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Recurrent meningitis
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
SunflowerGirl
in
Meningitis Now
5 months ago
Covid Strikes Again!
I had my second bout of covid just last week. However this time I was mentally ready. My immune systems in tip top shape with the now very healthy diet I eat, full of vitamins and minerals that my body needs. It was mild, with me having a mild temperature for a day and a runny nose for a week. One
I had my second bout of covid just last week. However this time I was mentally ready. My immune systems in tip top shape with the now very healthy diet I eat, full of vitamins and minerals that my body needs. It was mild, with me having a mild temperature for a day and a runny nose for a week. One
natswright
in
Lung Conditions Community Forum
6 months ago
Home at last!
After 2 months (!) in hospital I finally got home on Friday. My hands were very stiff one day, the next I couldn't move them at all. That was very scary. They decided I had a virus, which took a week to get over, then I caught another - I had high temperature and a very phlegmy chest. They also put
After 2 months (!) in hospital I finally got home on Friday. My hands were very stiff one day, the next I couldn't move them at all. That was very scary. They decided I had a virus, which took a week to get over, then I caught another - I had high temperature and a very phlegmy chest. They also put
Kit10
in
My MSAA Community
6 months ago
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Covid and Uk free tests
Hi I have Covid again after being negative from the first bout 3 weeks again! Haven’t been anywhere so don’t know how its reared its head again, waiting on Respiratory Team to contact me again. In the UK we can get free tests with CLL, anyone got the free ones from the Chemist and what do we need to
Hi I have Covid again after being negative from the first bout 3 weeks again! Haven’t been anywhere so don’t know how its reared its head again, waiting on Respiratory Team to contact me again. In the UK we can get free tests with CLL, anyone got the free ones from the Chemist and what do we need to
uide3095
in
CLL Support
6 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
COVID survivors may be at a greater risk of developing Parkinson’s–like symptoms, researchers warn. What to know to protect your health
COVID survivors may be at a greater risk of developing Parkinson’s disease–like symptoms, researchers warn. What you need to know to protect your health
https://finance.yahoo.com/news/covid-survivors-may-greater-risk-170451040.html "The virus was able to infect cells from all the aforementioned
COVID survivors may be at a greater risk of developing Parkinson’s disease–like symptoms, researchers warn. What you need to know to protect your health
https://finance.yahoo.com/news/covid-survivors-may-greater-risk-170451040.html "The virus was able to infect cells from all the aforementioned
Bolt_Upright
in
Cure Parkinson's
6 months ago
Will neurological long Covid develop into something else?
Will neurological long Covid develop into something else? Answered by Dr. Yusuf Saleeby https://youtu.be/951d6M5eQDI?si=fWUxD6zBClLhwwUn
Will neurological long Covid develop into something else? Answered by Dr. Yusuf Saleeby https://youtu.be/951d6M5eQDI?si=fWUxD6zBClLhwwUn
Shewulf
Administrator
in
LDN Research Trust
6 months ago
Itching Ears post Microsuction
I paid for ear microsuction at a chemist on September 28th costing £60. The process was quite painful but I was very relieved at the time to have the wax successfully removed. My ears were very compacted and I returned after a week for a follow-up. They said I had a further fall of old black wax from
I paid for ear microsuction at a chemist on September 28th costing £60. The process was quite painful but I was very relieved at the time to have the wax successfully removed. My ears were very compacted and I returned after a week for a follow-up. They said I had a further fall of old black wax from
LC1963
in
Tinnitus UK
7 months ago
Tired Tavern - Discord community for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
TiredTavern
in
Myalgic Encephalomyelitis Community
6 months ago
Lagevrio
Having escaped Covid over the last few years, I did a test yesterday as I felt fluey and coldy. It was positive. I have had seven vaccinations! Couldn't believe it! Was convinced it was a false positive. Anyway, went to the emergency oncology service, was retested and confirmed I had Covid and Rhinovirus
Having escaped Covid over the last few years, I did a test yesterday as I felt fluey and coldy. It was positive. I have had seven vaccinations! Couldn't believe it! Was convinced it was a false positive. Anyway, went to the emergency oncology service, was retested and confirmed I had Covid and Rhinovirus
