Getting off Lasix aka Furosemide - British Liver Trust

British Liver Trust

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Getting off Lasix aka Furosemide

I am trying to wein myself off all my tablets constantly, over what period were you able to come off Furosemide and how did you do it?

I am starting to think miss a day when i wake up with the correct weight? I tried to reduce my dosage daily, but I think its better to skip the odd day here and there until I am only taking it every second day.

Over what period were you able to come off Furosemide?

I am eating very clean, low sodium, low protein and low carbs. I am aware of rebound coming off them, I am also aware I have been on them for 5 years and it might take a while for my kidneys to adjust. I have tried coming off them with an 11 day water-only fast, but I start gaining weight again as soon as I have eaten.

thank you for any insight you can offer, I am currently taking 40mg per day when I wake up.

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61 Replies

No one here is qualified to advise you about your medication. Please contact your GP regarding this matter.

ThreeSmiles profile image
ThreeSmiles in reply to Laura009

Agree. A pretty “dangerous” thing to do without advice I would say too.... I am always overly cautious in doing things on my own in case it goes wrong/doesn’t work out - then what do you say to the doctor?

in reply to ThreeSmiles

My best friend is a surgeon, i have other doctor friends, I use an associated professor for advice. But doctors are limited to what they know, i have done 5 years extensive research, got fit, lost weight, got rid of stress.... but people who have experience in the medicine offer more value. No, its not dangerous at all, staying on medicines all your life is dangerous imo.

ThreeSmiles profile image
ThreeSmiles in reply to

You’re very lucky to be able to get fit 👍

in reply to ThreeSmiles

Yes I am but its not easy, i have to fight to stay fit and healthy

ThreeSmiles profile image
ThreeSmiles in reply to

Well done 👍. I do try but struggling with post TP recti divarication and my back op next month 🤞if I’m lucky 😁👍.

in reply to

Diseasekiller - You refer to all the doctors you speak to as your friends. This makes for a muddled picture of what your situation actually is. Friends who are doctors do not have the same authority, knowledge, objectivity or responsibility as the doctors we consult in a purely professional capacity.

Have you consulted a qualified integrative medical practitioner who is currently working in partnership with a western medicine hepatologist? This may be a way you could get help for what you are asking here.

What you aim to do, without proper guidance from medics who know your case and undertake responsibility for treating you, sounds very risky to me and to others here who have much experience as patients and carers.

Well done getting fit - please don't waste it for lack of the best advice.

ThreeSmiles profile image
ThreeSmiles in reply to

You make some very good points Fili 👍. You put across some things I thought about (well in part 😁) but couldn’t express adequately at all.

Miles

in reply to ThreeSmiles

Your Excellency. I am sure you had a better brain than mine. Mine is like an unexpected guest. I never know when it will appear, or if it will stay hours or days before it leaves without a word. I managed to do things today that I thought impossible yesterday - like choosing what to wear for one, and going to a bookshop to convert a gift voucher to a book I really wanted. THEN Sparks and Mencers without my brain so I have to go again tomorrow and take stuff back. (at least I have receipts).

in reply to

What is harder for me to remember, and painful too, is that many people can't afford medicines or visits to the doctor. In a way it shows how we take our health service for granted. We say it's wonderful but I don't have a clue what we'll do without it.

ThreeSmiles profile image
ThreeSmiles in reply to

I dread to think where I would have been without the NHS that’s for sure!!

PS did you mean instead to say we say that it’s not wonderful.....?

in reply to ThreeSmiles

No. I meant what I said, but didn't elaborate and start an insult-hurling rumpus like we've seen in the House of Commons recently. And here... :-)

ThreeSmiles profile image
ThreeSmiles in reply to

Well I’ll start a rumpus then 😁 because the two halves of your sentence are not consistent imho? Wonderful but don’t have a clue what we’d do without it? Je ne comprends pas 😁👍.

My sentence would go “we say it is not wonderful but I don’t know what we’d do without it”. Oh my my 😁.

Now you can bawl back insults at me - I can take it 👍.

Explain yourself 😁😁

Milo

in reply to ThreeSmiles

Sounds like a nice cup of tea is called for here.

ThreeSmiles profile image
ThreeSmiles in reply to

Think I’m up for it ☕ 👍

ThreeSmiles profile image
ThreeSmiles in reply to

“You do make me laugh” 😁👍. I’m sure that must be a saying by someone about someone somewhere. I really ought to Google it but.....

in reply to

I have been to see 11 doctors, including flying to England, United Kingdom, which wasnt as good as the standards I was used to with old equipment. I can fly anywhere i need to.

Trust1 profile image
Trust1Administrator

Hi,

No one on the forum is medically qualified to comment on your medication.

Please do speak with your own doctor regarding this, it is vital to get the correct medical guidance.

Best wishes

Trust

in reply to Trust1

I have spoke to 11 doctors, researched extensively, that is why i am here....... Doctors tell me to come off my way, I am trying different methods.

