2 months ago
chest infection
I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a chest infection for 2 weeks. It is definitely better this week than last week and the guaifenesin I have taken has helped. I do not feel unwell
I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a chest infection for 2 weeks. It is definitely better this week than last week and the guaifenesin I have taken has helped. I do not feel unwell
kalgoorlie
in
PMRGCAuk
3 months ago
help determining stage
as many people are interested in the cancer stage, I would like to be answer them. I'm 63 Gleason 4+4 8 mri biopsy (Trans pireneal) 25 cores 12 positive 75% psma pet scan shows spread to exterior iliac lymph nodes is this stage IV, as all the literature appears to suggest it is. hopfully there is
as many people are interested in the cancer stage, I would like to be answer them. I'm 63 Gleason 4+4 8 mri biopsy (Trans pireneal) 25 cores 12 positive 75% psma pet scan shows spread to exterior iliac lymph nodes is this stage IV, as all the literature appears to suggest it is. hopfully there is
blackchurch
in
Advanced Prostate Cancer
2 months ago
My diagnosis after 6 years, Lymphoma EMZL, AL Amyloidosis and Myeloma
Hi everyone, It's been some time since I updated my situation after having been told my Lung nodules had grown. I had a lung wedge resection last year July after a biopsy which was terrible. I had infections a couple of times after the surgery. That is when I received the devastating news about my diagnosis
Hi everyone, It's been some time since I updated my situation after having been told my Lung nodules had grown. I had a lung wedge resection last year July after a biopsy which was terrible. I had infections a couple of times after the surgery. That is when I received the devastating news about my diagnosis
Pipido36
in
The Roy Castle Lung Cancer Foundation
2 months ago
Op update
hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in today for the appointment to plan the chemo and the Registrar said that actually when the MDT had later reviewed the op they’d noticed microscopic
hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in today for the appointment to plan the chemo and the Registrar said that actually when the MDT had later reviewed the op they’d noticed microscopic
georgiageorgia182
in
My Ovacome
2 months ago
Slapped Cheek Disease
My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of Pred a day for PMR. Is it ok to be in contact with her. Thank you. Jenny
My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of Pred a day for PMR. Is it ok to be in contact with her. Thank you. Jenny
Attic
in
PMRGCAuk
3 months ago
Why do MO have one stop Zytiga and Prednisone during Cabazitaxel And Carboplatin treatment for pca Adenocarcinoma liver Mets?
I should have asked. But, we asked so many questions, plus hoping for a more detailed answer
I should have asked. But, we asked so many questions, plus hoping for a more detailed answer
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
Cancer sufferer T3 below range, T4 50%, TSH 1.6 advice
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Sleepman
in
Thyroid UK
6 months ago
Jak2 question and PV question (have medical anxiety so nervous)
Hey everyone sorry for such a long message. I'm a 28M and have had consistent high RBC, HGB, HCT counts for about 8 years now. The numbers though are ever so slightly elevated and range from (5.9-6.1 RBC), (16.7-17.2HGB),and(49-50.4 HCT) during those 8 years they each either went up or down and did NOT
Hey everyone sorry for such a long message. I'm a 28M and have had consistent high RBC, HGB, HCT counts for about 8 years now. The numbers though are ever so slightly elevated and range from (5.9-6.1 RBC), (16.7-17.2HGB),and(49-50.4 HCT) during those 8 years they each either went up or down and did NOT
HockeyFan47
in
MPN Voice
2 months ago
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