Looking for some feedback and advice from the amazing Warriors on this board. I wrote about the VERU-111 trial A few weeks ago. We went through the screening process and anxiously awaited the results only to find that my dad‘s blood was damaged in shipping. We had to go through the bloodwork again and we finally found out that he did not make it into the trial. His hemoglobin was an 8.1 and it needed to be over 9 to get into the study. It has only been seven weeks since he finished his last radium 223 treatment so I’m wondering if this had anything to do with the lower hemoglobin.
My dad‘s oncologist at Hopkins wanted some time to think about what to do next and proposed Bipolar Androgen Therapy for him. He received his blood transfusion this past Wednesday along with the BAT. They gave him one bag of blood, did BAT and then gave him another bag of blood. He now has a low-grade fever. He started feeling bad that evening and has not been able to sleep since he received the shots. His pain has also increased to the worst it’s ever been. I feel terrible for him, we are going to be reaching out to the doctor today but wondering if anybody else has gone through this and what their side effects work.
My dad (76) has been on this journey with stage 4 metastasized prostate cancer for a year and a half. He has castration-resistant prostate cancer with progression despite abiraterone, enzalutamide, and docetaxel chemotherapy and radium-223. His alkaline phosphate were about 1500 prior to the start and now they are almost normal. However his PSA remains around 500. My Dad has the somatic TP53 mutation. He has widespread Mets but no organ involvement.
Please share your feedback with BAT therapy or any advice you can give us right now. I would like to add that my dad continues to work despite all of these treatments, however, he has not been able to get out of bed since his BAT shot. He is a true fighter! We would appreciate any advice or feedback. Thanks so much!