ThreeSmiles profile image
ThreeSmiles in reply to

if you felt the need and succeeded in speaking to 11 different doctors and they all said try it your way why did you feel we would have any better knowledge than them with all their years and years and years of combined experience. I don’t understand it..... but hey ho.

in reply to ThreeSmiles

Because all of our situations are different, mine is just a case of trying to reduce my tablets... I want to come off them because I had to take so many. Let the body take over fixing things, but easier said than done.

ThreeSmiles profile image
ThreeSmiles in reply to

But you haven’t answered the question....ah well.

I concur with the comments posted but was wondering why you are constantly trying to stop your medications.

Because i dont want to kill myself with medicine, when i take lasix, i need gout medicines... then i need stomach acid tablets... then the list goes on. The aim is to come off medicines and let the body take care properly.

Anyway, I am going to skip 1 day a week, then 2 days a weeks and i hope to be off all of them by the end of december.

I listen to doctors, athletes, vegans, health freaks, yoga types, and between good dieting and fasting sometimes, i am using minimal medicines.

Laura009 profile image
Laura009 in reply to

PLEASE see my reply below

You have been diagnosed with cirrhosis right? Whatever the reason for the cause, without proper medication which has been prescribed by your specialist, your health will steadily decline. However, you are helping your condition by adopting a healthy diet and exercise but it is by no means a cure.

All medication carries the risk of side effects which can be unpleasant but without that vital medication your life will be damatically shortened.

My late husband had 2 carrier bags when he was seriously ill with cirrhosis 1 was for the meds treating the symptoms of his illness, the other for the meds treating the side effects of the ones in bag 1.

My current husband suffers from PMR ( Polymyalgia rhumatica) he too has to take very strong medication including methotrexate and steroids, both cause major side effects, including blood clots, kidney problems liver damage exhaustion etc etc... the list goes on, all of which have to also be treated with other meds to cure, then keep under control. He was a very fit sportsman and instructor for many years and now feels his disease and all his medication has taken over his entire body, but without them he wouldn't be alive... in our eyes, only in our late fifties, that is not an option.

in reply to Laura009

I only have some ascites, nothing major. Yes, I have cirrhosis, it was caused by myocarditis.

Laura009 profile image
Laura009 in reply to

Well lm not going to argue the case any more, you asked the question, lve answered it. If you want to come off your meds when you have such a serious disease, go ahead. Your choice, your disease, your body.

ThreeSmiles profile image
ThreeSmiles in reply to Laura009

Someone isn’t listening Laura.....

Laura009 profile image
Laura009 in reply to ThreeSmiles

Couldnt care less what they do or don't do Miles, not my body or brain thats screwed up !

I have been reading the side effects of furosemide and they are minimal and easily treated in comparison to many drugs you could have been prescribed and fasting days won't help your condition at all.

in reply to Laura009

They arent minimal, they have caused my uric acid to go up so high, that I need gout meds, that means I need stomach acid tablets, that means my body doesnt absorb as much nutrients as I want it to. This is why I need to come off the diurectics or reduce them and I can almost come of all the others.

Laura009 profile image
Laura009 in reply to

Come off it then you obviously want to

CocoChannel profile image
CocoChannel in reply to Laura009

They aren’t minimal at all. My dad’s BP was constantly dropping through the floor due to this drug, and a result he collapsed a number of times.

Laura009 profile image
Laura009 in reply to CocoChannel

Like l said.... come off it then

CocoChannel profile image
CocoChannel in reply to Laura009

It’s a prescribed drug. My dad took it to stop his lungs filling with fluid. You can’t just come off such drugs.

Laura009 profile image
Laura009 in reply to CocoChannel

Stay on it then .... l really dont care. Not my problem

CocoChannel profile image
CocoChannel in reply to Laura009

Thanks for this insight.

TT-2018 profile image
TT-2018 in reply to CocoChannel

I cannot speak about lungs as I have no medical training whatsoever. But I am a transplant patient and suffered from both ascities and oedema. I was taken off furosemide and I was drained using a needle into my abdomen. Stopping the furosemide causes no problems.

CocoChannel profile image
CocoChannel in reply to TT-2018

Yes Your doctor made that decision.

I too am slightly baffled by the opening poster’s story, but he’s been given advice above to come off this medication which no one on this forum can advise. But the real reason I had to step in - and notify admin - was the statement that furosemide has “minimal side effects” which is not true. Notice I’ve remained civil toward that poster despite this not being reciprocated on several occasions.

TT-2018 profile image
TT-2018 in reply to CocoChannel

There is nothing positive about end stage decompensated cirrhosis, I required draining every three weeks and picked up Peritonitis.

I went on to need a liver transplant.

CocoChannel profile image
CocoChannel in reply to TT-2018

I’ll modify my post then to keep on topic. Done

Your doctor made the decision to stop the furosemide. The opening poster’s doctor needs to make that decision too.

in reply to TT-2018

We are all different, thank you for your reply, something useful finally instead of being told to keep killing myself by eating lots of medicines. I had my lungs filling up before, but I am a long way from that.

in reply to CocoChannel

I am sorry, but I am not your dad and I do not have that problem, I dont understand how you are comparing me to his situation?

