I am trying to wein myself off all my tablets constantly, over what period were you able to come off Furosemide and how did you do it?
I am starting to think miss a day when i wake up with the correct weight? I tried to reduce my dosage daily, but I think its better to skip the odd day here and there until I am only taking it every second day.
Over what period were you able to come off Furosemide?
I am eating very clean, low sodium, low protein and low carbs. I am aware of rebound coming off them, I am also aware I have been on them for 5 years and it might take a while for my kidneys to adjust. I have tried coming off them with an 11 day water-only fast, but I start gaining weight again as soon as I have eaten.
thank you for any insight you can offer, I am currently taking 40mg per day when I wake up.
Agree. A pretty “dangerous” thing to do without advice I would say too.... I am always overly cautious in doing things on my own in case it goes wrong/doesn’t work out - then what do you say to the doctor?
My best friend is a surgeon, i have other doctor friends, I use an associated professor for advice. But doctors are limited to what they know, i have done 5 years extensive research, got fit, lost weight, got rid of stress.... but people who have experience in the medicine offer more value. No, its not dangerous at all, staying on medicines all your life is dangerous imo.
Well done 👍. I do try but struggling with post TP recti divarication and my back op next month 🤞if I’m lucky 😁👍.
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Diseasekiller - You refer to all the doctors you speak to as your friends. This makes for a muddled picture of what your situation actually is. Friends who are doctors do not have the same authority, knowledge, objectivity or responsibility as the doctors we consult in a purely professional capacity.
Have you consulted a qualified integrative medical practitioner who is currently working in partnership with a western medicine hepatologist? This may be a way you could get help for what you are asking here.
What you aim to do, without proper guidance from medics who know your case and undertake responsibility for treating you, sounds very risky to me and to others here who have much experience as patients and carers.
Well done getting fit - please don't waste it for lack of the best advice.
Your Excellency. I am sure you had a better brain than mine. Mine is like an unexpected guest. I never know when it will appear, or if it will stay hours or days before it leaves without a word. I managed to do things today that I thought impossible yesterday - like choosing what to wear for one, and going to a bookshop to convert a gift voucher to a book I really wanted. THEN Sparks and Mencers without my brain so I have to go again tomorrow and take stuff back. (at least I have receipts).
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What is harder for me to remember, and painful too, is that many people can't afford medicines or visits to the doctor. In a way it shows how we take our health service for granted. We say it's wonderful but I don't have a clue what we'll do without it.
Well I’ll start a rumpus then 😁 because the two halves of your sentence are not consistent imho? Wonderful but don’t have a clue what we’d do without it? Je ne comprends pas 😁👍.
My sentence would go “we say it is not wonderful but I don’t know what we’d do without it”. Oh my my 😁.
Now you can bawl back insults at me - I can take it 👍.
“You do make me laugh” 😁👍. I’m sure that must be a saying by someone about someone somewhere. I really ought to Google it but.....
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I have been to see 11 doctors, including flying to England, United Kingdom, which wasnt as good as the standards I was used to with old equipment. I can fly anywhere i need to.
Hi,
No one on the forum is medically qualified to comment on your medication.
Please do speak with your own doctor regarding this, it is vital to get the correct medical guidance.
Best wishes
Trust
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I have spoke to 11 doctors, researched extensively, that is why i am here....... Doctors tell me to come off my way, I am trying different methods.
if you felt the need and succeeded in speaking to 11 different doctors and they all said try it your way why did you feel we would have any better knowledge than them with all their years and years and years of combined experience. I don’t understand it..... but hey ho.
Because all of our situations are different, mine is just a case of trying to reduce my tablets... I want to come off them because I had to take so many. Let the body take over fixing things, but easier said than done.
I concur with the comments posted but was wondering why you are constantly trying to stop your medications.
Because i dont want to kill myself with medicine, when i take lasix, i need gout medicines... then i need stomach acid tablets... then the list goes on. The aim is to come off medicines and let the body take care properly.
Anyway, I am going to skip 1 day a week, then 2 days a weeks and i hope to be off all of them by the end of december.
I listen to doctors, athletes, vegans, health freaks, yoga types, and between good dieting and fasting sometimes, i am using minimal medicines.
You have been diagnosed with cirrhosis right? Whatever the reason for the cause, without proper medication which has been prescribed by your specialist, your health will steadily decline. However, you are helping your condition by adopting a healthy diet and exercise but it is by no means a cure.
All medication carries the risk of side effects which can be unpleasant but without that vital medication your life will be damatically shortened.
My late husband had 2 carrier bags when he was seriously ill with cirrhosis 1 was for the meds treating the symptoms of his illness, the other for the meds treating the side effects of the ones in bag 1.
My current husband suffers from PMR ( Polymyalgia rhumatica) he too has to take very strong medication including methotrexate and steroids, both cause major side effects, including blood clots, kidney problems liver damage exhaustion etc etc... the list goes on, all of which have to also be treated with other meds to cure, then keep under control. He was a very fit sportsman and instructor for many years and now feels his disease and all his medication has taken over his entire body, but without them he wouldn't be alive... in our eyes, only in our late fifties, that is not an option.
