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Fatigue
Since being diagnosed with an inflammatory disorder three years ago I have suffered with various symptoms most of which are now well controlled and stable. The severe pain in my joints and other parts of my body and the excruciatingly painful headaches thankfully seem to be kept at bay by medication
Since being diagnosed with an inflammatory disorder three years ago I have suffered with various symptoms most of which are now well controlled and stable. The severe pain in my joints and other parts of my body and the excruciatingly painful headaches thankfully seem to be kept at bay by medication
Hightower62
in
NRAS
1 year ago
Serositis
Hi I’m new here, been struggling with bilateral pleural effusion since may last year and now my second bout of pericarditis so my respiratory consultant is sending everything to a rheumatologist as he believes I have lupus but does anyone else have this please and what medication are you on etc.. Any
Hi I’m new here, been struggling with bilateral pleural effusion since may last year and now my second bout of pericarditis so my respiratory consultant is sending everything to a rheumatologist as he believes I have lupus but does anyone else have this please and what medication are you on etc.. Any
Numptybrain
in
LUPUS UK
5 months ago
Fallout from PET/CT Scan
My PET/CT scan on November 1 detected progression of metastatic prostate cancer while on Lupron. This made my cancer castrate resistant and I am on Abiraterone 1000 mg + Prednisone 5 mg. The PET/CT report also stated severe coronary artery calcification. Yesterday I had CT scan of the heart. The report
My PET/CT scan on November 1 detected progression of metastatic prostate cancer while on Lupron. This made my cancer castrate resistant and I am on Abiraterone 1000 mg + Prednisone 5 mg. The PET/CT report also stated severe coronary artery calcification. Yesterday I had CT scan of the heart. The report
dac500
in
Advanced Prostate Cancer
7 months ago
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What’s the protocol for GP actioning full iron panel?
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
J972
in
Thyroid UK
5 months ago
Elevated CA125 from 11 8 months ago to 93.
Has anyone experience their CA, 125 elevated to 93? I was diagnosed five years ago and was in remission until two years ago. It came back a swollen lymph node above my diaphragm. Now I’m very concerned since the last couple of months my count has gone up significantly. My oncologist has done, pets,
Has anyone experience their CA, 125 elevated to 93? I was diagnosed five years ago and was in remission until two years ago. It came back a swollen lymph node above my diaphragm. Now I’m very concerned since the last couple of months my count has gone up significantly. My oncologist has done, pets,
marmay88o
in
My Ovacome
7 months ago
Lap V Lap Hysterectomy
At the risk of summoning a barrage of 'hysterectomies are evil' replies, I wondered if anyone can help me as I am totally lost for what to do next. I am 41 and I have deep-infiltrating Endo, as many of you do I'm sure. Today I went to see an Endo specialist after an 18 month wait as he is supposed
At the risk of summoning a barrage of 'hysterectomies are evil' replies, I wondered if anyone can help me as I am totally lost for what to do next. I am 41 and I have deep-infiltrating Endo, as many of you do I'm sure. Today I went to see an Endo specialist after an 18 month wait as he is supposed
Guineafowlrach
in
Endometriosis UK
7 months ago
HGSC 3B
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
0151tmac69
in
My Ovacome
6 months ago
portal vein pressure test
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
pussycat66
in
British Liver Trust
7 months ago
Bladder Cancer Another Update.
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
Ern007
in
Lung Conditions Community Forum
7 months ago
thanks
thanks for all your replies. so much more than i’ve been dreading and thinking. doc and dentist got me worried sending me for the biopsy sans i saw the word cancer on the sheet too. i sat there in shock. but all your problems sound so similar to each other
thanks for all your replies. so much more than i’ve been dreading and thinking. doc and dentist got me worried sending me for the biopsy sans i saw the word cancer on the sheet too. i sat there in shock. but all your problems sound so similar to each other
Junny123
in
Pain Concern
7 months ago
4 years down the road
It is now 4yrs since by MRI, I was diagnosed with HCC and Prostate Cancer (unrelated)Since that time the prostate cancer has been Controlled by Zolodex hormone suppressant. In February 2020 a large tumour was removed from my liver by open resection. Later in the year it returned and was treated by ablation
It is now 4yrs since by MRI, I was diagnosed with HCC and Prostate Cancer (unrelated)Since that time the prostate cancer has been Controlled by Zolodex hormone suppressant. In February 2020 a large tumour was removed from my liver by open resection. Later in the year it returned and was treated by ablation
Churchill2020
in
Blue Faery Liver Cancer
7 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
5 months ago
Active B12 levels
I read that : The normal range for active vitamin B12 (holoTC) is around 20 – 134 pmol/L (picomoles per My recent blood test states my active B12 level is 83.2pmol/L but states this is optimal. (medichecks) Do I need to supplement this?
I read that : The normal range for active vitamin B12 (holoTC) is around 20 – 134 pmol/L (picomoles per My recent blood test states my active B12 level is 83.2pmol/L but states this is optimal. (medichecks) Do I need to supplement this?
Fortie
in
Thyroid UK
5 months ago
Coroner: Vitamin D packs should outline ‘serious risks’ after overdose death
Sometimes vitamin D dosing seems to be regarded as being of little importance provided we get enough. [u]This article and the report make it very clear that [/u][u]
excess
[/u][u] vitamin D is very much to be avoided.[/u] The company mentioned in the report offers products up to 5000 IU. But I
Sometimes vitamin D dosing seems to be regarded as being of little importance provided we get enough. [u]This article and the report make it very clear that [/u][u]
excess
[/u][u] vitamin D is very much to be avoided.[/u] The company mentioned in the report offers products up to 5000 IU. But I
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Constipation relief for me
Been struggling with ongoing constipation for decades, due to slow ?motility? .Found this product which has been a life saver and really works for me. Super Cleanse by Nature's Secret | Herbal and Probiotic Support, 100 Tablets It contains Cascara Sagrada stimulat which maybe habit forming, so the
Been struggling with ongoing constipation for decades, due to slow ?motility? .Found this product which has been a life saver and really works for me. Super Cleanse by Nature's Secret | Herbal and Probiotic Support, 100 Tablets It contains Cascara Sagrada stimulat which maybe habit forming, so the
ewebhook
in
Cure Parkinson's
6 months ago
HT weight gain
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
Inquisitive_one
in
Advanced Prostate Cancer
7 months ago
Update: post-radiation and New meds
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Dragonfly2
in
SHARE Metastatic Breast Cancer
7 months ago
Avastin
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Rosehannah7
in
My Ovacome
7 months ago
Seeking advise
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Amk31
in
SHARE Metastatic Breast Cancer
7 months ago
Road blocks
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Sagiegirl
in
MPN Voice
5 months ago
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