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Chronic Pain,and fear.
Hi All,I’m hoping for some advice off anyone on here who suffers with flare ups of Diverticulitis. I won’t go into my full story ,as I would be here all day. Basically I’m 80yrs old,and about 9mths ago I was told I have Diverticula,just to add to all my other problems. Well I’ve had about 5 flare
Hi All,I’m hoping for some advice off anyone on here who suffers with flare ups of Diverticulitis. I won’t go into my full story ,as I would be here all day. Basically I’m 80yrs old,and about 9mths ago I was told I have Diverticula,just to add to all my other problems. Well I’ve had about 5 flare
Breathless1943
in
Bowel Disease Support
3 months ago
Really lost - doctor advised me to stop injecting and now B12 keeps going down
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
marlesk
in
Pernicious Anaemia Society
3 months ago
trying to get a diagnoses
Hello, I was wondering if anyone can offer any advice or support. For years now Iv been having body pains being exhausted to the point I would fall asleep sat up. Not being able to do normal day to day things some days. . I got diagnosed with vit d deficiency I’m on tablets everyday for this for
Hello, I was wondering if anyone can offer any advice or support. For years now Iv been having body pains being exhausted to the point I would fall asleep sat up. Not being able to do normal day to day things some days. . I got diagnosed with vit d deficiency I’m on tablets everyday for this for
Rubydax
in
LUPUS UK
3 days ago
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Pain and Laxido
Ive been taking Laxido for eight months now for recurring impactions and now down to one a day where I do a good BM most days but the last week started to get the most awful stomach pain and bloating which lasts all day . Has anybody else experienced this after taking this product for quite a while
Ive been taking Laxido for eight months now for recurring impactions and now down to one a day where I do a good BM most days but the last week started to get the most awful stomach pain and bloating which lasts all day . Has anybody else experienced this after taking this product for quite a while
Shopnow1
in
IBS Network
3 months ago
Potential Lupus diagnosis
Hello, I have just joined this site and would be very grateful for any advice given. Sorry this might be a bit long winded🤪 So… my ethnicity is of Asian origin and ever since I can remember I don’t think a day has gone by where I don’t suffer from joint aches , muscle pain body stiffness and chronic
Hello, I have just joined this site and would be very grateful for any advice given. Sorry this might be a bit long winded🤪 So… my ethnicity is of Asian origin and ever since I can remember I don’t think a day has gone by where I don’t suffer from joint aches , muscle pain body stiffness and chronic
Perfumeflower57
in
LUPUS UK
7 days ago
Food sensitivities
Hi everyone, just looking for a bit advice re food issues. I have had long term issues with constipation, which resolved when I went dairy free. I also find I feel much better on a gluten free diet so have been GF and DF for about 1 year. These are both very tricky to manage when eating out and I know
Hi everyone, just looking for a bit advice re food issues. I have had long term issues with constipation, which resolved when I went dairy free. I also find I feel much better on a gluten free diet so have been GF and DF for about 1 year. These are both very tricky to manage when eating out and I know
DaisyTed
in
Thyroid UK
3 months ago
Lower Right Abdominal Pain
Hi Everyone, I am 24 years old, and been having stomach problems since last September (6 months), I have pain in the lower right side of the abdomen and sometimes I see drops of bright or streaks of red blood in my stool, and after poo*** my anus burns and itches, I noticed that blood only appears
Hi Everyone, I am 24 years old, and been having stomach problems since last September (6 months), I have pain in the lower right side of the abdomen and sometimes I see drops of bright or streaks of red blood in my stool, and after poo*** my anus burns and itches, I noticed that blood only appears
bianco9685
in
IBS Network
5 months ago
3 failed coloscopies
I have had three failed colonoscopies in the past, one being totally horrifically painful. Due to the growth of very large polyps one over 2cm I am being asked to have another colonoscopy. To say that I am terrified is an understatement. I was told by the consultant 10 years ago that I was a very
I have had three failed colonoscopies in the past, one being totally horrifically painful. Due to the growth of very large polyps one over 2cm I am being asked to have another colonoscopy. To say that I am terrified is an understatement. I was told by the consultant 10 years ago that I was a very
ledge
in
Bowel Disease Support
3 months ago
just diagnosed with lupus
hi I’ve just been diagnosed with lupus via positive ANA test ! Only symptoms are the sun burning my neck and chest and my glands swell !! No medication given at the moment as I don’t have any other symptoms? Is there medication for this sun allergy ??? Thank you for any help !!!
hi I’ve just been diagnosed with lupus via positive ANA test ! Only symptoms are the sun burning my neck and chest and my glands swell !! No medication given at the moment as I don’t have any other symptoms? Is there medication for this sun allergy ??? Thank you for any help !!!
