I saw my GP today to ask for a referral to a fibro specialist and was told our PCT dont allow for out of the trust referrals. He has however referred me to a different hospital the John Radcliffe. So i will see what they say but he said he agrees with my consultant that there is nothing they can do other than amitryptiline. I sat there in tears and he just didnt seem to care. He then said my MCTD isn't active as i have no inflammation. Then i went to see the nurse for my monthly bloods and got the results if last months and was told my ESR is 17 the normal range is upto 12 and my CRP is 6.5 so im not sure how that says no inflammation.... I guess I'll just have to wait until i see the new consultant. I don't expect a magic wand but some help would be good as im really struggling
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