I now have MCTD apparently .....after being diagnosed with Sjogren's about ten years ago.
The muscles in my legs and arms feel weak now and I've got a walking stick and a blue badge.
At the end of last week I felt really good and felt I could walk without a stick but pushing the supermarket trolley was really hard on my upper arms. I was fine till Sunday but then I felt unsteady and the Amitriptylene stopped keeping the peripheral neuropathy under control. Today I feel the same + pain in my parotid glands and
Flu like exhaustion (temperature sub normal)
I take HCQ and Mycophenolate plus Amitriptylene.
Do you think it's just a flare. I'm sure it is but wonder why this has happened.
I feel like curling up in bed but I think my muscles will become even weaker.But I'm feeling pretty cheesed off ! It's so dispiriting. Sorry abou the moan !