Search
Search
About
Log in
Join
Experiences with
Mixed connective tissue disease (MCTD)
Posts
Communities
332 public posts
Filter results
Pain !!!!
I have fibro ,
MCTD
and Syjogrens ! Is there some kind of vitamin boost or something for when we get ill !!!!??????
I have fibro ,
MCTD
and Syjogrens ! Is there some kind of vitamin boost or something for when we get ill !!!!??????
larissa
in
LUPUS UK
11 years ago
Confused about digital scleroderma/sclerosis, what symptoms would you have?
My next rheumy appt is soon, am sure the scleroderma antibody is negative along with the
MCTD
antibody. I hate it all.
My next rheumy appt is soon, am sure the scleroderma antibody is negative along with the
MCTD
antibody. I hate it all.
dizzy2
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
GOOGLE!!! good or bad!!!
Now seeing if there is a connection to
MCTD
......am I just being paranoid!!!!
Now seeing if there is a connection to
MCTD
......am I just being paranoid!!!!
Kerry72
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Foot care on nhs
Hi there , I have fibro , sjogrens, and
MCTD
. Can i get foot care on the nhs ? I find it so hard to remove dead skin etc Has anyone had experience to share ? How do you get reffered ? I work part time and cant afford private !!!
Hi there , I have fibro , sjogrens, and
MCTD
. Can i get foot care on the nhs ? I find it so hard to remove dead skin etc Has anyone had experience to share ? How do you get reffered ? I work part time and cant afford private !!!
larissa
in
Fibromyalgia Action UK
11 years ago
horrible feet !!!!
I have fibro, sjogrens, and
Mctd
.
I have fibro, sjogrens, and
Mctd
.
larissa
in
LUPUS UK
11 years ago
horrible feet !!!!
I have fibro, sjogrens, and
Mctd
.
I have fibro, sjogrens, and
Mctd
.
larissa
in
LUPUS UK
11 years ago
Reality check
I have just recently been diagnosed with CNS Lupus after years of
MCTD
being controlled to a large extent by hydroxychloriquine.
I have just recently been diagnosed with CNS Lupus after years of
MCTD
being controlled to a large extent by hydroxychloriquine.
DaleDiva
in
LUPUS UK
11 years ago
Why do we feel we have to trust consultants?
Anyway he's now decided I only have fibro & not
MCTD
so has said I should come off all of the drugs I'm on for that. I asked him why he thinks that two rheumys, a neurologist & opthalmologist are all wrong.
Anyway he's now decided I only have fibro & not
MCTD
so has said I should come off all of the drugs I'm on for that. I asked him why he thinks that two rheumys, a neurologist & opthalmologist are all wrong.
SuzyB
in
Fibromyalgia Action UK
11 years ago
Couple more questions, sorry!!
I have SLE and Sjorgens possibly
MCTD
, I am on plaquenil and Azathiaprione along with a cocktail of other meds. The ulcers 'downstairs' have only started since being off the steroids. So I am supposedly on effective treatment for my illness.
I have SLE and Sjorgens possibly
MCTD
, I am on plaquenil and Azathiaprione along with a cocktail of other meds. The ulcers 'downstairs' have only started since being off the steroids. So I am supposedly on effective treatment for my illness.
dizzy2
in
Behçet's UK
11 years ago
MCTD/Lupus and lower back pain - sacroilliac joints apparently! Is this as good as it gets?
But is this part of
MCTD
or something else? Anyone else got this very specific localised pain or is your pain more generalised? I get a bit of that too, and obviously the fatigue, but it's this pain which is driving me crazy. My big question is: is this as good as it gets?
But is this part of
MCTD
or something else? Anyone else got this very specific localised pain or is your pain more generalised? I get a bit of that too, and obviously the fatigue, but it's this pain which is driving me crazy. My big question is: is this as good as it gets?
Jennie_103
in
LUPUS UK
12 years ago
Nervousness brings on illness
Hi, I suffer from lupus,
mctd
, plus numerous other autoimmune conditions and over the years I have begun to realise that adrenaline rushes aggravates my symptoms dramatically, I can almost feel it happening.
Hi, I suffer from lupus,
mctd
, plus numerous other autoimmune conditions and over the years I have begun to realise that adrenaline rushes aggravates my symptoms dramatically, I can almost feel it happening.
