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Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
3 months ago
SMALL-CELL NEUROENDOCRINE CARCINOMA
Following prostate cancer first treated with low dose brachytherapy, then ten years later with high dose brachytherapy, from a biopsy following a Turp, I was diagnosed with SMALL-CELL NEUROENDOCRINE CARCINOMA. From a CT scan this was found in my prostate, bladder, and lower colon. I am told that it
Following prostate cancer first treated with low dose brachytherapy, then ten years later with high dose brachytherapy, from a biopsy following a Turp, I was diagnosed with SMALL-CELL NEUROENDOCRINE CARCINOMA. From a CT scan this was found in my prostate, bladder, and lower colon. I am told that it
gegan01
in
Prostate Cancer Network
7 months ago
Help I don’t understand
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
Jadaboo4
in
LUPUS UK
3 months ago
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🔥 Hot Topic – Endometriosis and Menopause
Endometriosis UK Specialist Advisor Joanne Hanley is producing a series of short articles on topics that may be of interest to anyone with endometriosis. This time the 'Hot Topic' is endometriosis and the menopause Does endometriosis go away with the menopause? During the perimenopause and menopause
Endometriosis UK Specialist Advisor Joanne Hanley is producing a series of short articles on topics that may be of interest to anyone with endometriosis. This time the 'Hot Topic' is endometriosis and the menopause Does endometriosis go away with the menopause? During the perimenopause and menopause
Lynne_support
Endometriosis UK
in
Endometriosis UK
1 year ago
Opioids for refractory RLS-Dr Berkowski
https://www.relacshealth.com/blog/will-i-get-addicted-to-opioids-from-my-restless-legs-syndrome-treatment-part-iii?ss_source=sscampaigns&ss_campaign_id=65c80ed59e631007b462c07d&ss_email_id=65c9436ef626c803f327b04d&ss_campaign_name=Will+I+Get+Addicted+to+Opioids+from+RLS+Treatment%3F%3A+Part+III%3B+Blog
https://www.relacshealth.com/blog/will-i-get-addicted-to-opioids-from-my-restless-legs-syndrome-treatment-part-iii?ss_source=sscampaigns&ss_campaign_id=65c80ed59e631007b462c07d&ss_email_id=65c9436ef626c803f327b04d&ss_campaign_name=Will+I+Get+Addicted+to+Opioids+from+RLS+Treatment%3F%3A+Part+III%3B+Blog
Joolsg
in
Restless Legs Syndrome
5 months ago
Celiac disease or Endo?
Hey girls I hope yous all are well which is probably a silly thing too say when you are all living with a horrible disease. I've went down the terrible rabbit hole off googling non stop from last week and doing alot off research. Firstly if anyone suffers with recurrent UTIs are has IC then I highly
Hey girls I hope yous all are well which is probably a silly thing too say when you are all living with a horrible disease. I've went down the terrible rabbit hole off googling non stop from last week and doing alot off research. Firstly if anyone suffers with recurrent UTIs are has IC then I highly
KB1987
in
Endometriosis UK
4 months ago
Epithelial Haemangiendothelioma - has anyone else been diagnosed with this rare cancer please?
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
alipali
in
CLL Support
5 months ago
Good resources regarding vagal AFIB?
Does anyone have any good resources (articles, YouTube videos) directed to vagally-mediated AFIB (the type that occurs after a large meal or while sleeping)? I believe my AFIB was triggered by endurance athletics (I used to do long bike rides and probably overdid it and stressed my body too much).
Does anyone have any good resources (articles, YouTube videos) directed to vagally-mediated AFIB (the type that occurs after a large meal or while sleeping)? I believe my AFIB was triggered by endurance athletics (I used to do long bike rides and probably overdid it and stressed my body too much).
dw98611
in
AF Association
1 year ago
Reconstruction after Mastectomy
Happy Holidays!!! I was wondering if there's anyone who's had a mastectomy with reconstruction and regretted it. I'm 43 MBC and there's a mass in tge same breast they've been watching but I think it's time to have the mastectomy as a preventative measure. Anyone willing to share their experiences?
Happy Holidays!!! I was wondering if there's anyone who's had a mastectomy with reconstruction and regretted it. I'm 43 MBC and there's a mass in tge same breast they've been watching but I think it's time to have the mastectomy as a preventative measure. Anyone willing to share their experiences?
