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Medium chain acyl dehydrogenase deficiency
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Hello I am new here
Hello I am new here. I am a 58 year old divorced female, living in the Northern VA area. I wrote a lengthy introduction in the Kidney Community hub. I just found out I have CKD last Friday. My GFR was 68 in June 2019 and it dropped to 55, two weeks ago. I had no idea I had kidney disease in June
Hello I am new here. I am a 58 year old divorced female, living in the Northern VA area. I wrote a lengthy introduction in the Kidney Community hub. I just found out I have CKD last Friday. My GFR was 68 in June 2019 and it dropped to 55, two weeks ago. I had no idea I had kidney disease in June
MarBea
in
Early CKD Support
5 years ago
Bacterial Periotinitis
Hi everyone, Well last week really was the week that kept on giving. Had doctor out MONDAY last week as dads confusion had got considerably worse but doctor didn’t seem TH think anything of it and he seemed HAPPY in himself so let’s not worry!!! Yesterday morning I had phone call from carer and my dad
Hi everyone, Well last week really was the week that kept on giving. Had doctor out MONDAY last week as dads confusion had got considerably worse but doctor didn’t seem TH think anything of it and he seemed HAPPY in himself so let’s not worry!!! Yesterday morning I had phone call from carer and my dad
Bubbles201271
in
British Liver Trust
5 years ago
Ferritin vs HB as proxy for iron deficiency / iron anaemia
Hi, My first time commenting here! When assessing a child for their likelihood of having a coeliac condition - a child with an IG(A) deficiency, what vitamin insufficiencies do you look at to support or rule out a potential case. My son’s doctor has said that the only important thing to look at, when
Hi, My first time commenting here! When assessing a child for their likelihood of having a coeliac condition - a child with an IG(A) deficiency, what vitamin insufficiencies do you look at to support or rule out a potential case. My son’s doctor has said that the only important thing to look at, when
HowNowWhatNow
in
Gluten Free Guerrillas
5 years ago
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Now going into clinical trials for specific types of cancer, Alpha Tau’s technology shows potential for treating any solid tumor.
Nalakrats posted about this company earlier this year. I wonder what the difference is between Radium 224, which Alpha Tau uses, vs. Radium 223, Xofigo? -or maybe they're using radium 224 instead of 223 due to patent issues?? I also recall seeing a clinical trial, I think in NY?, using Radium 223
Nalakrats posted about this company earlier this year. I wonder what the difference is between Radium 224, which Alpha Tau uses, vs. Radium 223, Xofigo? -or maybe they're using radium 224 instead of 223 due to patent issues?? I also recall seeing a clinical trial, I think in NY?, using Radium 223
JLS1
in
Advanced Prostate Cancer
5 years ago
Antacids related
Is it necessary that CKD patient take sodium bicar or citrate to prevent metabolic acidosis. My father takes 2000 mg per day. In addition to PPI ( in case of acid reflux, ulcers). Is he taking too many antacid ? He is stage 3 CKD with lot of gastric issues. I am curious to know. Will be awesome if you
Is it necessary that CKD patient take sodium bicar or citrate to prevent metabolic acidosis. My father takes 2000 mg per day. In addition to PPI ( in case of acid reflux, ulcers). Is he taking too many antacid ? He is stage 3 CKD with lot of gastric issues. I am curious to know. Will be awesome if you
JB1969
in
Kidney Disease
5 years ago
Need Advice-Bipolar Androgen Therapy
Looking for some feedback and advice from the amazing Warriors on this board. I wrote about the VERU-111 trial A few weeks ago. We went through the screening process and anxiously awaited the results only to find that my dad‘s blood was damaged in shipping. We had to go through the bloodwork again and
Looking for some feedback and advice from the amazing Warriors on this board. I wrote about the VERU-111 trial A few weeks ago. We went through the screening process and anxiously awaited the results only to find that my dad‘s blood was damaged in shipping. We had to go through the bloodwork again and
Amandaslp78
in
Advanced Prostate Cancer
5 years ago
Ever increasing T3?