Well lm not going to argue the case any more, you asked the question, lve answered it. If you want to come off your meds when you have such a serious disease, go ahead. Your choice, your disease, your body.
I have been reading the side effects of furosemide and they are minimal and easily treated in comparison to many drugs you could have been prescribed and fasting days won't help your condition at all.
They arent minimal, they have caused my uric acid to go up so high, that I need gout meds, that means I need stomach acid tablets, that means my body doesnt absorb as much nutrients as I want it to. This is why I need to come off the diurectics or reduce them and I can almost come of all the others.
I cannot speak about lungs as I have no medical training whatsoever. But I am a transplant patient and suffered from both ascities and oedema. I was taken off furosemide and I was drained using a needle into my abdomen. Stopping the furosemide causes no problems.
I too am slightly baffled by the opening poster’s story, but he’s been given advice above to come off this medication which no one on this forum can advise. But the real reason I had to step in - and notify admin - was the statement that furosemide has “minimal side effects” which is not true. Notice I’ve remained civil toward that poster despite this not being reciprocated on several occasions.
We are all different, thank you for your reply, something useful finally instead of being told to keep killing myself by eating lots of medicines. I had my lungs filling up before, but I am a long way from that.
I am sorry, but I am not your dad and I do not have that problem, I dont understand how you are comparing me to his situation?
Diseasekiller, may I ask, where in the world are you living?
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I am from the UK, I am 36 years old but I live in Bangkok,Thailand. I have tried expensive stem cell treatments and other alternative stuff. I have worked hard, so I can afford to do nothing now if i need to, so i try to travel more and if i find a treatment, I will go there.
I like the health/detox resorts on the islands in Thailand, i stay often, I do 11 days of no food with water only and coconut water and some veg broth and I dont need any tablets.
You can stop taking furosemide whenever you want to and you have just stated that you don’t need them. Begs the question, why are you asking a Liver forum having exhausted the medical advice?
The reason why I am here is because doctors have limited knowledge, they are only taught about the drugs they give out but they dont have any experience. The rebound effect is hardly acknowleged or spoken about. I wanted to hear from people that have any any experiences to give me some ideas to taper off, but it just seems that my body isnt ready for to come off so fast, so i will continue to reduce it slower, in the mean time I am facing people that seem to think doctors are some super humans and we can't possibly know more from educating ourselves, and people that don't fight/argue with what they have been told, if i had listened to my doctors, i would be dead by now. I am a strong believer in healthy living and less medicines.
Luckily from this zombie attack, I am more encouraged than ever to come off all my medicines, so for everyone on here, I am very grateful for the encouragement, even in the face of such ignorance to self education, there is a ray of hope for those of us that wont accept being fasttracked to death with medicines.
I am very sorry to those that have it much worse than me, its unlikely i would be able to come off the medicines, so i am not judging everyones reaction in particular because they are judging me by their own situation, i wish you all good luck, but its highly unlikely I will post anymore on here, its seems everyone giving experience/advice is trampled down for not having some paper to say they are a doctor, yet i have met many doctors that know so little about various things because we can all only specialise in limited amounts. It kind of renders this forum useless with such limited mindsets, if any of you really want to get better, all i would ask is eat healthy (less carbs also) and do your best to challenge your doctors about all the medicines you take and what softer alternatives you can get, for example i was given omeprozole for years which is a terrible tablet to take, but now i take ranitidine which is alot kinder to me and lets my body absorb more nutrients.
Please keep fighting and never lie down and except it. I will be back once i have come off all my medicines, if that means to only eat salads all day, i will do it.
The clinicians who dealt with me saved my life. When you are facing 10+ hours of complicated, scientifically advanced surgery, you have to put all your faith into the skills and knowledge of the team of people who are looking after you.
They clearly have the right skills and knowledge otherwise I would not be able to write this reply.
Now go and edit your incorrect post that furosemide has “minimal side effects”. Not only are you extremely offensive, you’re very wrong on this occasion.
“I have been reading the side effects of furosemide and they are minimal and easily treated in comparison to many drugs you could have been prescribed and fasting days won't help your condition at all.“
You’re wrong and calling me a tw*t is just sad and pathetic I’m sorry to say.
I have very direct and recent experience of furosemide which I’m not going to discuss in detail with someone who resorts to gutter language. The side effects are major.
As is your right. I’m just bemused why you’d “like” a post containing only question marks or, even worse, unacceptable and disgusting language from the gutter. The like command is for the content of a post, not the person who’s posted it.
No sweetheart, my very 1st reply says, no one on here is qualified to to advise about whether or not to stop medication .....
Also backed up by a similar response from the liver trust, also followed by Miles saying how dangerous it could be to stop taking medication without qualified supervision.
Thankfully disease killer has made his decision and good luck with recovery. l wish you well with yours too. Have a nice day !
Thanks for that outburst. I won’t lower myself to your and Laura’s level. Neither of you are kids, but you seem to lack the intellect to converse like adults.
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Please ignore as letting off steam...!
Sorry it's been a while...
Realistically - What are the chances of getting a liver transplant in the UK?
Tired can’t get out of my own way, any helpful hints
Just a few jokes to keep morale up, sorry admin, off topic.
