Hi I don't think I've posted on here before but I am so low today I could do with some advice.
I have MCTD and my Rheumatologist also thinks I have fibromyalgia. I went to see her yesterday and the consultant I saw (not mine as she was off) said it is fibro as my joints are mega swollen but they are painful. I can't take amitryptiline as I need to leave for work at 6:30am and that means a 45 mile drive for me and the amitryptiline left me feeling to woozy to feel safe to drive. So she basically said there is nothing else they can do for me.
I have to keep taking the plaquenil and methotrexate for my MCTD and the naproxen and tramadol for the pain.
My OH saw this as positive as it's not the MCTD. To me it sounds like a sentence to live in constant pain. I've had enough of it all. I work 4 days a week in a stressful IT environment and also have a home to run and as the mum of the family almost everything is left to me to do.
I'm fed up with being in constant pain and not being able to focus properly at anything. My work means I need to juggle lots of different things and I struggle to do that these days. I've even missed a few important things and ended up in trouble.
The consultant said I'm obviously not sleeping properly. I don't feel that's true. I fall asleep within minutes of getting to bed and don't stir until early the following morning when the alarm goes off.
What does everyone else do to cope/manage these symptoms?