Brief background (because I’ve posted quite a lot!): started levo/T3 combo at 10/125mcg in March this year. Fab. All symptoms gone.... for about 6 weeks. I’m finding I need to increase by 5mcg every 5/6 weeks. I’ve tried sticking at one dose for longer but symptoms increase again. Recently when in
Brief background (because I’ve posted quite a lot!): started levo/T3 combo at 10/125mcg in March this year. Fab. All symptoms gone.... for about 6 weeks. I’m finding I need to increase by 5mcg every 5/6 weeks. I’ve tried sticking at one dose for longer but symptoms increase again. Recently when in
Murphysmum
in
Thyroid UK
5 years ago
ROOT CAUSE THEORY
For those of us that have structurally normal hearts yet are effected by palpitations/tachycardia/fibrillation/flutter/et al, I have been unable to answer the question - is your heart behaving appropriately to the stimulus it gets or is the stimulus normal and your heart acting inappropriately. As everyones
For those of us that have structurally normal hearts yet are effected by palpitations/tachycardia/fibrillation/flutter/et al, I have been unable to answer the question - is your heart behaving appropriately to the stimulus it gets or is the stimulus normal and your heart acting inappropriately. As everyones
Shcldavies
in
AF Association
5 years ago
Possible MS ??? About see 3rd neurologist...steady decline since Feb 2019
Hello im not from the UK. But ive searched high and low for answers. Anyone please help and thank u in advance! I had thyroid removed dec 2018 d/t PTC no RAI needed. U knoe the drill they slowly started increasing dose with goal TSH 0.5 . I started off 75mcg levothyroxine and then 88...i first noticed
Hello im not from the UK. But ive searched high and low for answers. Anyone please help and thank u in advance! I had thyroid removed dec 2018 d/t PTC no RAI needed. U knoe the drill they slowly started increasing dose with goal TSH 0.5 . I started off 75mcg levothyroxine and then 88...i first noticed
BethanyOxe
in
My MSAA Community
5 years ago
Celery Juice? CBD? Trying both...
I posted on here a couple months ago that my GFR had fallen to 32 and then to 30 5 days later in August. Before that, I was eating bad, drinking bad and not taking care of myself. Diagnosed with IGA as an infant and am now 34. Luckily I have an active job and and otherwise in shape. Anyways, I got real
I posted on here a couple months ago that my GFR had fallen to 32 and then to 30 5 days later in August. Before that, I was eating bad, drinking bad and not taking care of myself. Diagnosed with IGA as an infant and am now 34. Luckily I have an active job and and otherwise in shape. Anyways, I got real
MPStilwell
in
Kidney Disease
5 years ago
Folkestone HM Race Report - BRUTAL!
Driving home after the event, my friend and I decided to pick one word to describe completing this year's Folkestone Half Marathon. We agreed on BRUTAL. Here we go... The day dawned wet and windy. The night before there had been Facebook updates advising a course inspection was taking place at 7.30
Driving home after the event, my friend and I decided to pick one word to describe completing this year's Folkestone Half Marathon. We agreed on BRUTAL. Here we go... The day dawned wet and windy. The night before there had been Facebook updates advising a course inspection was taking place at 7.30
Langley-Loper
Half Marathon
in
Fun Beyond 10K & Race Support
5 years ago
Low sodium levels?
One of my latest test results showing sodium level down to 129 -last test was 130. Both results too low according to standards. Not sure if Trileptal prescription is playing a part- is known to cause low sodium. Meet with nephrologist on results tomorrow but seeing this score drop is frightening.
One of my latest test results showing sodium level down to 129 -last test was 130. Both results too low according to standards. Not sure if Trileptal prescription is playing a part- is known to cause low sodium. Meet with nephrologist on results tomorrow but seeing this score drop is frightening.
Hopefultaw
in
Early CKD Support
5 years ago
latest bloods
Serum free T4 level 8 pmol/L [5.6 - 21.0] Serum TSH level 2.73 U/mL [0.38 - 5.33] Serum free triiodothyronine level 4.2 pmol/L [3.7 - 7.0] GFR-EPI GFR calculated abbreviated MDRD > 90 mL/min [59.0 - 9999.0] Serum creatine kinase level Serum creatine kinase level 45 u/L [20.0 - 160.0] Serum C reactive
Serum free T4 level 8 pmol/L [5.6 - 21.0] Serum TSH level 2.73 U/mL [0.38 - 5.33] Serum free triiodothyronine level 4.2 pmol/L [3.7 - 7.0] GFR-EPI GFR calculated abbreviated MDRD > 90 mL/min [59.0 - 9999.0] Serum creatine kinase level Serum creatine kinase level 45 u/L [20.0 - 160.0] Serum C reactive
mandy72
in
Thyroid UK
5 years ago
Radium-223 treatment in CRPC & presence of Primary Tumor.
