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Mr Geoff Lloyd
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Churchman123
in
Advanced Prostate Cancer
5 months ago
My decision on Radiotherapy -v- Prostatectomy
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
MarkS
in
Prostate Cancer Network
5 months ago
lobular
hi ladies. Well after 6 years on faslodex and ibrance they found cancer in my stomach lining and ascites. Is anyone dealing with this I am so nervous and scared. They want to put me in a new drug. Thanks so much. Marianne
hi ladies. Well after 6 years on faslodex and ibrance they found cancer in my stomach lining and ascites. Is anyone dealing with this I am so nervous and scared. They want to put me in a new drug. Thanks so much. Marianne
marianne88
in
SHARE Metastatic Breast Cancer
5 months ago
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Femara success?
Hi. I am about to try Femara as my final option for a 2nd child. We have done 5 rounds of IVF with 4 FET's. Our 1st transfer gave us our daughter, but since her, we have had one not implant, and 2 early miscarriages. I cant o any more rounds of IVF due to cost and the general pressure it puts on my
Hi. I am about to try Femara as my final option for a 2nd child. We have done 5 rounds of IVF with 4 FET's. Our 1st transfer gave us our daughter, but since her, we have had one not implant, and 2 early miscarriages. I cant o any more rounds of IVF due to cost and the general pressure it puts on my
Mrsjaytee
in
Fertility Network UK
11 months ago
PSA Risen in Last 6 months
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Hidden
in
Advanced Prostate Cancer
5 months ago
ET: Changing from HU to Jakafi or an Interferon treatment
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Bodensee
in
MPN Voice
5 months ago
does having endo mean I am at high risk for ovarian cancer?
hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I am having a hard time coming to terms with it all and I consulted dr Google. I came across studies that show endo is a precursor to ovarian cancer and increases risk. I already have health anxiety however now I have gotten
hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I am having a hard time coming to terms with it all and I consulted dr Google. I came across studies that show endo is a precursor to ovarian cancer and increases risk. I already have health anxiety however now I have gotten
JS1001
in
Endometriosis UK
5 months ago
Buprenorphine Trial
Some of you may be aware that I have been trying to get a trial of Buprenorphine for refractory RLS underway in the UK over the last 2 years.I initially contacted Dr Jose Thomas and his team at Aneurin Bevan Hospital trust in Wales and then Bart's Hospital neurology department and King's College RLS
Some of you may be aware that I have been trying to get a trial of Buprenorphine for refractory RLS underway in the UK over the last 2 years.I initially contacted Dr Jose Thomas and his team at Aneurin Bevan Hospital trust in Wales and then Bart's Hospital neurology department and King's College RLS
Joolsg
in
Restless Legs Syndrome
2 months ago
Relationship advice
I have been with my husband for 31 years, we've had a lot of rough times along the way. When I was diagnosed with ADHD a few years ago it led to a better understanding between us but within 6 months my brother (who I was estranged from, as well as my mother) hung himself. My world was blown apart and
I have been with my husband for 31 years, we've had a lot of rough times along the way. When I was diagnosed with ADHD a few years ago it led to a better understanding between us but within 6 months my brother (who I was estranged from, as well as my mother) hung himself. My world was blown apart and
Louloubelle26
in
Anxiety and Depression Support
2 months ago
delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
5 months ago
Genetic Testing?
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
janebob99
in
Prostate Cancer Network
5 months ago
Low Dose Ketamine
Has anyone tried treating your depression and anxiety with low dose Ketamine through a telehealth company? I have tried just about every antidepresant there is with only moderate success. I have been wanting to give Ketamine a try but I was uncomfortable with the psychedelic experiences and high cost
Has anyone tried treating your depression and anxiety with low dose Ketamine through a telehealth company? I have tried just about every antidepresant there is with only moderate success. I have been wanting to give Ketamine a try but I was uncomfortable with the psychedelic experiences and high cost
Scott1951
in
Anxiety and Depression Support
11 months ago
lung nodule / proposed surgery / scared and confused
Hello, thank you for this site. My best to all on this site for health and happiness. I’m not even sure where I may be at on this journey but am certainly scared and confused . In March of 2022 I had a kidney stone and a lung nodule was detected on right lower lobe and suggested follow up in 3 -6 months
Hello, thank you for this site. My best to all on this site for health and happiness. I’m not even sure where I may be at on this journey but am certainly scared and confused . In March of 2022 I had a kidney stone and a lung nodule was detected on right lower lobe and suggested follow up in 3 -6 months
ghostyinmass
in
Lung Cancer Support
5 months ago
Update finally on treatment
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
monkeygirl62
in
SHARE Metastatic Breast Cancer
5 months ago
Update following meeting with MO
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
Benkaymel
in
Advanced Prostate Cancer
5 months ago
How bad are these PSMA Pet Scan Results?
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
hiker75
in
Advanced Prostate Cancer
5 months ago
HCCsurgery
I am interested in the pros and cons of liver surgery for a small single primary HCC versus chemotherapy.
I am interested in the pros and cons of liver surgery for a small single primary HCC versus chemotherapy.
LittleMeadow
in
British Liver Trust
5 months ago
Many years after lithium toxicity
Is there anything to treat neurological problems and PTSD caused by long-term effects of lithium toxicity ?
Is there anything to treat neurological problems and PTSD caused by long-term effects of lithium toxicity ?
petersurvivor
in
Headway
2 months ago
Eczema
Hello! My 18-week old daughter was diagnosed with baby eczema last month. Her dad has eczema too. We have been on and off the steroid cream since :( Any tips on how to manage it and what has worked best for your little ones? I am off dairy, eggs and soy, also gluten-intolerant so no wheat and oats either
Hello! My 18-week old daughter was diagnosed with baby eczema last month. Her dad has eczema too. We have been on and off the steroid cream since :( Any tips on how to manage it and what has worked best for your little ones? I am off dairy, eggs and soy, also gluten-intolerant so no wheat and oats either
Eloquentia
in
Pregnancy and Parenting Support
5 months ago
A Bladder Cancer Update.
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
Ern007
in
Lung Conditions Community Forum
5 months ago
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