KimberlyB40
in
SHARE Metastatic Breast Cancer
7 months ago
Terrified
47 years old. I had knee surgery almost 2 weeks ago and after the surgery I took the prescribed narcotics for 4 days. Every time I take these I get constipated. I started taking stool softeners (colace) and after a week nothing. I did a Fleet enema and finally 9 days after surgery I had a BM and it was
47 years old. I had knee surgery almost 2 weeks ago and after the surgery I took the prescribed narcotics for 4 days. Every time I take these I get constipated. I started taking stool softeners (colace) and after a week nothing. I did a Fleet enema and finally 9 days after surgery I had a BM and it was
djroo
in
Colon Cancer Connected
4 months ago
potential colorectal cancer
Hi, I am 23 and currently stressing whilst awaiting my colonoscopy. About a year about I started seeing blood in my stool. It would cause the water to go red and be intertwined with the stool. I have always been told I suffer from IBS and intolerant to wheat and gluten. For over a year and a
Hi, I am 23 and currently stressing whilst awaiting my colonoscopy. About a year about I started seeing blood in my stool. It would cause the water to go red and be intertwined with the stool. I have always been told I suffer from IBS and intolerant to wheat and gluten. For over a year and a
Sheldomtheshrimp
in
Colon Cancer Connected
4 months ago
Hoping for some coping advice
Hi all, I’ve suffered with IBS for years, had colonoscopy, endoscopy and CT scan end 2021, all clear. Recently had proctitis (treated well) but now my bowels have gone crazy and new feelings I’ve never had!! Really bad bloating, gurgling, stomach cramps pain under left rib, going into back. IBS -
Hi all, I’ve suffered with IBS for years, had colonoscopy, endoscopy and CT scan end 2021, all clear. Recently had proctitis (treated well) but now my bowels have gone crazy and new feelings I’ve never had!! Really bad bloating, gurgling, stomach cramps pain under left rib, going into back. IBS -
Dh19
in
IBS Network
4 months ago
IBS Flare up
Good afternoon to everyone. I've had IBS-D for many years and I've been able to cope and manage it so far. But since October 2023, I had a major flare up, it was getting to the point where I was struggling to work and general daily activities. Was constantly on the toliet. It was that bad that I went
Good afternoon to everyone. I've had IBS-D for many years and I've been able to cope and manage it so far. But since October 2023, I had a major flare up, it was getting to the point where I was struggling to work and general daily activities. Was constantly on the toliet. It was that bad that I went
Julie182
in
IBS Network
5 months ago
wegovy
hi has anyone used wegovy. As a weight loss drug and found it to have a negative impact on PA ? I have some atrophic gastritis and get pain from time to time and I’m tempted to try the wegovy but don’t want to further irritate my guts or compound problems.
hi has anyone used wegovy. As a weight loss drug and found it to have a negative impact on PA ? I have some atrophic gastritis and get pain from time to time and I’m tempted to try the wegovy but don’t want to further irritate my guts or compound problems.
lifegems
in
Pernicious Anaemia Society
4 months ago
Merry Christmas Despite Progression
Hello all! Today I’m supposed to be with my family in my hometown but found out Monday I have progression in my spine, ribs, pelvis and liver so spent this week in the hospital getting bone cement injection to repair a compound fracture in my spine and begin radiation. Thankfully I was released yesterday
Hello all! Today I’m supposed to be with my family in my hometown but found out Monday I have progression in my spine, ribs, pelvis and liver so spent this week in the hospital getting bone cement injection to repair a compound fracture in my spine and begin radiation. Thankfully I was released yesterday
Saltandlight
in
SHARE Metastatic Breast Cancer
7 months ago
Pretty Lady PTSD Mary
Have had a breakdown in 97 due to flashbacks not remembered and abuse done by family members. I always remember the abuse done by my father who was a monster.Only now there was more abuse by him to add to my story. PTSD opened doors to numerous mental health issues along with unfortunately physical health
Have had a breakdown in 97 due to flashbacks not remembered and abuse done by family members. I always remember the abuse done by my father who was a monster.Only now there was more abuse by him to add to my story. PTSD opened doors to numerous mental health issues along with unfortunately physical health
prettylady3
in
Anxiety and Depression Support
5 months ago
Tumor
My son has a 4x5 inch Schwannoma on his Brachial plexus. We think it's benign He sees the Dr on Mar 5. I am having anxiety about the wait. Also, I am trying to make his decisions because I am controlling. Any advice?
My son has a 4x5 inch Schwannoma on his Brachial plexus. We think it's benign He sees the Dr on Mar 5. I am having anxiety about the wait. Also, I am trying to make his decisions because I am controlling. Any advice?
Just_how
in
Anxiety and Depression Support
5 months ago
Any thoughts please
Hello. After a 5 day stint in hospital for hypercalcemia and kidney stones and a whole host of xrays and scans which have shown nodules on my thyroid, I've now been referred to an endocrine surgeon. Any thoughts on why they've made that referral. I'm new to this and totally confused because of lack
Hello. After a 5 day stint in hospital for hypercalcemia and kidney stones and a whole host of xrays and scans which have shown nodules on my thyroid, I've now been referred to an endocrine surgeon. Any thoughts on why they've made that referral. I'm new to this and totally confused because of lack
ScubaBlue
in
Thyroid UK
7 months ago
Newbie and confused. Functional B12 deficiency?
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
grumpyold
in
Pernicious Anaemia Society
4 months ago
I am scared of colon cancer
hello everyone, I am scared that I might have colon cancer. I have changes in bowel movement . gas and burping that happens after a meal. The other night , I had diarrhea and went to the restroom 3 times within 2 hours. After this, I noticed bloody mucus in the toilet. I also have a gurgling stomach
hello everyone, I am scared that I might have colon cancer. I have changes in bowel movement . gas and burping that happens after a meal. The other night , I had diarrhea and went to the restroom 3 times within 2 hours. After this, I noticed bloody mucus in the toilet. I also have a gurgling stomach
Kvance424
in
Colon Cancer Connected
4 months ago
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