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Monopost eye drops
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Tapering - have I got it wrong?
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
EnyaBlue
in
PMRGCAuk
1 year ago
FND SUCKS
Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain all over, abdominal pain, constipation that lasted sometimes 17 days with no help from anything, slirred speech, loss of the ability to walk flat( I walk on my tipsy toes) and need a cane, walker or scooter to get around
Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain all over, abdominal pain, constipation that lasted sometimes 17 days with no help from anything, slirred speech, loss of the ability to walk flat( I walk on my tipsy toes) and need a cane, walker or scooter to get around
Luv2teezeu
in
Functional Neurological Disorder - FND Hope
4 months ago
What's your experience of coming of steroids
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
Autolupus
in
LUPUS UK
1 year ago
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Eye pressure tests in between appointments
Hi - I have
monopost
drops
for
eye
pressure (no glaucoma diagnosis ... yet) and would like to be able to check my eye pressures from time to time in between annual hospital appointments. I am considering buying a tonometer, but think I might get a bit obsessive if I do that!
Hi - I have
monopost
drops
for
eye
pressure (no glaucoma diagnosis ... yet) and would like to be able to check my eye pressures from time to time in between annual hospital appointments. I am considering buying a tonometer, but think I might get a bit obsessive if I do that!
Reformer
in
Glaucoma UK
1 year ago
brain fog!
hi there, last year I had a closed angle glaucoma. I had little warning, thr blood pressure in my right eye suddenly shot up to 80 and I was temporarily blind in that eye. I had a week’s stay in hospital and an operation to bring the pressure down. It is amazing that I have retained quite a bit of
hi there, last year I had a closed angle glaucoma. I had little warning, thr blood pressure in my right eye suddenly shot up to 80 and I was temporarily blind in that eye. I had a week’s stay in hospital and an operation to bring the pressure down. It is amazing that I have retained quite a bit of
Belladoodle
in
Glaucoma UK
1 year ago
Hopelessness
I've been diagnosed officially with PTSD this week which is not a shock. I begin EMDR sessions next week so hope those are able to help. I have these bouts of feeling hopeless. I'm trying not to go too hard on myself but just feel that things will never get easier. Cry myself to sleep most nights with
I've been diagnosed officially with PTSD this week which is not a shock. I begin EMDR sessions next week so hope those are able to help. I have these bouts of feeling hopeless. I'm trying not to go too hard on myself but just feel that things will never get easier. Cry myself to sleep most nights with
Hidden
in
ICUsteps
5 months ago
New Diagnosis: Right Eye Normal Pressure Glaucoma.
Apparently two yrs ago at my previous eye test with photos of the back of my eye, a note was made that there seemed to be something going on with the optic nerve. I wasn't informed. At my last eye test the new optician reported the same and told me of the previous photo. She referred me to the hospital
Apparently two yrs ago at my previous eye test with photos of the back of my eye, a note was made that there seemed to be something going on with the optic nerve. I wasn't informed. At my last eye test the new optician reported the same and told me of the previous photo. She referred me to the hospital
Timesarrow
in
Glaucoma UK
1 year ago
Ectropion eye
Has anyone any advice on ectropion eye? I have glaucoma and diplopia and have been advised to have an operation to tighten the bottom eyelid. This is on my good eye, so I am rather nervous about it.
Has anyone any advice on ectropion eye? I have glaucoma and diplopia and have been advised to have an operation to tighten the bottom eyelid. This is on my good eye, so I am rather nervous about it.
Tequilasunrise
in
Glaucoma UK
1 year ago
EYES DRY, ITCHY, BURNING, TEARING
My eyes have changed over the last few weeks. They are so dry, but I use eye gel. Tearing at random, blurry when reading. Feels scratchy and like there's somethinf in them. Eye drops help for less than an hour. When reading I find myself inadvertently closing my right eye, left eye is better. Yesterday
My eyes have changed over the last few weeks. They are so dry, but I use eye gel. Tearing at random, blurry when reading. Feels scratchy and like there's somethinf in them. Eye drops help for less than an hour. When reading I find myself inadvertently closing my right eye, left eye is better. Yesterday
Missus835
in
PMRGCAuk
1 year ago
Good Morning Monday People
Good morning all, I haven't posted in a while since getting my ESA and starting EMDR. I've experienced a lot of improvement and have adjusted well to the Citalopram which leaves me feeling more alive than the Sertraline I was on. I've been feeling contemplative lately about motivation. What are some
Good morning all, I haven't posted in a while since getting my ESA and starting EMDR. I've experienced a lot of improvement and have adjusted well to the Citalopram which leaves me feeling more alive than the Sertraline I was on. I've been feeling contemplative lately about motivation. What are some
ClassicalBlueKitty
in
Anxiety and Depression Support
5 months ago
Update
hi l have had a consultation this morning following up on me after surgeries and brachytherapy. The outcome is they can offer me no more radio, and am to carry on with my normal day to day life! To anyone out there who is thinking shall l or shall l not get professional guidance with my symptoms my
hi l have had a consultation this morning following up on me after surgeries and brachytherapy. The outcome is they can offer me no more radio, and am to carry on with my normal day to day life! To anyone out there who is thinking shall l or shall l not get professional guidance with my symptoms my
AlexaMac
in
Endometriosis UK
1 year ago
Pegasys --> Besremi and HCT
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Swede99
in
MPN Voice
1 year ago
Longtime glaucoma patient
Hi. I just wanted to say that my experience with Glaucoma has been over many, many years. I’ve been very fortunate to have had treatment, isoptocarpine which was horrible. I have Myopia and these drops made it almost impossible to see for any length of time. They were to reduce the eye pressure quickly
Hi. I just wanted to say that my experience with Glaucoma has been over many, many years. I’ve been very fortunate to have had treatment, isoptocarpine which was horrible. I have Myopia and these drops made it almost impossible to see for any length of time. They were to reduce the eye pressure quickly
Dougalldoo
in
Glaucoma UK
1 year ago
Supplements to reduce glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
wantokporo
in
Restless Legs Syndrome
11 months ago
Coping in the heat
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Scarlett500
in
MPN Voice
1 year ago
Pattern Glare
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Nackapan
in
Pernicious Anaemia Society
1 year ago
curious!
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Curry_girl
in
PMRGCAuk
1 year ago
Rant time
Hey, I hope you're all keeping okUnfortunately, I've been hit by the doctors strike regarding my impending surgery to rectify the macular hole in my left eye. My consultant appointment has been cancelled on 15th August. However the ultrasound appointment, scheduled the same day is still going ahead
Hey, I hope you're all keeping okUnfortunately, I've been hit by the doctors strike regarding my impending surgery to rectify the macular hole in my left eye. My consultant appointment has been cancelled on 15th August. However the ultrasound appointment, scheduled the same day is still going ahead
Gulfstream_Maggie
in
Fibromyalgia Action UK
1 year ago
Terrified I have PBC
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
Kelpop1
in
PBC Foundation
1 year ago
2 years post-thyroidectomy - Struggling with Tirosint and finding the right dose
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Sophie4506
in
Thyroid UK
1 year ago
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