Diseasekiller, may I ask, where in the world are you living?

in reply to

I am from the UK, I am 36 years old but I live in Bangkok,Thailand. I have tried expensive stem cell treatments and other alternative stuff. I have worked hard, so I can afford to do nothing now if i need to, so i try to travel more and if i find a treatment, I will go there.

I like the health/detox resorts on the islands in Thailand, i stay often, I do 11 days of no food with water only and coconut water and some veg broth and I dont need any tablets.

TT-2018 profile image
TT-2018 in reply to

You can stop taking furosemide whenever you want to and you have just stated that you don’t need them. Begs the question, why are you asking a Liver forum having exhausted the medical advice?

CocoChannel profile image
CocoChannel in reply to TT-2018

Another doctor joins the forum.

??????

Quite !

CocoChannel profile image
CocoChannel in reply to Laura009

So Laura, you like to criticise me, and to my credit I ignore you normally, but who are you to say furosemide has “minimal side effects”?

in reply to TT-2018

The reason why I am here is because doctors have limited knowledge, they are only taught about the drugs they give out but they dont have any experience. The rebound effect is hardly acknowleged or spoken about. I wanted to hear from people that have any any experiences to give me some ideas to taper off, but it just seems that my body isnt ready for to come off so fast, so i will continue to reduce it slower, in the mean time I am facing people that seem to think doctors are some super humans and we can't possibly know more from educating ourselves, and people that don't fight/argue with what they have been told, if i had listened to my doctors, i would be dead by now. I am a strong believer in healthy living and less medicines.

Luckily from this zombie attack, I am more encouraged than ever to come off all my medicines, so for everyone on here, I am very grateful for the encouragement, even in the face of such ignorance to self education, there is a ray of hope for those of us that wont accept being fasttracked to death with medicines.

I am very sorry to those that have it much worse than me, its unlikely i would be able to come off the medicines, so i am not judging everyones reaction in particular because they are judging me by their own situation, i wish you all good luck, but its highly unlikely I will post anymore on here, its seems everyone giving experience/advice is trampled down for not having some paper to say they are a doctor, yet i have met many doctors that know so little about various things because we can all only specialise in limited amounts. It kind of renders this forum useless with such limited mindsets, if any of you really want to get better, all i would ask is eat healthy (less carbs also) and do your best to challenge your doctors about all the medicines you take and what softer alternatives you can get, for example i was given omeprozole for years which is a terrible tablet to take, but now i take ranitidine which is alot kinder to me and lets my body absorb more nutrients.

Please keep fighting and never lie down and except it. I will be back once i have come off all my medicines, if that means to only eat salads all day, i will do it.

TT-2018 profile image
TT-2018 in reply to

The clinicians who dealt with me saved my life. When you are facing 10+ hours of complicated, scientifically advanced surgery, you have to put all your faith into the skills and knowledge of the team of people who are looking after you.

They clearly have the right skills and knowledge otherwise I would not be able to write this reply.

Fortunately I am able to enjoy a salad now.

Laura009 profile image
Laura009 in reply to

I truly hope you get the balance right and you can manage on less drugs, without sacrificing your health and fitness. Look after yourself

All the best

Very mature as ever, Laura.

Now go and edit your incorrect post that furosemide has “minimal side effects”. Not only are you extremely offensive, you’re very wrong on this occasion.

And snoutie, behave with that “like” button.

Laura009 profile image
Laura009 in reply to CocoChannel

I actually said, minimal side effects compared to other medication he could be on .

CocoChannel profile image
CocoChannel in reply to Laura009

You wrote this.

“I have been reading the side effects of furosemide and they are minimal and easily treated in comparison to many drugs you could have been prescribed and fasting days won't help your condition at all.“

You’re wrong and calling me a tw*t is just sad and pathetic I’m sorry to say.

I have very direct and recent experience of furosemide which I’m not going to discuss in detail with someone who resorts to gutter language. The side effects are major.

TT-2018 profile image
TT-2018 in reply to CocoChannel

It is not your place to moderate the forum. I will continue to give a like to any remark that I choose.

In your words, this isn’t North Korea.

CocoChannel profile image
CocoChannel in reply to TT-2018

As is your right. I’m just bemused why you’d “like” a post containing only question marks or, even worse, unacceptable and disgusting language from the gutter. The like command is for the content of a post, not the person who’s posted it.

Laura009 profile image
Laura009 in reply to CocoChannel

No sweetheart, my very 1st reply says, no one on here is qualified to to advise about whether or not to stop medication .....

Also backed up by a similar response from the liver trust, also followed by Miles saying how dangerous it could be to stop taking medication without qualified supervision.

Thankfully disease killer has made his decision and good luck with recovery. l wish you well with yours too. Have a nice day !

Thanks for that outburst. I won’t lower myself to your and Laura’s level. Neither of you are kids, but you seem to lack the intellect to converse like adults.

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