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⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face
🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January 2021, my life took an unexpected turn when I found myself in the clutches of COVID-19. At first, I mistook the weakening of my body for a mere exacerbation of my asthma. Little did I know that this was just the
🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January 2021, my life took an unexpected turn when I found myself in the clutches of COVID-19. At first, I mistook the weakening of my body for a mere exacerbation of my asthma. Little did I know that this was just the
Ladysurvivor1
in
ICUsteps
5 months ago
Declined lupus Centre help
Hi all, hope you're all doing as well as you can be. Just thought I'd give you an update on something that went from being so hopeful to now being left to struggle once again. If you know my previous posts just before Christmas I'd had a steroid injection and was waiting to see professor D'cruz in London
Hi all, hope you're all doing as well as you can be. Just thought I'd give you an update on something that went from being so hopeful to now being left to struggle once again. If you know my previous posts just before Christmas I'd had a steroid injection and was waiting to see professor D'cruz in London
Haylz2109
in
LUPUS UK
5 months ago
Winter or Spring Covid Booster Vaccinations?
Winter or Spring Covid Booster Vaccinations? Good evening everyone, has anyone heard anything about "Covid Boosters Vaccinations" being available for Winter or Spring? The last Booster I received was early October 2023 as I have a weakened immune system. I have not seen much coverage on this by the
Winter or Spring Covid Booster Vaccinations? Good evening everyone, has anyone heard anything about "Covid Boosters Vaccinations" being available for Winter or Spring? The last Booster I received was early October 2023 as I have a weakened immune system. I have not seen much coverage on this by the
Joseph260268
in
Lung Conditions Community Forum
5 months ago
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AT LAST
i have finally got a kind of an answer. i went to docs and asked for an X ray on my spine she sent me instead for a CT scan. there are several things going on with my spine. firstly arthritis, secondly i have a bone growth [ spur ] which is touching a nerve, so i am going for a steroid injection
i have finally got a kind of an answer. i went to docs and asked for an X ray on my spine she sent me instead for a CT scan. there are several things going on with my spine. firstly arthritis, secondly i have a bone growth [ spur ] which is touching a nerve, so i am going for a steroid injection
Fingerandus
in
Restless Legs Syndrome
5 months ago
Covid recovery and steroids
using the dsns method I had got down to 0.5 mg steroids in December but then I got covid. The first symptoms that I experienced were like a pmr flare. I increased the steroids to 5 mg . After two weeks of slow recovery I then went rapidly downhill and went to the doctor. I have asthma and was very breathless
using the dsns method I had got down to 0.5 mg steroids in December but then I got covid. The first symptoms that I experienced were like a pmr flare. I increased the steroids to 5 mg . After two weeks of slow recovery I then went rapidly downhill and went to the doctor. I have asthma and was very breathless
Yellow-dog
in
PMRGCAuk
5 months ago
Changing Medication
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Felixstowe
in
Restless Legs Syndrome
2 months ago
Methotrexate and sinus/nasal issues
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
Gottarelax
in
NRAS
7 months ago
Update: x-ray shock 😲
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Kristi74
in
British Heart Foundation
5 months ago
Chronic constipation
hi so I have been suffering with severe chronic constipation soft stools for almost 3 years, they have done testings and ruled out nothing. I always feel it in my rectum and they did a defecography on me last week and found an intra-anal intussusception and a 2.5 cm Rectocele. I am confused on this.
hi so I have been suffering with severe chronic constipation soft stools for almost 3 years, they have done testings and ruled out nothing. I always feel it in my rectum and they did a defecography on me last week and found an intra-anal intussusception and a 2.5 cm Rectocele. I am confused on this.
Liv12b
in
IBS Network
10 months ago
A suggestion that is working well, for me at least. AT least for now.
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
lauraflora
in
Restless Legs Syndrome
5 months ago
CHANGING Room CHAT...WEEK 3.... Taking time out...to...
Hello, people... ! Welcome to the changing room on this very cold and snowy day here in the Staffs Moorlands. I am a tad late today,,, whizzing around and here and there... and ready for a sit down! Take a seat and a warm or cold drink, and relax. A bit of an odd subject today and one I did not really
Hello, people... ! Welcome to the changing room on this very cold and snowy day here in the Staffs Moorlands. I am a tad late today,,, whizzing around and here and there... and ready for a sit down! Take a seat and a warm or cold drink, and relax. A bit of an odd subject today and one I did not really
Oldfloss
Administrator
in
Strength & Flex
5 months ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
Teddyboy17
in
NRAS
7 months ago
one year olds vaccines
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Mozart150
in
NRAS
7 months ago
Menopause and covid
Hi. I’m 59 & post menopause for years now but had Covid in December and still getting over it. I’ve noticed that I appear to have hormonal symptoms and a pattern. I’m weepy, get blocked, feel slight ovary pain etc. Was wondering if anyone else experienced this after having Covid? I had slight bleeds
Hi. I’m 59 & post menopause for years now but had Covid in December and still getting over it. I’ve noticed that I appear to have hormonal symptoms and a pattern. I’m weepy, get blocked, feel slight ovary pain etc. Was wondering if anyone else experienced this after having Covid? I had slight bleeds
Dham
in
Menopause and Perimenopause Support
5 months ago
stomach acid
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
fiftyone
in
Thyroid UK
7 months ago
COVID
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Guinness4822
in
CLL Support
5 months ago
Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
TiredTavern
in
Myalgic Encephalomyelitis Community
5 months ago
Covid vaccine decision time…
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
Samazeuilh2
in
AF Association
5 months ago
Living with Long Covid but now Tinnitus too!
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
santosha72
in
Tinnitus UK
5 months ago
upping steroids short term to boost recovery?
writing on behalf of my mum who is getting over a respiratory tract infection (or not getting over it to be precise). She has long PMR (getting on 40 yr) and is constantly trying to reduce pred. I recall reading in this forum a recommendation to temporarily increase dose when ill / having surgery etc
writing on behalf of my mum who is getting over a respiratory tract infection (or not getting over it to be precise). She has long PMR (getting on 40 yr) and is constantly trying to reduce pred. I recall reading in this forum a recommendation to temporarily increase dose when ill / having surgery etc
Gottarelax
in
PMRGCAuk
7 months ago
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