New Italian study. Only 44 men, but .... "The presence of the primary prostate tumor seems to play a detrimental role in mCRPC patients undergoing 223Ra treatment in absence of other concomitant anticancer therapy. On the other hand a previous RP might play a protective role." "Discussion" "Radium 223
New Italian study. Only 44 men, but .... "The presence of the primary prostate tumor seems to play a detrimental role in mCRPC patients undergoing 223Ra treatment in absence of other concomitant anticancer therapy. On the other hand a previous RP might play a protective role." "Discussion" "Radium 223
pjoshea13
in
Advanced Prostate Cancer
5 years ago
Can anyone make use of residue dialysis support materials?
I supported my son-in-law at our home during his dialysis. He's had his operation and is recovering. I now have plenty of his support fluids, needles etc at my home. Is there any organisation that will make use of the following, much of which is still sealed. 12 box SAK402; 1 box BD Plastipak; 2 box
I supported my son-in-law at our home during his dialysis. He's had his operation and is recovering. I now have plenty of his support fluids, needles etc at my home. Is there any organisation that will make use of the following, much of which is still sealed. 12 box SAK402; 1 box BD Plastipak; 2 box
ukoilgas
in
Kidney Dialysis
5 years ago
Dads Full blood count. Any advise please for Vitamins/minerals
Dad is 76, we already know that his T4/T3 is low. No diagnosis of Thyroid issues. He has Alzheimer’s for the last 10yrs but it is progressing very very slowly and when I quizzed my mum she said there were no lesions as far as she knew and the last scan made the consultant frown because he was expecting
Dad is 76, we already know that his T4/T3 is low. No diagnosis of Thyroid issues. He has Alzheimer’s for the last 10yrs but it is progressing very very slowly and when I quizzed my mum she said there were no lesions as far as she knew and the last scan made the consultant frown because he was expecting
NWA6
in
Thyroid UK
5 years ago
Minimal Change Disease and Diet
I was diagnosed with MCD about 15 years ago. I relapsed several times, and my creatinine levels kept rising. At my worst I had a GFR of 14. I was already on a low sodium diet. It was suggested to me that I try removing as much animal protein out of my diet as possible. When I made this change, I
I was diagnosed with MCD about 15 years ago. I relapsed several times, and my creatinine levels kept rising. At my worst I had a GFR of 14. I was already on a low sodium diet. It was suggested to me that I try removing as much animal protein out of my diet as possible. When I made this change, I
ChefDuane
in
Kidney Disease
5 years ago
Radium 223 and external beam radiation
Wondering if anyone out there had external beam radiation to bone mets while on Radium 223? My husband had his first Radium 223 infusion this past Wednesday but he has a bone met in his spine that is causing severe pain. When we asked our oncologist if he could get it radiated, he said no due to high
Wondering if anyone out there had external beam radiation to bone mets while on Radium 223? My husband had his first Radium 223 infusion this past Wednesday but he has a bone met in his spine that is causing severe pain. When we asked our oncologist if he could get it radiated, he said no due to high
MeliaQuinn
in
Advanced Prostate Cancer
5 years ago
Getting off Lasix aka Furosemide
I am trying to wein myself off all my tablets constantly, over what period were you able to come off Furosemide and how did you do it? I am starting to think miss a day when i wake up with the correct weight? I tried to reduce my dosage daily, but I think its better to skip the odd day here and there
I am trying to wein myself off all my tablets constantly, over what period were you able to come off Furosemide and how did you do it? I am starting to think miss a day when i wake up with the correct weight? I tried to reduce my dosage daily, but I think its better to skip the odd day here and there
Hidden
in
British Liver Trust
5 years ago
Questions for anyone who suffered acid rebound effect after PPI use, and eventually was free from acid reflux?
I could write a book about my experiences with this condition, but I'll try to be as concise as possible to keep you from getting bored halfway through! After various stomach problems (constipation / diarrhea, and later on stomach pains / cramps) for about a year, that my doctor speculates are IBS-related
I could write a book about my experiences with this condition, but I'll try to be as concise as possible to keep you from getting bored halfway through! After various stomach problems (constipation / diarrhea, and later on stomach pains / cramps) for about a year, that my doctor speculates are IBS-related
ifiweopfjwfjwef
in
IBS Network
5 years ago
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