Chablis
in
LUPUS UK
12 years ago
Left leg problems
I take methotrexate and steroids for lupus and
mctd
. I suppose I am concerned that my ability to do any form of exercise is going to disappear if I am not careful Merry christmas to you all Me
I take methotrexate and steroids for lupus and
mctd
. I suppose I am concerned that my ability to do any form of exercise is going to disappear if I am not careful Merry christmas to you all Me
Chablis
in
LUPUS UK
12 years ago
Is it any wonder we get confused
He then said my
MCTD
isn't active as i have no inflammation. Then i went to see the nurse for my monthly bloods and got the results if last months and was told my ESR is 17 the normal range is upto 12 and my CRP is 6.5 so im not sure how that says no inflammation....
He then said my
MCTD
isn't active as i have no inflammation. Then i went to see the nurse for my monthly bloods and got the results if last months and was told my ESR is 17 the normal range is upto 12 and my CRP is 6.5 so im not sure how that says no inflammation....
SuzyB
in
Fibromyalgia Action UK
12 years ago
Feeling abandoned
I have to keep taking the plaquenil and methotrexate for my
MCTD
and the naproxen and tramadol for the pain. My OH saw this as positive as it's not the
MCTD
. To me it sounds like a sentence to live in constant pain. I've had enough of it all.
I have to keep taking the plaquenil and methotrexate for my
MCTD
and the naproxen and tramadol for the pain. My OH saw this as positive as it's not the
MCTD
. To me it sounds like a sentence to live in constant pain. I've had enough of it all.
SuzyB
in
Fibromyalgia Action UK
12 years ago
Calcinosis
I have
MCTD
including SLE and Scleroderma and Raynaud's ; fairly recently diagnosed, but like most have had symptoms for years. Just wondering if anyone had experienced calcinosis on their earlobe?! I seem to have two small areas now..any advice?
I have
MCTD
including SLE and Scleroderma and Raynaud's ; fairly recently diagnosed, but like most have had symptoms for years. Just wondering if anyone had experienced calcinosis on their earlobe?! I seem to have two small areas now..any advice?
HalfPint
in
LUPUS UK
12 years ago
Lupus and Mixed Connective Tissue Disease
We've just published a brand new factsheet for
MCTD
. You can read it here - http://lupusuk.org.uk/images/pdf/lupusandmctd.pdf If you need a physical copy, please send me a private message, or email paul@lupusuk.org.uk with your name and address.
We've just published a brand new factsheet for
MCTD
. You can read it here - http://lupusuk.org.uk/images/pdf/lupusandmctd.pdf If you need a physical copy, please send me a private message, or email paul@lupusuk.org.uk with your name and address.
Paul_Howard
LUPUS UK
in
LUPUS UK
12 years ago
Finally after you have, you haven't scenarios It has been confirmed that I have MCTD.
Anyone have any suggestions as to what meds I should be taking? Many thanks
Anyone have any suggestions as to what meds I should be taking? Many thanks
Tinalou
in
LUPUS UK
12 years ago
2 docs say lupus Rheumy says not ....
This is such a rubbish situation to be in the Rheumy originally said
MCTD
and now he says he has done the lupus test and I don't have it! Prior to this my GP said there isn't a specific lupus test. She has also said they may never find out what's wrong. I'm confused IS there a specific lupus test?
This is such a rubbish situation to be in the Rheumy originally said
MCTD
and now he says he has done the lupus test and I don't have it! Prior to this my GP said there isn't a specific lupus test. She has also said they may never find out what's wrong. I'm confused IS there a specific lupus test?
Tinalou
in
LUPUS UK
12 years ago
how vital is firm diagnosis?
following a lifetime of treatment at a handful of different NHS clinics, for what have turned out to be secondary conditions, last year i began to be treated for relapsing remitting SLE and
MCTD
with sicca symptoms (verging on sjogrens), and also discovered that i was diagnosed with lupus as an infant
following a lifetime of treatment at a handful of different NHS clinics, for what have turned out to be secondary conditions, last year i began to be treated for relapsing remitting SLE and
MCTD
with sicca symptoms (verging on sjogrens), and also discovered that i was diagnosed with lupus as an infant
Barnclown
in
Endometriosis UK
12 years ago
Raynauds....The begginiing stage of oh so much more to come!
My younger brother has Lupus and what looks like it's turning into a case of full blown
MCTD
and now my youngest children are following in our path.
My younger brother has Lupus and what looks like it's turning into a case of full blown
MCTD
and now my youngest children are following in our path.
Toniraquel
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
1
...
15
16
17
Next page
10
Filter results
Clear filters
Posted in
All communities
LUPUS UK
154 results
Scleroderma & Raynaud's UK (SRUK)
34 results
Cure Parkinson's
24 results
View top 10 communities
Sort by
Most Relevant
Newest