Adlucy
in
CLL Support
6 months ago
breathlessnes
I have been recovering well from NSTEMI in July. Returned to work 2nd Jan then came down with covid, which has left me very congested, I managed to do a 6.5 walk before I knew it was covid as thought was just a bad cold (that’s was 3 weeks ago). Anyway since last week I started to notice that I become
I have been recovering well from NSTEMI in July. Returned to work 2nd Jan then came down with covid, which has left me very congested, I managed to do a 6.5 walk before I knew it was covid as thought was just a bad cold (that’s was 3 weeks ago). Anyway since last week I started to notice that I become
trafar
in
British Heart Foundation
6 months ago
Hepatitis B and alcohol
I was wondering what are your views on alcohol use for people with hepatitis B. I am feeling a bit disappointed that my Dr never has discussed this with me. I try not to drink at most of the times. However, I would have a few drinks on special occasions, such as birthdays or holidays. Should I go tea
I was wondering what are your views on alcohol use for people with hepatitis B. I am feeling a bit disappointed that my Dr never has discussed this with me. I try not to drink at most of the times. However, I would have a few drinks on special occasions, such as birthdays or holidays. Should I go tea
LittleShrew
in
British Liver Trust
8 months ago
post Viral symptoms
I returned from Australia with a heavy cold and painful cough. I have been confined to bed mostly for 2 weeks and really quite ill. A man coughed throughout our flight, this could be the source although my grandchildren were ill too. No sooner did I feel this virus improve it seemed to gain more impetus
I returned from Australia with a heavy cold and painful cough. I have been confined to bed mostly for 2 weeks and really quite ill. A man coughed throughout our flight, this could be the source although my grandchildren were ill too. No sooner did I feel this virus improve it seemed to gain more impetus
SheffieldJane
in
PMRGCAuk
6 months ago
covid vaccines
hi all. I’m sure many readers of this wonderful community will be tired of this subject. But I wanted to ask the question- I never had any AF episodes up to and including Covid. When I look at my vaccination dates I see a possible link. Is it possible that the jabs we all had did in fact interfere with
hi all. I’m sure many readers of this wonderful community will be tired of this subject. But I wanted to ask the question- I never had any AF episodes up to and including Covid. When I look at my vaccination dates I see a possible link. Is it possible that the jabs we all had did in fact interfere with
OscarN
in
AF Association
6 months ago
Has anyone heard of Parsonage Turner Syndrome? Out of interest.
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Greensleeves
in
PMRGCAuk
6 months ago
B LARGE CELL DIFFUSE LYMPHOMA AFTER 5 YEAR OF POST KIDNEY TRANSPLANT
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
bal_123
in
Kidney Transplant Patient Support
4 months ago
If you get sick...cold, flu, Covid...what did you do?
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
Tankjsl
in
Kidney Transplant
6 months ago
covid
hello iam suffering with covid had it since Sunday , symptoms don’t seem to be going away , has anybody had covid , with hashimotos , am I wrong in thinking having this condition makes illness worse and longer to recover , sorry but been told I have hashimotos, but not sure on how it works thanks for
hello iam suffering with covid had it since Sunday , symptoms don’t seem to be going away , has anybody had covid , with hashimotos , am I wrong in thinking having this condition makes illness worse and longer to recover , sorry but been told I have hashimotos, but not sure on how it works thanks for
Prosecco1997
in
Thyroid UK
6 months ago
Pegasys Update 1.0
Finally getting around to sharing my experiences of starting Pegasys. First a little background. Diagnosed with ET JAK2+ in 2019 after a decade of scintillating scotomas with increasing frequency at almost weekly. Aspirin cut this to approx. 90 days! Over the next three years increasingly struggled with
Finally getting around to sharing my experiences of starting Pegasys. First a little background. Diagnosed with ET JAK2+ in 2019 after a decade of scintillating scotomas with increasing frequency at almost weekly. Aspirin cut this to approx. 90 days! Over the next three years increasingly struggled with
Crossefield
in
MPN Voice
6 months ago
D Mannose
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
RosaD
in
LUPUS UK
6 months ago
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