Edm174
in
LUPUS UK
10 days ago
colonoscopy perforation risk
I saw my PCP and told him there was rectal bleeding and he immediately said I need a colonoscopy. However, the last time I had one I almost got a perforation. The doctor had to stop the procedure. That was a year ago. During the procedure I felt a burning, searing pain which was not normal so I know
I saw my PCP and told him there was rectal bleeding and he immediately said I need a colonoscopy. However, the last time I had one I almost got a perforation. The doctor had to stop the procedure. That was a year ago. During the procedure I felt a burning, searing pain which was not normal so I know
Flowerytimes
in
Colon Cancer Connected
3 months ago
Pluvicto and vomiting
anyone else have that side effect? I had my first injection exactly one week ago. I didn’t notice any side effects, but two days ago I had the dry heaves, and today a couple of full vomits. Funny that I had no food this morning and only cup of water for meds. Followed by some Pepto-Bismol, 1 hour later
anyone else have that side effect? I had my first injection exactly one week ago. I didn’t notice any side effects, but two days ago I had the dry heaves, and today a couple of full vomits. Funny that I had no food this morning and only cup of water for meds. Followed by some Pepto-Bismol, 1 hour later
Gl448
in
Advanced Prostate Cancer
3 months ago
UPDATE on Iron and Vitamin D
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
Batty1
in
Thyroid UK
3 months ago
Epilepsy Action launches TV first aid campaign
https://www.epilepsy.org.uk/epilepsy-action-launches-tv-first-aid-campaign
https://www.epilepsy.org.uk/epilepsy-action-launches-tv-first-aid-campaign
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
14 days ago
First blood test after starting Peg 17/12/2023
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Carol0925
in
MPN Voice
6 months ago
I am lost, should I seek a second opinion?
hi, this will be a bit of a long one sorry. I am really confused and don’t know whether to accept my gps answer or go private for a second opinion. My issues started more noticeably in October last year when I started heavily bleeding and having long periods and very short periods of time of not bleeding
hi, this will be a bit of a long one sorry. I am really confused and don’t know whether to accept my gps answer or go private for a second opinion. My issues started more noticeably in October last year when I started heavily bleeding and having long periods and very short periods of time of not bleeding
Han99m
in
Thyroid UK
16 days ago
Mutations
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
Healthplus1
in
SHARE Metastatic Breast Cancer
6 months ago
MCT Oil
in another thread someone posted today about MCT oil. I hadn’t heard of this and have tried to research it. It seems to be useful in a variety of situations and claims include support in weight gain, increased energy, constipation t and pain relief. Really it sounds a bit of a ‘cure all’. I’m wondering
in another thread someone posted today about MCT oil. I hadn’t heard of this and have tried to research it. It seems to be useful in a variety of situations and claims include support in weight gain, increased energy, constipation t and pain relief. Really it sounds a bit of a ‘cure all’. I’m wondering
Hidden
in
Thyroid UK
11 months ago
Ovarian cancer advice
Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had heart attack passed that very hard still greaving come back on ovary and spleen part bowel had another 4 sessins chemo lost hair again they
Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had heart attack passed that very hard still greaving come back on ovary and spleen part bowel had another 4 sessins chemo lost hair again they
PaumicB123
in
My Ovacome
6 months ago
new model for bone marrow behavior is a hope for finding bone metastasis remedies!
”What results were found from your investigation? It did mimic the effects that we see in the clinical scenario. It has been exciting. The other nice thing about this model is it doesn't have to only be utilized for bone sarcomas and creates the microenvironment from which a bone sarcoma might arise
”What results were found from your investigation? It did mimic the effects that we see in the clinical scenario. It has been exciting. The other nice thing about this model is it doesn't have to only be utilized for bone sarcomas and creates the microenvironment from which a bone sarcoma might arise
Maxone73
in
Advanced Prostate Cancer
6 months ago
Reversing Out
Good day friends. I need some help and advice. I was diagnosed with autoimmune atrophic gastritis, I have started EOD B12 injections about 1 month ago. My symptoms have gotten worse, first it was muscle twitches that have now gotten better But stomach issues are worse, I am starting to have what
Good day friends. I need some help and advice. I was diagnosed with autoimmune atrophic gastritis, I have started EOD B12 injections about 1 month ago. My symptoms have gotten worse, first it was muscle twitches that have now gotten better But stomach issues are worse, I am starting to have what
Canadian77
in
Pernicious Anaemia Society
3 months ago
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